Has anyone been treated for Myocardial Bridging at Mayo?

Posted by raweber @raweber, Apr 5, 2018

Has anyone been treated for myocardial bridging at Mayo in Rochester?

@boniface48

The Cardiologist who performed my heart catheterization has directed me to take 2- 20 mg Isosorbide dinitrate daily as well as my usual dosages of blood pressure medications. It seems to be controlling the angina pectoris fairly well, but it's still disconcerting to deal with since I'm a widow and live alone. I am scheduled to see his PA tomorrow morning. It would seem that a myocardial bridge is not considered life threatening, is this accurate? Thank you.

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Hi:Boniface48 I would love to talk with you about your myocardial bridge!

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@boniface48

The Cardiologist who performed my heart catheterization has directed me to take 2- 20 mg Isosorbide dinitrate daily as well as my usual dosages of blood pressure medications. It seems to be controlling the angina pectoris fairly well, but it's still disconcerting to deal with since I'm a widow and live alone. I am scheduled to see his PA tomorrow morning. It would seem that a myocardial bridge is not considered life threatening, is this accurate? Thank you.

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Hello @boniface48

As it has been a while since you last posted, I was wondering how you are feeling.

Are the 2- 20 mg of Isosorbide dinitrate working well for you?

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@kylewatson

I was, I had a 5 cm myocardial bridge which was unroofed on 12/4/14. My story is too long to post here but MB is a very serious condition and the care I received at the Mayo Clinic by Dr. Lerman was excellent. I am currently working with the team at Stanford as I live in the San Francisco area. If you have any questions I would be happy to talk to you or anyone else. I had a very significant bridge and while the surgery has not completely corrected the endothelial dysfunction the bridge caused it has made a huge improvement in my life. I am back to competitive Ironman competition.

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Hey Kyle , my name is Dylan gang , I have been suffering from MB for 10 years , i went to Stanford med and they told me about you , with out giving me your name .. any chance you could reach me ? Would mean the world ..

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I am interested in learning if their is a cardiologist at Mayo that specializes in Myocardial Bridges. Is their a doctor that would look at my Heart Catheterization CD for a second opinion? I look forward to hearing everyone’s advice.

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I was under the impression that's not anything out there for MB mine grew 3+ inches back into the heart been cardioverter 11 times already Map and ablation meds wiped me out now when i go into Afib i now getting migraines bad. I just try to sleep through it all till i go back into sinus rythm i gave up on the doctor's the last time i barely made it out of the hospital i took myself out. If there is something new out i would love to hear. Still have 3 young teenagers would love to see grow up. In the past three months its been getting more frequent and painful between 1-3 am and 4-6 pm I'm about to give up on any doctors I'vebeen in Afib now 33 hrs. Hope the rest of the MB folks fine relief some how.

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I was recently diagnostic with Myocardial brigde, My symptoms were Fatigue, Chest discomfort and Tachycardia associated with exercises, but lately at rest. ECG was positive for ischemic changes. Strest test rarely improved my ECG changes. CT Angiogram showed MB and small SOVA(Sinus of Valsalva Aneurysm) I have a couple of questions. 1-Why stress test improved my ECG changes? 2-Is there any association between MB and SOVA? It would be greatly appreciated if you could answer my questions. Thank you. Sorry for my english.

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Hello @giatrus and welcome to Mayo Clinic Connect. As you know, Connect is a place where patients, like yourself, get and give encouragement and share their own experiences. I trust that some others will soon reply to your question about MB and SOVA.

While we wait for others to respond, could you share a bit more about your history with these disorders? For example, how long have you had these symptoms? Has your cardiologist tried meds to treat this? Is there a family history of this type of problem? Please share only as you are comfortable doing so.

Here is some information from the National Institute of Health's website, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2733018/

What type of treatment, if any, has been suggested by your doctors?

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@kanaazpereira

Hello @raweber, and welcome to Connect,

My search for myocardial bridging brought up this past discussion, https://connect.mayoclinic.org/discussion/unknown-undiagnosed-medical-condition/ in which @melissacrn wrote about her brother in law. I sincerely hope she will return to join us here.

@raweber, may I ask if you would share a bit more? Have you been diagnosed with myocardial bridging? What are the symptoms associated within condition?

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I was diagnosed with MB in 2016. I have been thru lots of tests that turned out normal except for an abnormal Echo. I am on fuorosimide ant metropolol meds. I have terrible shortness of breath especially when I lay on my right side at night. My cardiologist is not real concerned. They found it on a catherization. Will this SOB ever go away?

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please I need help 5 years ago I was diagnose with MB. I am to the point where I cannot walk a block with out chest pain lack of breath ect. 2 weeks ago after a ekg my heart doctor sent me to have a emergency cath done. He said by the ekg he felt I have several blockages. After the ekg he could not find anything except the bridge. He could not explain the results because they did not line up with the ekg. I again asked him about the MB he again denies that it could be a problem although he has had me on blockers for the past 5 years to help the problem. He firmly thinks mb are harmless and nothing to worry about. Can anyone help me find a doctor in my area Baltimore that has delt with this. I have failed every stress test and cath I have had in the past 5 years. I looked at all my records from each cath for the past 5 years and the all have the same dianiose on them MB.

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@hooked073

please I need help 5 years ago I was diagnose with MB. I am to the point where I cannot walk a block with out chest pain lack of breath ect. 2 weeks ago after a ekg my heart doctor sent me to have a emergency cath done. He said by the ekg he felt I have several blockages. After the ekg he could not find anything except the bridge. He could not explain the results because they did not line up with the ekg. I again asked him about the MB he again denies that it could be a problem although he has had me on blockers for the past 5 years to help the problem. He firmly thinks mb are harmless and nothing to worry about. Can anyone help me find a doctor in my area Baltimore that has delt with this. I have failed every stress test and cath I have had in the past 5 years. I looked at all my records from each cath for the past 5 years and the all have the same dianiose on them MB.

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Hello @hooked073, Welcome to Connect. There is the Heart and Vascular Care at Bayview Medical Center – Baltimore which I think is part of John Hopkins — https://www.hopkinsmedicine.org/heart_vascular_institute/about-us/locations/bayview-baltimore.html

I know it must be frustrating to have terrible symptoms and after seeing multiple doctors not having an answer or treatment that helps. Have you considered seeking help at a large medical facility like John Hopkins or other teaching hospital?

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