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363 total results

Comments (334)

I lost range and lost enough laryngeal strength to make it hard to get through a...

https://connect.mayoclinic.org/comment/1080376/

premier center for spasmodic laryngeal dystonia

Discussion: Has anyone lost vocal singing range and did it come back?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jun 3, 2024

I have taken Clonazapam for many years. It affects memory and mood. This med was prescribed...

https://connect.mayoclinic.org/comment/210589/

This med was prescribed for cervical dystonia

Discussion: Has anyone taken Klonopin?

Support Group: Depression & Anxiety

Posted: Nov 4, 2019

Had constant migraines for over 6 months before was diagnosed with cervical dystonia, and started treatment...

https://connect.mayoclinic.org/comment/1365059/

before was diagnosed with cervical dystonia

Discussion: Daily Migraines - How do we function?

Support Group: Headache & Migraine

Posted: Aug 6 1:13pm

Hi Gabe and everyone else So I just got diagnosed with Tourette's syndrome. For the longest...

https://connect.mayoclinic.org/comment/681276/

the longest time, I thought I had Dystonia

Discussion: Mysterious shortness of breath: What has helped you?

Support Group: Lung Health

Posted: Feb 15, 2022

I have been noticing head tremors(very slight) for a year. I then got covid in august(...

https://connect.mayoclinic.org/comment/659196/

neurologist diagnosed focal cervical dystonia

Discussion: Cervical dystonia (Spasmodic Torticollis): Looking for support

Support Group: Spine Health

Posted: Dec 2, 2021

Yes, Cervical Dystonia. No, not related to spine injury. Mine is Genetic. I have not experienced...

https://connect.mayoclinic.org/comment/163066/

Yes, Cervical Dystonia.

Discussion: Anyone dealing with Dystonia?

Support Group: Brain & Nervous System

Posted: Sep 9, 2018

My husband is very hard of hearing, has hearing aids but still has much difficulty and...

https://connect.mayoclinic.org/comment/808637/

on both sides would help with the dystonia

Discussion: Caring for your caregiver when you have Neuropathy

Support Group: Neuropathy

Posted: Feb 9, 2023

This may be good news for Dystonia. I've had Spasmodic Torticollis since 1993, when I was...

https://connect.mayoclinic.org/comment/163062/

This may be good news for Dystonia. ... 10 aunts and uncles showed signs of dystonia

Discussion: Anyone dealing with Dystonia?

Support Group: Brain & Nervous System

Posted: Aug 5, 2018

Dear Sadnancy, I am taking Clonazapam for abdominal jerking and Carbidopa-Levodopa for the generalized dystonia. Without...

https://connect.mayoclinic.org/comment/811268/

Carbidopa-Levodopa for the generalized dystonia ... and the neck twisting and lots of dystonia

Discussion: Anyone dealing with Dystonia?

Support Group: Brain & Nervous System

Posted: Feb 14, 2023

@mikaylar, and all... My son has severe cervical dystonia and has migraine type headaches daily even...

https://connect.mayoclinic.org/comment/1224703/

My son has severe cervical dystonia

Discussion: Has anyone tried Botox for headaches?

Support Group: Headache & Migraine

Posted: Jan 29 12:06pm

This is great to hear. I myself suffer from cervical dystonia. I’m in with a movement...

https://connect.mayoclinic.org/comment/670429/

I myself suffer from cervical dystonia

Discussion: Cervical dystonia (Spasmodic Torticollis): Looking for support

Support Group: Spine Health

Posted: Jan 13, 2022

Thankyou so much for taking the time to reply,you have given me hope!. I'm going to...

https://connect.mayoclinic.org/comment/989950/

12 years has caused me to develop Dystonia

Discussion: Tips on minimizing withdrawal symptoms from Effexor (aka Venlafaxine)

Support Group: Depression & Anxiety

Posted: Jan 1, 2024

Thank you. A slight hand tremor remains for me too, especially while performing fine motor tasks....

https://connect.mayoclinic.org/comment/787834/

Speaking of hands, I also have Focal Dystonia

Discussion: Memory issues while taking Tacrolimus

Support Group: Transplants

Posted: Dec 22, 2022

Thank you so much everyone for the replies. I've been suffering with this nerve pain and...

https://connect.mayoclinic.org/comment/716941/

suffering with this nerve pain and dystonia

Discussion: COPD and Gabapentin use.

Support Group: COPD: Chronic obstructive pulmonary disease

Posted: Jun 12, 2022

I regularly get back and neck nerve ablations - every couple of years. I can now...

https://connect.mayoclinic.org/comment/1090971/

couldn’t turn my head due to Cervical Dystonia

Discussion: Any get an ablation/rhizotomy for back pain? Results? Do it again?

Support Group: Spine Health

Posted: Jun 21, 2024

Hello @rossellini and welcome to Mayo Clinic Connet. I so appreciate you adding to our discussion...

https://connect.mayoclinic.org/comment/667273/

little more about your journey with dystonia

Discussion: Is anyone using Rytary?

Support Group: Parkinson's Disease

Posted: Jan 2, 2022

The below comes from Mayo Clinic Proceedings. Best to Google Camptocormia and get full background. May...

https://connect.mayoclinic.org/comment/273913/

unclear, but it may represent a type of dystonia ... Dystonia is well described in PD, particularly ... understood and usually attributed to dystonia ... clinicians should not assume that dystonia ... may be needed to reduce rigidity and dystonia

Discussion: Shoulder support/brace recommendations?

Support Group: Spine Health

Posted: Aug 29, 2019

I ended up being diagnosed with fibromyalgia in 2002 secondary to the bacterial spinal meningitis. The...

https://connect.mayoclinic.org/comment/1096585/

fiber neuropathy, elner danlos 3, dystonia

Discussion: Chronic painful muscle knots, widespread

Support Group: Bones, Joints & Muscles

Posted: Jun 30, 2024

Hello Maxine and Walt Your story is very similar to ours ( my wife Kari) like...

https://connect.mayoclinic.org/comment/1365898/

journey Gary and (Kari with focal dystonia ... Kari was diagnosed in 2016 with Focal dystonia