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Chronic pain - Let's talk

Posted by leh09 @leh09, Mar 23, 2016

Are there any discussions for chronic pain?

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Profile picture for Kelsey Mohring
Kelsey Mohring | @kelseydm | Apr 13, 2016
In reply to @briansr "Thank you, but I don't see a way out except death. The only thing is my..." + (show)
Profile picture for briansr @briansr

Thank you, but I don't see a way out except death. The only thing is my<br />
Grandfather lived until 98. I don't want this kind of pain that long.!!<br />

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Hi @19lin. Thank you for your activity on Connect and for responding to this discussion.

Please note that I removed your personal email address for your safety and to limit your getting unwanted spam. You can private message another Connect member by simply clicking on their name and then clicking email icon.

@briansr, I also want to add that if at any point you start to feel like you may consider hurting yourself, please call or text the 988 Suicide & Crisis Lifeline https://988lifeline.org for immediate help. Your safety is the most important thing to us and needing to talk to a professional doesn’t show weakness, it shows strength!

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Moderator
Colleen Young, Connect Director | @colleenyoung | Apr 13, 2016
In reply to @mimsy313 "Don't know if there is a permanent group....there should be....so many of us suffer and each..." + (show)
Profile picture for mimsy313 @mimsy313

Don't know if there is a permanent group....there should be....so many of us suffer and each have ways of coping and meds to try.

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Hi Bruce (@user_ch715bb07),
Welcome to Connect.
Please post a message to this thread about multiple myeloma to reactivate the discussion. https://connect.mayoclinic.org/discussion/multiple-myeloma-299aae/

You can see other discussions in the Cancer group as well. https://connect.mayoclinic.org/group/cancer/ I'll get you connected with others.

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Profile picture for 19lin
19lin | @19lin | Apr 13, 2016
In reply to @suebreen54 "I'm not sure about pot taking pain away. If it did and was legal I would..." + (show)
Profile picture for suebreen54 @suebreen54

I'm not sure about pot taking pain away. If it did and was legal I would<br />
want my Dr to OK it and my pain Dr and I don't want to be high . I have my<br />
son and daughter in law and grandchildren and I don't want to be high<br />
around them. T could maybe see if you are having a severe pain crises even<br />
though you are on the most medications you can be. Pot might relax you<br />
and help you sleep and stop the pain crises fast. But I'm sceptical. It<br />
has to be excepted by the medical community for me .<br />

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I have read that there are certain elements in pot that help and you do not need to smoke it, but can take it in pill or some other form. I never smoked so I never used pot, but I have been exposed to second hand pot smoke and it always made me sick like I wanted to throw up, so I had to leave the area where anyone was smoking it. I do not know if it would work for me or not? I would be willing to try it in pill or some form if my doctor wanted me too. 19lin<br />
<br />
<br />
<br />
<br />
<br />
<br />
Sent from Windows Mail

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Profile picture for briansr
briansr | @briansr | Apr 13, 2016
In reply to @suebreen54 "I'm not sure about pot taking pain away. If it did and was legal I would..." + (show)
Profile picture for suebreen54 @suebreen54

I'm not sure about pot taking pain away. If it did and was legal I would<br />
want my Dr to OK it and my pain Dr and I don't want to be high . I have my<br />
son and daughter in law and grandchildren and I don't want to be high<br />
around them. T could maybe see if you are having a severe pain crises even<br />
though you are on the most medications you can be. Pot might relax you<br />
and help you sleep and stop the pain crises fast. But I'm sceptical. It<br />
has to be excepted by the medical community for me .<br />

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Good luck on that!!<br />

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Profile picture for briansr
briansr | @briansr | Apr 14, 2016

I have EMGUS which can turn into multiple myeloma, could you tell me how<br />
your multiple myeloma affects you please? briansr<br />

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briansr | @briansr | Apr 14, 2016
In reply to @ladyjane85 "ladyjane replying - I am in your same round robin or 25 years - 3surgeries with..." + (show)
Profile picture for ladyjane85 @ladyjane85

ladyjane replying - I am in your same round robin or 25 years -<br />
3surgeries with fusion on lumbar and above, numerous epidurals which<br />
do not woork, and cannot take over 40 pain meds. Had to have<br />
neurostimulator removed bec no help, last hope was pain pump. But have<br />
side effects to drugs so refusing that surgery. 4th and last pain<br />
management dr says there is nothing more they can do for 20 odd years<br />
of 8 to 9 pain if I get off the bed and get physical - dressing,<br />
making a meal. I am a young 85. They cannot believe my age. I agree<br />
no more surgeries - have had 5. Some of us do not respond to meds or<br />
end up in hospital w/ side effects. One just has to be strong and<br />
make sure you socialize some or depression is bad. Meditate, by<br />
clearing your mind to peacefulness.<br />

