Headed to PRC…

Posted by angieleigh @angieleigh, Aug 3, 2023

Alright… I’m in. Flight booked, shuttle scheduled, realization starting to sink in that I’m doing this. Three weeks in Rochester, MN for the Pain Rehabilitation Center program… besides an open mind, what are things I can bring with me to ensure this is the best experience possible? I have the packing list and I know comfy clothes- but… is there anything any of you would recommend that have completed the program? I’ve not shared with many because I don’t think they would understand… I have put on an award winning performance the past 18 or so years pretending I don’t hurt… and I know that has more than likely continued to contribute to the pain I experience on a daily basis. So in a way, I feel very alone. I have the support of my husband and daughter… I don’t think my mom truly gets it and my dad still has no idea I’m going. Through trying to explain to my mom, she has begun to share more about her mom- my granny- and I have a feeling she experienced debilitating, chronic pain… So- all that to ask… what do I need for this to be successful?!?! Thanks in advance!

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Search "My Time at the Mayo Clinic Pain Rehabilitation Center".
This is about a gentleman that went through the same program you're going to. I hope this helps

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angieleigh, I too went to a Pain Clinic for all of my pain. It was wonderful. I am not on any high octane pain meds as I told her that was my last resort, and she understood and respected that greatly, but, she tinkered with some of my other meds, requested MRI'S and LISTENED to me. Really LISTENED to me and made helpful suggestions. It was like talking to a friend. I left there so encouraged. I go back soon. She asked what I wanted to accomplish by that visit and I told her. It was a blessing. I pray yours goes as well as mine did. Be encouraged!

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@covidstinks2023

angieleigh, I too went to a Pain Clinic for all of my pain. It was wonderful. I am not on any high octane pain meds as I told her that was my last resort, and she understood and respected that greatly, but, she tinkered with some of my other meds, requested MRI'S and LISTENED to me. Really LISTENED to me and made helpful suggestions. It was like talking to a friend. I left there so encouraged. I go back soon. She asked what I wanted to accomplish by that visit and I told her. It was a blessing. I pray yours goes as well as mine did. Be encouraged!

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Thank you so much for your message and for sharing. I am so happy that you felt seen, heard, and most of all- validated with what you were experiencing… I’m going to the Mayo Clinic’s program… it’s a three week program that involves various disciplines- I’m so excited to continue healing, but having a hard time knowing I won’t be here with my precious family… such a tug of emotions.

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@angieleigh

Thank you so much for your message and for sharing. I am so happy that you felt seen, heard, and most of all- validated with what you were experiencing… I’m going to the Mayo Clinic’s program… it’s a three week program that involves various disciplines- I’m so excited to continue healing, but having a hard time knowing I won’t be here with my precious family… such a tug of emotions.

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Praying for you right now! I pray you meet some wonderful people that make you feel loved and that you develop new friendships. I believe they will be able to help you.

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Hi Angie @angieleigh, I am absolutely thrilled for you! You just made my day! You and I connected in this conversation back in February.
https://connect.mayoclinic.org/discussion/minnesota-programs/
My apologies for not following up on your progress. I try my best, but sometimes I miss a reply. In any case, I am pleased to find your new discussion: Headed to PRC this morning. You go girl!!

Congratulations are in order for becoming an active participant in your overall health and seeking a plan for a better quality of life. By taking a leap of faith and preparing for the 3 week PRC program, you are giving yourself opportunity to grow, change and become more stable, moderate and flexible. It will not disappoint, trust me. Your family will benefit as well by being able to join in on family day discussions and learn the logistics of the program and what you are experiencing daily. I graduated Jacksonville PRC and that is how it worked, I believe Minnesota will be the same. My husband was my participant via Zoom, and most likely yours will be, too, but it sounds as if your Mom could gain clarity on your condition and learn to support you better.

By asking what to bring to ensure your best possible experience tells me you are 100% ready despite the pit in your gut. It's scary, but remember -

Rehab = bravery with the acceptance of doing things different.

That is the mindset you should pack along with comfy, breathable clothes of course. As you will find, how you go is not how you will leave. You have so much to look forward to. Comprehensive whole person care from a medical team of therapists, doctors and nurses, fellow patients (students) who will become your peer group and possibly new friends for life. It is a shared experience for sure and no one will truly understand the depths of the program unless they go through it.

I traveled from NY to FL with my husband to begin PRC. I almost cancelled because of "symptoms" = anxiety, fear, deconditioning, debilitation etc... but my family supported and encouraged me. I kept telling myself there has got to be a better way for me and I knew I needed change. Honestly, I kept a lot of thoughts in my head about sick children who are brave and fight through disease and cancers with fortitude. I told myself "I CAN do this, I'm not dying, I will get through it". My husband stayed for one day then had to return home for work, and because of COVID and quarantining, he did not come back to get me as planned. I was in a hotel solo for 23 days. I faced time every night with my kids and certain supportive family members, sometimes through tears to my husband, but distraction is huge and you'll begin learning tools right of the bat to apply. Can't lie, it was the hardest thing I've ever done, but also the most impactful, rewarding experience of my life. It's awe-inspiring. You will be challenged, and have to work hard, but I believe that you can and will make it happen.

I'm tagging fellow PRC graduate Larry @ldb who graduated in 2010. He has wonderful insight and is supportive.

@roxxxy2626 was referring to this gentleman who is a former PRC graduate:
https://patient.practicalpainmanagement.com/resources/pain-self-management/time-mayo-clinic-pain-rehabilitation-center

He is not part of Connect, but I found him while googling and he gives a solid account of how the program works. I went in blind other than what I knew from the Mayo PRC website so, not sure if a birds eye view is more helpful or just diving in is...who knows???

I am super proud of you for persevering through the past 18 years and opening your mind to rehabilitation and learning. You should be so proud of yourself, it takes courage! You got this, and If I can answer any questions, I am happy to help. When do you leave and get started?

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Hi @angieleigh, please meet @connie2023 who was also accepted to the PRC program and scheduled for the end of October.
https://connect.mayoclinic.org/comment/896329/

It might be nice, and helpful to connect with someone who is also preparing to go.

I'm excited for your both!

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Just wondering how it’s going? I’ve been referred to this program. Id like to learn what others thought of it?

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Hello @lasirvent, so glad you asked! While we wait for members to join the conversation, I am pleased to offer Mayo Clinic's PRC patient testimonial videos that provide a wide range of perspectives and experiences from different folks who graduated the Florida program. One common theme you'll find is the overall life-changing experience the PRC provides. Here's just a few:

Mayo Clinic Pain Rehabilitation Center, Florida - Patient Testimonials:

How long ago were you referred to the PRC program? Are you considering attending?

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@lasirvent

Just wondering how it’s going? I’ve been referred to this program. Id like to learn what others thought of it?

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Hi! I’ll be there so soon… I was referred back in May after attending the BeST program for Functional Neurological Disorder… that program was life altering for me. I truly felt so empowered and stronger upon leaving. That one lasted for a week. Truth be told I’m nervous this one is three weeks, but I know it will be helpful…

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@rwinney

Hello @lasirvent, so glad you asked! While we wait for members to join the conversation, I am pleased to offer Mayo Clinic's PRC patient testimonial videos that provide a wide range of perspectives and experiences from different folks who graduated the Florida program. One common theme you'll find is the overall life-changing experience the PRC provides. Here's just a few:

Mayo Clinic Pain Rehabilitation Center, Florida - Patient Testimonials:

How long ago were you referred to the PRC program? Are you considering attending?

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I have my appointment with the psychologist on Aug. 24 so I don’t know how long after.

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