Hi @19lin. Thank you for your activity on Connect and for responding to this discussion.
Please note that I removed your personal email address for your safety and to limit your getting unwanted spam. You can private message another Connect member by simply clicking on their name and then clicking email icon.
@briansr, I also want to add that if at any point you start to feel like you may consider hurting yourself, please call or text the 988 Suicide & Crisis Lifeline https://988lifeline.org for immediate help. Your safety is the most important thing to us and needing to talk to a professional doesn’t show weakness, it shows strength!
I’m not sure about pot taking pain away. If it did and was legal I would
want my Dr to OK it and my pain Dr and I don’t want to be high . I have my
son and daughter in law and grandchildren and I don’t want to be high
around them. T could maybe see if you are having a severe pain crises even
though you are on the most medications you can be. Pot might relax you
and help you sleep and stop the pain crises fast. But I’m sceptical. It
has to be excepted by the medical community for me .
I have read that there are certain elements in pot that help and you do not need to smoke it, but can take it in pill or some other form. I never smoked so I never used pot, but I have been exposed to second hand pot smoke and it always made me sick like I wanted to throw up, so I had to leave the area where anyone was smoking it. I do not know if it would work for me or not? I would be willing to try it in pill or some form if my doctor wanted me too. 19lin
I’m not sure about pot taking pain away. If it did and was legal I would
want my Dr to OK it and my pain Dr and I don’t want to be high . I have my
son and daughter in law and grandchildren and I don’t want to be high
around them. T could maybe see if you are having a severe pain crises even
though you are on the most medications you can be. Pot might relax you
and help you sleep and stop the pain crises fast. But I’m sceptical. It
has to be excepted by the medical community for me .
ladyjane replying – I am in your same round robin or 25 years –
3surgeries with fusion on lumbar and above, numerous epidurals which
do not woork, and cannot take over 40 pain meds. Had to have
neurostimulator removed bec no help, last hope was pain pump. But have
side effects to drugs so refusing that surgery. 4th and last pain
management dr says there is nothing more they can do for 20 odd years
of 8 to 9 pain if I get off the bed and get physical – dressing,
making a meal. I am a young 85. They cannot believe my age. I agree
no more surgeries – have had 5. Some of us do not respond to meds or
end up in hospital w/ side effects. One just has to be strong and
make sure you socialize some or depression is bad. Meditate, by
clearing your mind to peacefulness.
I will never hurt myself but am not worried if a natural death comes my
way. I fight every day and will continue to fight. Thank you for the info
if I want to reach someone. How do we get a chronic pain group started?
briansr
ladyjane replying – I am in your same round robin or 25 years –
3surgeries with fusion on lumbar and above, numerous epidurals which
do not woork, and cannot take over 40 pain meds. Had to have
neurostimulator removed bec no help, last hope was pain pump. But have
side effects to drugs so refusing that surgery. 4th and last pain
management dr says there is nothing more they can do for 20 odd years
of 8 to 9 pain if I get off the bed and get physical – dressing,
making a meal. I am a young 85. They cannot believe my age. I agree
no more surgeries – have had 5. Some of us do not respond to meds or
end up in hospital w/ side effects. One just has to be strong and
make sure you socialize some or depression is bad. Meditate, by
clearing your mind to peacefulness.
I understand what u mean! Depression goes had in hand with pain!!!! I always say “I don’t want to live this way for the rest of my life!” It’s not that I want to die!! I just don’t want this pain!!!! It’s a hard thing to explain to others who are not in our shoe’s,they just don’t understand!! But we have to stay strong! Good luck to you!!! And God bless. Sharon
ladyjane replying – I am in your same round robin or 25 years –
3surgeries with fusion on lumbar and above, numerous epidurals which
do not woork, and cannot take over 40 pain meds. Had to have
neurostimulator removed bec no help, last hope was pain pump. But have
side effects to drugs so refusing that surgery. 4th and last pain
management dr says there is nothing more they can do for 20 odd years
of 8 to 9 pain if I get off the bed and get physical – dressing,
making a meal. I am a young 85. They cannot believe my age. I agree
no more surgeries – have had 5. Some of us do not respond to meds or
end up in hospital w/ side effects. One just has to be strong and
make sure you socialize some or depression is bad. Meditate, by
clearing your mind to peacefulness.
