Chronic pain - Let's talk

Posted by leh09 @leh09, Mar 23, 2016

Are there any discussions for chronic pain?

Interested in more discussions like this? Go to the Chronic Pain group.

Briansr, I’m not sure how to set up a group and I’m surprised not to see one. But I just got on this site this month. Maybe we can ask. I will check it out and see what I can find. Hope your day goes as sell as it can! I have a doctor appoint today at my pain clinic. Wish me ?luck! Sharon

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Hi @briansr and @sharonmay7. Thanks for inquiring about starting a pain group. This is definitely something that is on our radar given the recent increase in discussion on this topic, so a pain group should be coming soon and we will let everyone know when it is ready for discussion!

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@kelseydm

Hi @briansr and @sharonmay7. Thanks for inquiring about starting a pain group. This is definitely something that is on our radar given the recent increase in discussion on this topic, so a pain group should be coming soon and we will let everyone know when it is ready for discussion!

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@leh09, you are right feeling that no one understands the pain you go
through. And there are others who feel the same way. My pain pain can put
me down for days. But I still have to take medication on my good days to
get things done. I was always an active person even with the health
problems I had to live with. There were Dr.s that wouldn’t take me
seriously, till my neurologist was doing a spinal tap and asked if I felt
any pain which I did. Back then I had a high tolerance to pain,(which I do
not have no more), which I had learned to live with. He told me because I
was trying to be tough is why the other Dr.s wouldn’t take me serious. I
love the Dr. I have now, he knows what I go through and has compassion for
me and his other patients. I hope and pray that you can find a Dr. that
will work with you and your pain. There are some on this post that truly
have severe pain and I don’t feel their pain but I understand their pain,
and what they are going through. Stay in touch, I would love to hear from
you and what you go through. Have a blessed day. Salena

salena

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@kelseydm

Hi @briansr and @sharonmay7. Thanks for inquiring about starting a pain group. This is definitely something that is on our radar given the recent increase in discussion on this topic, so a pain group should be coming soon and we will let everyone know when it is ready for discussion!

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Sale a, thanks a lot I think it will help

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@suebreen54

I’m not sure about pot taking pain away. If it did and was legal I would
want my Dr to OK it and my pain Dr and I don’t want to be high . I have my
son and daughter in law and grandchildren and I don’t want to be high
around them. T could maybe see if you are having a severe pain crises even
though you are on the most medications you can be. Pot might relax you
and help you sleep and stop the pain crises fast. But I’m sceptical. It
has to be excepted by the medical community for me .

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@19lin. About the lack of smoking history, I am the same. But the
medical forms of marijuana are VERY expensive and not available in my
state. It is hard for me with 8 – 9 pain level and unable to take any
meds. So hard, bec you need your back to stand, walk and sit.

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@kelseydm

Hi @briansr and @sharonmay7. Thanks for inquiring about starting a pain group. This is definitely something that is on our radar given the recent increase in discussion on this topic, so a pain group should be coming soon and we will let everyone know when it is ready for discussion!

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Thanks a lot! It is nice to talk to other people who understand what we are doing up at 3 am. Unable to sleep because of the pain.I will be looking forward to meat some more people! Which in my mind means more ideas for new treatment! Thanks, Sharon.

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Brainsr, you sound like me! I would try anything once just to have some relief ! Now that my migraines are not as often,(I Have only had 2 this past month one lasted 2 days and the other I’m having right now so for 4 days.so far ) much better then the past 15 months I was in bed 20 days out of30! Sharon

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@kelseydm

Hi @briansr and @sharonmay7. Thanks for inquiring about starting a pain group. This is definitely something that is on our radar given the recent increase in discussion on this topic, so a pain group should be coming soon and we will let everyone know when it is ready for discussion!

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I guess We just need to be thankful we can stand up and take one day at a time!!!!

(Sometimes that is hard to do!) I have been in chronic pain for around 25 years.( I guess it’s been more like 40 years!) I am now 62 yrs. old I have had migraine’s since I was 16!

But If we get my migraines under control I. Won’t be in to bad of shape I will always Hav pain. I’ve been using a fentenol patch 75 mg. and oxyconde. But that is not for my migranes. That is for low back pain. I had a double laminectomy done around age 42. My spine had fallen down and was crunching my spinal cord. The surgeon said I was about 2 months Away from a wheel chair!!!

One thing about pain you know your alive as soon as u open your eyes!! Lol
Hav a good restful sleep. Sharon

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I understand the forms(or skripts) to get pot will b $50. There will b 150 dispensing areas in the state of PA. The governor( tom wolf) will b singing it next week. It already passed through Cent. floor yesterday. Also i think u r right it will b given in candy, pills ect….. And they will Hav it for different reasons. Unlike street drugs, u don’t know what your getting!! I guess we will Hav to wait and c!!! Sharon

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@kelseydm

Hi @briansr and @sharonmay7. Thanks for inquiring about starting a pain group. This is definitely something that is on our radar given the recent increase in discussion on this topic, so a pain group should be coming soon and we will let everyone know when it is ready for discussion!

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FANTASTIC!!!!!! briansr

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Hello everyone! I have dealt with Chronic Pain since I was about 19. I went to the PRC Program at Mayo Clinic in Jacksonville ran by Dr. Christopher Sletten. This program helped me so much in learning to deal with it and every aspect of my life. I would recommend this program to anyone who deals with Chronic Pain. I do believe all 3 Mayo campuses offer it now.

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Agreed the cost and laws are a problem. Our legislature approved use for medical treatment but the health insurance companies didn’t, probably since it is still a federal offense. I like to try all alternatives and acupuncture and hypnosis have proven effective for some. Acupuncture helped my energy, but not really the pain and the needles still hurt depending where they put them. You need a certified acupuncturists to be sure they know what they are doing. Hypnosis does not work on everyone, but I have seen shows where people undergo surgery with only hypnosis as anesthesia. Still if you have not tried them you should if possible. At Mayo’s I tried an experimental use of ECT which helped, but the side effects stopped me from continuing with it. I do believe in trying all methods that seem to have some proven success. 19lin

Sent from Windows Mail

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