Has anyone been treated for Myocardial Bridging at Mayo?

Posted by raweber @raweber, Apr 5, 2018

Has anyone been treated for myocardial bridging at Mayo in Rochester?

Interested in more discussions like this? Go to the Heart & Blood Health Support Group.

please I need help 5 years ago I was diagnose with MB. I am to the point where I cannot walk a block with out chest pain lack of breath ect. 2 weeks ago after a ekg my heart doctor sent me to have a emergency cath done. He said by the ekg he felt I have several blockages. After the ekg he could not find anything except the bridge. He could not explain the results because they did not line up with the ekg. I again asked him about the MB he again denies that it could be a problem although he has had me on blockers for the past 5 years to help the problem. He firmly thinks mb are harmless and nothing to worry about. Can anyone help me find a doctor in my area Baltimore that has delt with this. I have failed every stress test and cath I have had in the past 5 years. I looked at all my records from each cath for the past 5 years and the all have the same dianiose on them MB.

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@hooked073

please I need help 5 years ago I was diagnose with MB. I am to the point where I cannot walk a block with out chest pain lack of breath ect. 2 weeks ago after a ekg my heart doctor sent me to have a emergency cath done. He said by the ekg he felt I have several blockages. After the ekg he could not find anything except the bridge. He could not explain the results because they did not line up with the ekg. I again asked him about the MB he again denies that it could be a problem although he has had me on blockers for the past 5 years to help the problem. He firmly thinks mb are harmless and nothing to worry about. Can anyone help me find a doctor in my area Baltimore that has delt with this. I have failed every stress test and cath I have had in the past 5 years. I looked at all my records from each cath for the past 5 years and the all have the same dianiose on them MB.

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Hello @hooked073, Welcome to Connect. There is the Heart and Vascular Care at Bayview Medical Center - Baltimore which I think is part of John Hopkins -- https://www.hopkinsmedicine.org/heart_vascular_institute/about-us/locations/bayview-baltimore.html

I know it must be frustrating to have terrible symptoms and after seeing multiple doctors not having an answer or treatment that helps. Have you considered seeking help at a large medical facility like John Hopkins or other teaching hospital?

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My husband had a “heart attack” Sunday night. During the heart catheter they discovered he has a myocardial bridge and that’s what caused the issues Sunday night. We are looking for direction on who to speak to and see for treatment and care. Any help would be most greatly appreciated. None of the doctors in the ER had ever heard of a myocardial bridge. So we definitely want to connect with a group that is familiar with this condition

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@deb2018

My husband had a “heart attack” Sunday night. During the heart catheter they discovered he has a myocardial bridge and that’s what caused the issues Sunday night. We are looking for direction on who to speak to and see for treatment and care. Any help would be most greatly appreciated. None of the doctors in the ER had ever heard of a myocardial bridge. So we definitely want to connect with a group that is familiar with this condition

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Hi @deb2018 and welcome to Mayo Clinic Connect. I am so sorry to hear about your husband's heart attack. That can be very scary to go through. I moved your post here: https://connect.mayoclinic.org/discussion/myocardial-bridging/?pg=2#comment-719962 so that you can engage with members that have been through similar situations.

Have you looked into Mayo Clinic? Where are you located?

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@amandaa

Hi @deb2018 and welcome to Mayo Clinic Connect. I am so sorry to hear about your husband's heart attack. That can be very scary to go through. I moved your post here: https://connect.mayoclinic.org/discussion/myocardial-bridging/?pg=2#comment-719962 so that you can engage with members that have been through similar situations.

Have you looked into Mayo Clinic? Where are you located?

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Thank you so much. I’m working on a lack of sleep so I appreciate the help getting me to the right place.

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@amandaa

Hi @deb2018 and welcome to Mayo Clinic Connect. I am so sorry to hear about your husband's heart attack. That can be very scary to go through. I moved your post here: https://connect.mayoclinic.org/discussion/myocardial-bridging/?pg=2#comment-719962 so that you can engage with members that have been through similar situations.

Have you looked into Mayo Clinic? Where are you located?

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Hi Amanda.

We actually requested a consult with the Mayo Clinic in Jacksonville today. We hope to hear back from them soon.

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@giatrus

I was recently diagnostic with Myocardial brigde, My symptoms were Fatigue, Chest discomfort and Tachycardia associated with exercises, but lately at rest. ECG was positive for ischemic changes. Strest test rarely improved my ECG changes. CT Angiogram showed MB and small SOVA(Sinus of Valsalva Aneurysm) I have a couple of questions. 1-Why stress test improved my ECG changes? 2-Is there any association between MB and SOVA? It would be greatly appreciated if you could answer my questions. Thank you. Sorry for my english.

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I have the same thing, any kind of resting stress where my diastolic BP is high is bad, causes all kinds of anginal symptoms. But if I started with a low BP, then slowly warmed up, I could run to my maximum heart rate, asymptomatic and with no change in the tracing.

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@deb2018

My husband had a “heart attack” Sunday night. During the heart catheter they discovered he has a myocardial bridge and that’s what caused the issues Sunday night. We are looking for direction on who to speak to and see for treatment and care. Any help would be most greatly appreciated. None of the doctors in the ER had ever heard of a myocardial bridge. So we definitely want to connect with a group that is familiar with this condition

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Just joined the group. I hope everything went well with your husband. Myocardial bridging, from what I was told, is not very common. My local hospitals and Drs felt my symptoms were anxiety until I went unresponsive. In April 2018 I was fortunate enough to see a Dr at Mayos that quickly diagnosed severe left side myocardial bridging. I had open heart surgery at 48 yrs old within the week.

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@71jismo

Just joined the group. I hope everything went well with your husband. Myocardial bridging, from what I was told, is not very common. My local hospitals and Drs felt my symptoms were anxiety until I went unresponsive. In April 2018 I was fortunate enough to see a Dr at Mayos that quickly diagnosed severe left side myocardial bridging. I had open heart surgery at 48 yrs old within the week.

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It’s been a long haul finding doctors who are knowledgeable. Mayo ignored us so we went with a Dr in Miami. They are doing a cardiac MRI next week which we hope will give us more answers. From there they said another heart cath but done differently to show what they need it to. I’m glad they found yours and you e had it taken care of. I am absolutely amazed at the lack of informed cardiologist. It’s completely unacceptable and dangerous. So many patients are ignored.

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@71jismo

Just joined the group. I hope everything went well with your husband. Myocardial bridging, from what I was told, is not very common. My local hospitals and Drs felt my symptoms were anxiety until I went unresponsive. In April 2018 I was fortunate enough to see a Dr at Mayos that quickly diagnosed severe left side myocardial bridging. I had open heart surgery at 48 yrs old within the week.

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I have a myocardial bridge in the LAD. I only found out 4 years ago that I have one. I am now 71. I have had issues my entire life with mine. Whenever I was around age 1, my parents had to rush me to a hospital and the doctors thought I was having a seizure. Until my general practitioner in Mobile, AL noticed a problem with my EKG and ordered a heart cath and found mine. I made so many trips to the ER, because I thought I was having a heart attack. They could never find anything. I am very interested in communicating with anyone that has a myocardial bridge. I would like your advice on where to go to see a doctor that knows about it. I can't find a doctor in Mobile that has any other patients with Myocardial Bridge.

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