Chronic pain - Let's talk

I am sorry to hear about your condition. If nothing has worked you or your doctor might look for help in Europe or other countries. I remember seeing the story of a boy about 13 or 14 years old who had a neurological condition which could not be treated here. Any movement or even a slight breeze blowing on him would cause extreme pain for him and the pain shots were not helping that much. His family took him to France where they tried some experimental treatment that is not used here and he finally got relief. <br />
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What I am trying to say is don’t give up until you have tried every possible method and even some impossible ones. You never know when you might find relief. Did you see the earlier post about someone who got their doctor to try stem cells injected into their back and with time this caused the back to rebuild or regenerate her nerves. Of course this was expensive and took time, but it helped her. I will pray for you to find relief soon.<br />
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Hi @mimsy313,
Given the interest in talking about pain management and the amount of activity on this thread, we will be making a group dedicated to pain management soon after we have completed the next phase of updates. I'll keep everyone here informed as these changes are made.

Colleen
Connect Community Director

I have been in chronic pain for 33 years. I have had 8 spinal surgeries, c-2 to c-7, l-1 to s-1. Now they want to go after t-1to t-3 acd hook on to bottom or c-7, I don't think I can take any more pain. All the surgeries did was to stablize my back but it keeps collapsing? Brian

Thank you, but I don't see a way out except death. The only thing is my<br />
Grandfather lived until 98. I don't want this kind of pain that long.!!<br />

Colleen - how do I access any threads regarding Multiple Myeloma?<br />
<br />
Thanks,<br />
<br />
Bruce Mandel<br />

Thank you crazycroatian60<br />

I take two rx's from my doctor plus a pain pump and still can't control my<br />
pain. I'm 60. and have been dealing with this for 33 yrs. And I'm seeing a<br />
surgeon on the 22nd. C7 t1 to t3 will only have t4 to t11 left if I have<br />
surgery, which I may refuse. Surgery makes me worse and I can't take much<br />
more.<br />

Thank you<br />

ladyjane replying - I am in your same round robin or 25 years -<br />
3surgeries with fusion on lumbar and above, numerous epidurals which<br />
do not woork, and cannot take over 40 pain meds. Had to have<br />
neurostimulator removed bec no help, last hope was pain pump. But have<br />
side effects to drugs so refusing that surgery. 4th and last pain<br />
management dr says there is nothing more they can do for 20 odd years<br />
of 8 to 9 pain if I get off the bed and get physical - dressing,<br />
making a meal. I am a young 85. They cannot believe my age. I agree<br />
no more surgeries - have had 5. Some of us do not respond to meds or<br />
end up in hospital w/ side effects. One just has to be strong and<br />
make sure you socialize some or depression is bad. Meditate, by<br />
clearing your mind to peacefulness.<br />

I understand your feelings, but I can only advise here that you do not give up without a fight. If you would like to discuss it feel free to send me a private message.

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