Thank you Sharon. I’m now facing a surgery consult on the 22nd. After my
last spinal c-3 to c-7 my disk below, c-7 thru t-1, 2, 3, is what their
after. It happens every time and if I don’t have to have the surgery I
won’t. I never get relief afterwords and more disk crumble above or below.
The other surgeries were have tos, I hope this one is not. This is like
having cancer, and I’ve taken care of alot of cancer patients, but the
doctor doesn’t tell you how long you’ve got. I would like to just be
comfortable, but my dr. doesn’t get it. Anyhow how can we set up a real
time discussion group on chronic pain? Have any ideas. Thank you briansr.
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Hi @19lin. Thank you for your activity on Connect and for responding to this discussion.
Please note that I removed your personal email address for your safety and to limit your getting unwanted spam. You can private message another Connect member by simply clicking on their name and then clicking email icon.
@briansr, I also want to add that if at any point you start to feel like you may consider hurting yourself, please call or text the 988 Suicide & Crisis Lifeline https://988lifeline.org for immediate help. Your safety is the most important thing to us and needing to talk to a professional doesn’t show weakness, it shows strength!
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1 ReactionHi Bruce (@user_ch715bb07),
Welcome to Connect.
Please post a message to this thread about multiple myeloma to reactivate the discussion. https://connect.mayoclinic.org/discussion/multiple-myeloma-299aae/
You can see other discussions in the Cancer group as well. https://connect.mayoclinic.org/group/cancer/#/!tab=discussions I’ll get you connected with others.
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1 ReactionI have read that there are certain elements in pot that help and you do not need to smoke it, but can take it in pill or some other form. I never smoked so I never used pot, but I have been exposed to second hand pot smoke and it always made me sick like I wanted to throw up, so I had to leave the area where anyone was smoking it. I do not know if it would work for me or not? I would be willing to try it in pill or some form if my doctor wanted me too. 19lin
Sent from Windows Mail
Good luck on that!!
I have EMGUS which can turn into multiple myeloma, could you tell me how
your multiple myeloma affects you please? briansr
The pain pump will help and the meds can’t get into your system. Had mine
for five years and it helps my lower back, but that’s all. briansr
I will never hurt myself but am not worried if a natural death comes my
way. I fight every day and will continue to fight. Thank you for the info
if I want to reach someone. How do we get a chronic pain group started?
briansr
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1 ReactionKeep trying to find some relief. Try everything! I hope so much you find relief somehow!
Have a beautiful Aloha Day!
I understand what u mean! Depression goes had in hand with pain!!!! I always say “I don’t want to live this way for the rest of my life!” It’s not that I want to die!! I just don’t want this pain!!!! It’s a hard thing to explain to others who are not in our shoe’s,they just don’t understand!! But we have to stay strong! Good luck to you!!! And God bless. Sharon
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Helpful -
Hug
4 ReactionsThank you Sharon. I’m now facing a surgery consult on the 22nd. After my
last spinal c-3 to c-7 my disk below, c-7 thru t-1, 2, 3, is what their
after. It happens every time and if I don’t have to have the surgery I
won’t. I never get relief afterwords and more disk crumble above or below.
The other surgeries were have tos, I hope this one is not. This is like
having cancer, and I’ve taken care of alot of cancer patients, but the
doctor doesn’t tell you how long you’ve got. I would like to just be
comfortable, but my dr. doesn’t get it. Anyhow how can we set up a real
time discussion group on chronic pain? Have any ideas. Thank you briansr.