Grover's Disease: What works to help find relief?

Posted by 43219876x @43219876x, Sep 23, 2016

I have been diagnosed with Grover's disease under my breasts. I had a biopsy for diagnosis. Tried topical ointment with no really good results. Any ideas?

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@frogger

FYI—been off cilantro smoothies for 11 days. After 7 months I decided to see where I stood with Grover’s. So far, so good. Working out, running and back to my normal routine. Don’t want Grover’s to control my life. Will keep y’all in the loop.

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@frogger I am skipping my smoothies occasionally and yet, I have become addicted to the cilantro helping my digestive system. I also use less cilantro in each smoothie.

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Yes I liked my morning routine and cilantro was great for digestion. But will try to move on. Cilantro was a godsend.

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I wonder how many have used tanning beds in the past?

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@jbd3

I wonder how many have used tanning beds in the past?

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@jbd3 Never for me. However, I did have a pool and got tan. I don't think there is a correlation.

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@jbd3

I wonder how many have used tanning beds in the past?

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There's a reported correlation between sun damage and GD. Never used a tanning bed, but lived at the ocean and always in the sun. I'm 70 and the only sunscreen we had growing up was zinc oxide we put on our noses and a shirt when we realized we were fried. Typical cycle beginning in late spring- deep sunburn, peel, another sunburn, peel, sunburn and peel and after that the skin just managed it without significant burning and no more peeling until fall when beach weather cooled down we went back to school.

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@gardeningjunkie

There's a reported correlation between sun damage and GD. Never used a tanning bed, but lived at the ocean and always in the sun. I'm 70 and the only sunscreen we had growing up was zinc oxide we put on our noses and a shirt when we realized we were fried. Typical cycle beginning in late spring- deep sunburn, peel, another sunburn, peel, sunburn and peel and after that the skin just managed it without significant burning and no more peeling until fall when beach weather cooled down we went back to school.

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@gardeningjiunkie I am surprised you did not have skin cancer with that cycle of burns, peels and repeats. Wow! I guess you are fortunate in that regard.

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I have used them but don't think there is a correlation. I have never really burned, and was not a sun worshiper.

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re: the sun.... i have found the time I spend at the beach (2 week family vacation) leads to much less itching as well as less rash. I don't lay out under the sun too much but just being outside getting more UV rays seems to help. Derm said its not much different than going thru the light treatments that seem to work with Grovers a bit.

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@mariannj

@gardeningjiunkie I am surprised you did not have skin cancer with that cycle of burns, peels and repeats. Wow! I guess you are fortunate in that regard.

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Yes very lucky, got my father's side with skin not prone to cancer but no one in my family ever had eczema that I know of. My father was as maniacal about gardening as me and the rest of my family and worked outside, shirtless, no hat, no sunglasses until other health issues slowed him down in his early 80's. I remember him being concerned about his first basal cancer on his nose at age 79. My husband growing up at the beach and having a pool has had melanoma twice, first time at age 26, several hundred areas treated for various types of skin cancers, but had red hair/freckles when younger with thin skin. He goes to the dermatologist twice a year and gets burned, frozen, Mohs surgery, he's had Blue Light (worthless and very painful), not counting his melanoma surgeries. Yet he has never had eczema and is outdoor 5 days a week with his hobbies. He does wear sunscreen now, but it can only protect so much.

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@seth971

re: the sun.... i have found the time I spend at the beach (2 week family vacation) leads to much less itching as well as less rash. I don't lay out under the sun too much but just being outside getting more UV rays seems to help. Derm said its not much different than going thru the light treatments that seem to work with Grovers a bit.

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When I first got GD I tried laying in private area on my deck where I could get sun all over. It hurt, probably because of my torso rash being active and my first breakout of 1 year was the worst. Actually everything hurt, even cool water pressure but any form of heat really hurt. Still I tried for about 15 minutes a day and saw no improvement. Gave up. It may help others and I have heard it often helps with other forms of eczema, maybe it kills bacteria. Since on the cilantro routine I now enjoy a warm shower and getting hot and sweaty doesn't hurt. I'm taking advantage of my new freedom.

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