Chronic pain - Let's talk

Posted by leh09 @leh09, Mar 23, 2016

Are there any discussions for chronic pain?

Liked by SpineAZ, bob815c

@alysebrunella

Hi @diamond22, and welcome to Connect. I’m glad you’ve reached out through Connect for suggestions on relieving your neck pain. I moved your post to the Chronic Pain – Let’s Talk discussion as there are many members who are discussing this topic and experiencing similar pain symptoms.

I’m also tagging @leh09 who has also received epidurals for pain, and @seanbeck and @sharonmay7.

@diamond22, how are you currently managing the pain?

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Are u talking about noted for migranes?? Sharonmay7

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Yes l am; chronic migraines.

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@briansr

This is briansr to Jvivian, this year brings me to my 33rd anniversary and
there’s no happy involved!. Spent all of the past 30+ hrs with no sleep,
120 mile round trip to Dr, then a 4 hour wait to not see my own Dr. He was
too busy hopping from surgery sweet to another so he could play. He’s an
anesthesiologist wanna be surgeon but he owns the hospital. Four hr wait,
2 minute visit with s different Dr, and my list of questions will have to
wait. Wasn’t like this 4 yrs ago so I will be looking for more personal and
pallatative care. NO MORE SURGERIES, NINE AND THERE AFTER ME AGAIN. I’M 60
YRS OLD AND WOULD LIKE TO ENJOY WHATS LEFT. And with all the problems plus
alot more, I just can’t take much more. This place is turning into a
factory, ESP. for Medicaid, which I don’t have. Today I got word of a pain
Dr I had 25 yrs ago and am going to look him up. Wish me luck!!! brian SR.

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Briansr, I don’t know where u live but I hope u can find a doctor closer to you. Sounds like you are not being taken seriously. I hope that’s not the case. I’ve even been to John Hopkins in Baltimore with my son over 50 times and never had to wait that long!!!!! And I was waiting on some very famous doctors!!!! Waiting on hard chairs after a very long drive I don’t think I would off made it very far!! That is hard to do when u r in pain and shouldn’t happen that way!! A good doctor wants to take his time so he doesn’t miss anything. We all deserve that much. we are paying money to c them. Sorry for complaining so much but I hate to here people waiting so long and then still didn’t get to ask what u need to know!!! I think mostly people do not under stand pain!! So we get pushed to the side. Well maybe u can find a better dr. Good luck and just look around ask friends and even your insurance company they we’ll send u a list of doctors in your area that uses you insurance cards. Sharonmay7

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@briansr

This is briansr to Jvivian, this year brings me to my 33rd anniversary and
there’s no happy involved!. Spent all of the past 30+ hrs with no sleep,
120 mile round trip to Dr, then a 4 hour wait to not see my own Dr. He was
too busy hopping from surgery sweet to another so he could play. He’s an
anesthesiologist wanna be surgeon but he owns the hospital. Four hr wait,
2 minute visit with s different Dr, and my list of questions will have to
wait. Wasn’t like this 4 yrs ago so I will be looking for more personal and
pallatative care. NO MORE SURGERIES, NINE AND THERE AFTER ME AGAIN. I’M 60
YRS OLD AND WOULD LIKE TO ENJOY WHATS LEFT. And with all the problems plus
alot more, I just can’t take much more. This place is turning into a
factory, ESP. for Medicaid, which I don’t have. Today I got word of a pain
Dr I had 25 yrs ago and am going to look him up. Wish me luck!!! brian SR.

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Brainsr&ladyjane&girls, hi I’m Sharon 62 with degenerative disc disease, violent migraine headaches. I guess u could say I’m falling apart!! Lol I think I’ve finely got control of the migraines. But now I’m worried that the brain damage might end up causing altimers So I’ve been reading up on that to c what I can do to slow that down I’ve been going to a good pain clinic in Pittsburg Pa. For over 20 years. And Hav tried almost everything. The stimulater didn’t help much I only did the 5 day test on it. I have heard so many people say they Hav problems with it. I havnt heard anyone say (wow I Hav this great thing they really helps my pain!!!). Hope everyone sleeps well tonight. Sharonmay

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What kind of book do u want to write??? My son in law wrote a book and had it published a few years ago. Sharon

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@briansr

This is briansr to Jvivian, this year brings me to my 33rd anniversary and
there’s no happy involved!. Spent all of the past 30+ hrs with no sleep,
120 mile round trip to Dr, then a 4 hour wait to not see my own Dr. He was
too busy hopping from surgery sweet to another so he could play. He’s an
anesthesiologist wanna be surgeon but he owns the hospital. Four hr wait,
2 minute visit with s different Dr, and my list of questions will have to
wait. Wasn’t like this 4 yrs ago so I will be looking for more personal and
pallatative care. NO MORE SURGERIES, NINE AND THERE AFTER ME AGAIN. I’M 60
YRS OLD AND WOULD LIKE TO ENJOY WHATS LEFT. And with all the problems plus
alot more, I just can’t take much more. This place is turning into a
factory, ESP. for Medicaid, which I don’t have. Today I got word of a pain
Dr I had 25 yrs ago and am going to look him up. Wish me luck!!! brian SR.

