Doesn’t anyone else feel …… ?

Posted by sunnygardens @sunnygardens, Jun 25 6:27pm

Everyone seems so calm and reasonable on here. Am I the only one who gets fed up and irritable?
This evening two things are driving me nuts: one is the constant contrariness, increased from his normal contrariness. (My daughter once said he’s the most contrary person she’s ever met. That was three years ago. Before these unexplained symptoms began.) The other irritation (aaarrrghh!!!) is the nearly always saying “Oh, I know.” When clearly, until it was explained, he did NOT know. (This too is an increase from his normal level of knowing everything.)
It truly seems that all the incompatible characteristics are greatly exaggerated now.
As is my level of irritation, which certainly does not help.

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

Oh I can relate.....my irritation level is off the charts. I would prefer just honest conversation rather than the constant denial/coverup.

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Profile picture for diane07710 @diane07710

Oh I can relate.....my irritation level is off the charts. I would prefer just honest conversation rather than the constant denial/coverup.

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@diane07710 for sure!

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Today I just wish I knew a timeline. I feel I’m under voluntary house arrest with no release date in sight. My life is a trap.

Dementia…it’s just such a difficult experience and I wouldn’t wish the caregiving burden on anyone.

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Profile picture for Gratia @gratia

Today I just wish I knew a timeline. I feel I’m under voluntary house arrest with no release date in sight. My life is a trap.

Dementia…it’s just such a difficult experience and I wouldn’t wish the caregiving burden on anyone.

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@gratia I think that everyday. It is so depressing. I don’t know how to change my mindset.

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The only thing that helps me is to do small - very small projects. Cleaning, organizing, or rearranging. I’m pecking away at a story I’ve been working on but caregiving gives me little energy for that.
Just try to carve out niches of joy even if tiny ones.
We will get through it. You are not alone. ❤️🤗

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Profile picture for diane07710 @diane07710

Oh I can relate.....my irritation level is off the charts. I would prefer just honest conversation rather than the constant denial/coverup.

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@diane07710 Oh my gosh, you hit the nail on the head. I don’t think anyone who is not living this personally and up close has an inkling of the denial/coverup! It is such a hard road! The constant pretending, lying, faking, etc.,etc., I was never around someone with cognitive issues until it was my own husband! No words!

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No! You are definitely not alone. I am also fed up with all of the irritable and constant repetitive behaviors and lack of awareness of certain things. We fight a lot as a result of this. I try to pull back, I try to let go, I've tried to smooth things over but nothing works. It's just very difficult and I totally empathize with what you're going through. So yes we do feel the same things you do!

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Profile picture for lasc16 @lasc16

@gratia I think that everyday. It is so depressing. I don’t know how to change my mindset.

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@lasc16
My new therapist suggested guided meditation. I haven't tried it yet, but will do so when I'm having a rough time.
I will look on YouTube for a short one to begin.
All the best. 🪻

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No, you are not alone. I’m tired of the duplicitous behavior and talk and it is always about the siblings not in the room. Such is the dynamics of my dysfunctional family my whole life , only now, this disease has amplified my mother’s foibles, mainly her critical hurtful comments, and looking down on other human beings. I’m considering memory care facilities because I’m wasting away as her sole caregiver.

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