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The pain pump will help and the meds can't get into your system. Had mine<br />
for five years and it helps my lower back, but that's all. briansr<br />

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Profile picture for briansr
briansr | @briansr | Apr 14, 2016
In reply to @briansr "Thank you, but I don't see a way out except death. The only thing is my..." + (show)
Profile picture for briansr @briansr

Thank you, but I don't see a way out except death. The only thing is my<br />
Grandfather lived until 98. I don't want this kind of pain that long.!!<br />

Jump to this post

I will never hurt myself but am not worried if a natural death comes my<br />
way. I fight every day and will continue to fight. Thank you for the info<br />
if I want to reach someone. How do we get a chronic pain group started?<br />
briansr<br />

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Profile picture for sue60
sue60 | @sue60 | Apr 14, 2016
In reply to @briansr "Thank you, but I don't see a way out except death. The only thing is my..." + (show)
Profile picture for briansr @briansr

Thank you, but I don't see a way out except death. The only thing is my<br />
Grandfather lived until 98. I don't want this kind of pain that long.!!<br />

Jump to this post

Keep trying to find some relief. Try everything! I hope so much you find relief somehow!<br />
<br />
Have a beautiful Aloha Day!<br />

REPLY
Profile picture for sharonmay7
sharonmay7 | @sharonmay7 | Apr 15, 2016
In reply to @ladyjane85 "ladyjane replying - I am in your same round robin or 25 years - 3surgeries with..." + (show)
Profile picture for ladyjane85 @ladyjane85

ladyjane replying - I am in your same round robin or 25 years -<br />
3surgeries with fusion on lumbar and above, numerous epidurals which<br />
do not woork, and cannot take over 40 pain meds. Had to have<br />
neurostimulator removed bec no help, last hope was pain pump. But have<br />
side effects to drugs so refusing that surgery. 4th and last pain<br />
management dr says there is nothing more they can do for 20 odd years<br />
of 8 to 9 pain if I get off the bed and get physical - dressing,<br />
making a meal. I am a young 85. They cannot believe my age. I agree<br />
no more surgeries - have had 5. Some of us do not respond to meds or<br />
end up in hospital w/ side effects. One just has to be strong and<br />
make sure you socialize some or depression is bad. Meditate, by<br />
clearing your mind to peacefulness.<br />

Jump to this post

I understand what u mean! Depression goes had in hand with pain!!!! I always say "I don't want to live this way for the rest of my life!" It's not that I want to die!! I just don't want this pain!!!! It's a hard thing to explain to others who are not in our shoe's,they just don't understand!! But we have to stay strong! Good luck to you!!! And God bless. Sharon <br />
<br />

REPLY
Profile picture for briansr
briansr | @briansr | Apr 15, 2016
In reply to @ladyjane85 "ladyjane replying - I am in your same round robin or 25 years - 3surgeries with..." + (show)
Profile picture for ladyjane85 @ladyjane85

ladyjane replying - I am in your same round robin or 25 years -<br />
3surgeries with fusion on lumbar and above, numerous epidurals which<br />
do not woork, and cannot take over 40 pain meds. Had to have<br />
neurostimulator removed bec no help, last hope was pain pump. But have<br />
side effects to drugs so refusing that surgery. 4th and last pain<br />
management dr says there is nothing more they can do for 20 odd years<br />
of 8 to 9 pain if I get off the bed and get physical - dressing,<br />
making a meal. I am a young 85. They cannot believe my age. I agree<br />
no more surgeries - have had 5. Some of us do not respond to meds or<br />
end up in hospital w/ side effects. One just has to be strong and<br />
make sure you socialize some or depression is bad. Meditate, by<br />
clearing your mind to peacefulness.<br />

Jump to this post

Thank you Sharon. I'm now facing a surgery consult on the 22nd. After my<br />
last spinal c-3 to c-7 my disk below, c-7 thru t-1, 2, 3, is what their<br />
after. It happens every time and if I don't have to have the surgery I<br />
won't. I never get relief afterwords and more disk crumble above or below.<br />
The other surgeries were have tos, I hope this one is not. This is like<br />
having cancer, and I've taken care of alot of cancer patients, but the<br />
doctor doesn't tell you how long you've got. I would like to just be<br />
comfortable, but my dr. doesn't get it. Anyhow how can we set up a real<br />
time discussion group on chronic pain? Have any ideas. Thank you briansr.<br />

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