Caring for your caregiver when you have Neuropathy
As I’m approaching my silver wedding anniversary next week with my husband, I reflect back on 20 wonderful, adventurous, activity-filled years!!! And 5 sad years when we were blindsided by my sudden onset of idiopathic neuropathy disability. I am grateful now that only 6 months were confined to wheelchair, I can now transport myself with walker, even drive some, though like most of you, limited feeling in hands, feet, accompanied by weakness and pain, and of course it’s depressing to have life as you knew it take such a drastic turn.
My question for this group: knowing that our partners’ lives changed as well, how do we help them cope too? Not all caregivers are created equally, and this is frustrating for them too. They’ve lost their social and athletic partners too. So many friends no longer include you because you are unable to keep up, or a burden. Heck, I am, because so many don’t have toilets I can use! The pandemic didn’t help socially either.
So, I don’t want to be selfish with thinking I’m the only one needing to cope & live life to my fullest – any ideas on helping our spouses and partners along? We are returning to our honeymoon spot for several days. I will sit with him at the pool (in the shade, not heat please!!!!), and thank God for taxis, though there’s a lot within 2 blocks I can get to with walker. It won’t be the same, but I sure am going to try hard to make it good for him. Any suggestions or groups though to help folks like him cope? Thanks!