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When one has bad back pain, or many other types of pain, it is
discouraging and a torment to have to wait a long time past your
appointment to see one’s dr. At least 2 times after telling the
receptionist I could not sit in the chair any longer and getting a
cold answer, I have opened the doors to the inside and laid down on
the floor just inside. I get attention…….@ladyjane85

Liked by pamperthyself

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@ladyjane85, you go girl!!!!

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@briansr

You’ve hit the nail on the head. One thing that needs to change is the pain
rating scale. I am asked give me a number, well do you want my low back, my
neck, my left shoulder, my hips, my lower legs, my right arm? All I know is
my dr needs to step up and help. I’m not the normal patient. I fee as
though I have cancer but have not been told how long do I have. Pain is
pain it is immeasurable from someone looking in, only the person looking
out ever knows! briansr

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Selna a little late to reply to this but my computer was down plus the internet was not working all at the same time.

My problem with pain reporting is that right at the time they ask I may not have much to report while at other times it can be bad.

Sent from Windows Mail

Liked by salena54

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Selma sometime I I say my pain level is a nine even when it is a 6. If not they don’t seem to take me seriously I hate to exgarate my pain but like you said if they ask me at 2 in the afternoon it is a 10. But when they ask me at 9am it is only a 6. So what do we do???

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@ladyjane85 No herioism, more like wrong place at wrong time.
Thanks for reminding me stem cell injections are a new method and I have heard good things about the research. If you have the money you can go to Europe for treatment. 19lin

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@sharonmay7

Selma sometime I I say my pain level is a nine even when it is a 6. If not they don’t seem to take me seriously I hate to exgarate my pain but like you said if they ask me at 2 in the afternoon it is a 10. But when they ask me at 9am it is only a 6. So what do we do???

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From 30 + yrs of these questions, I only rate 10 when I just have s
surgery. After that guess what else can you do? I usually tell my doctor
that I just feel like hell and can’t take the pain. I don’t have a number.
And I always tell them the number system is no good. Like I’m ready to
drive off the nearest bridge, the how bad I hurt, now doc, give that a
number! briansr

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@suebreen54

I have been really sick so I’m starting over to try walking. We could do this together and encourage each other. I live in the Adirondacks in NY and its been col frozen and snowing but today sunny and40. Who wants to join ? We can kind of start around the same time. We should decide when we want to start. And give each other time to walk for however long for the first time before moving on. Small steps. Everyone will be going different distances i won’t be going far we could go a little bit everyday up to a week. But we can talk and encourage each [ther along the way. I know i need it whose in. I need this or i’m going to sit with my cat and dog and read

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This sounds good to me. I wish you lived here but online support is good. It’s so hard when everyone tells you to just walk and “JUST” walking in very painful. i can only go less than a block. But I need motivation to try to move more.I have fibromyalgia, CFS, osteoarthritis among other issues. I really struggle with the pain and fatigue but can push to function at a low level, but what gets me down is the flu like symptoms. No one seems to even care about this. How would they like to wake up everyday feeling like they are at the worst of the flu?
Anyway, did you start walking yet and has anyone else joined you?

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@suebreen54

I have been really sick so I’m starting over to try walking. We could do this together and encourage each other. I live in the Adirondacks in NY and its been col frozen and snowing but today sunny and40. Who wants to join ? We can kind of start around the same time. We should decide when we want to start. And give each other time to walk for however long for the first time before moving on. Small steps. Everyone will be going different distances i won’t be going far we could go a little bit everyday up to a week. But we can talk and encourage each [ther along the way. I know i need it whose in. I need this or i’m going to sit with my cat and dog and read

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@ly, I,too, have fibromyalgia, but my back pain is so bad that it is
my main distraction. Cannot walk far so spend most of my life on the
bed. Someone said to try the brownie recipe, but living in an
independent living facility I would not know where to get the main
ingredient. Life is terrible t 86, although to people I look very
much younger and the do not know how much pain I suffer. Tmrw I am
seeing a dr and asking about radio frequency ablation which none of my
pain mngmnt drs have ever mentioned. Hope all who read these
exchanges feel “betta” @ladyjane85

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Hi Lady Jane I’m sorry to hear how much pain your in.I have learned that
nobody understands or can feel how bad are pain is. I used to think if only
my Dr could feel my pain then he would know. So after being in severe
chronic pain for years I learned you have to express how much pain your in.
If you are like me that’s hard to do. You have to do it. You have to
communicate the real level of your worst pain. I know that edrenalin and
being out with people can distract us from our pain. That makes it hard to
feel and say what pain level you are at. They always say what is your pain
right now, but you have to think about when you get home and when your in
pain. That is the number I would tell otherwise your not going to get
enough good appropriate pain relief. I know your not getting 0ain relief
because your in pain all the time. You can’t act nice. You have to be
strong and tell the truth about your real pain so you don’t have to be in
pain all the time. You have the right to get appropriate good pain relief.
You shouldn’t be in pain all the time. Tell your Dr tell everyone involved
in your care. God bless

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And the ingredient in brownies is pot which is illegal but I don’t know
what state your in. Your pain Dr is in charge of that.

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