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468 total results
Comments (398)
@jen12 Welcome back and thank you very much for the update! Just getting the Ehlers-Danlos diagnosis...
https://connect.mayoclinic.org/comment/808465/
Just getting the Ehlers-Danlos diagnosis
You won’t know for sure with the physical therapy unless you try. I am a personal...
https://connect.mayoclinic.org/comment/902940/
I have Ehlers Danlos Syndrome.
He died in 1988. The fibro isn't an issue, its all the other things like ms,...
https://connect.mayoclinic.org/comment/704274/
yearly with the cancer dr., sjogrens, ehlers-danlos
I have delta granular storage deficiency (DGSD) which I think is the same as HHT. I...
https://connect.mayoclinic.org/comment/976783/
my small intestines but also have Ehlers
I tried to make an appointment, was on the wait list then they took me off...
https://connect.mayoclinic.org/comment/875746/
where I live they no nothing about ehlers-danlos
I don't believe the lumps on my forehead are hematomas. For one thing they are rock...
https://connect.mayoclinic.org/comment/594745/
gastrointerologist would even consider a subtype of Ehlers
I have posted many times on this site. A shortened personal history. 21 years with ET...
https://connect.mayoclinic.org/comment/1099796/
ET is more prevalent in people with Ehlers-Danlos
I've had both hips and both knees replaced, because of the effects of Ehlers-Danlos Syndrome, and...
https://connect.mayoclinic.org/comment/645433/
replaced, because of the effects of Ehlers-Danlos
Has anyone been to the Jacksonville hospital for autonomic testing for Postural Orthostatic Tachycardia Syndrome? And...
https://connect.mayoclinic.org/comment/275511/
I also suspect hyper-mobility/Ehlers-Danlos
Hi @jes078, I was diagnosed with a pituitary adenoma, and I also get headaches a lot....
https://connect.mayoclinic.org/comment/77383/
curious if you have been checked for Ehlers-Danlos
I've had CiP for a decade or more, and it seems very related to intracranial hypertension...
https://connect.mayoclinic.org/comment/851558/
I also have Ehlers Danlos, aka EDS,
Hi @mikaylar, While we wait for members to join and share their experience with CSF leaks...
https://connect.mayoclinic.org/comment/885953/
https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome
Thanks @kjh2017 for sharing more of your experience. It can be so confusing and frustrating to...
https://connect.mayoclinic.org/comment/80956/
- Chronic Erythema Nodosum & Ehlers-Danlos
Hello Julbpat, I am sorry that you are facing these health challenges. I have dysautonomia also,...
https://connect.mayoclinic.org/comment/815739/
, linked to my joint hypermobility/Ehlers-Danlos
Thank you Colleen! Mayo does not seem to have an appropriate program for her, as far...
https://connect.mayoclinic.org/comment/796485/
disorders but I am looking into their Ehlers-Danlos ... au/blog/holistic-psychiatry/202211/ehlers-danlos-syndrome-and-psychiatric-symptoms
I had anal prolapse surgery. They found a kink in the bowel and took out a...
https://connect.mayoclinic.org/comment/841093/
I have Ehlers Danlos so having tissue
Hello @jigglejaws94, As a Connect moderator, I always appreciate how relatable and insightful your messages are...
https://connect.mayoclinic.org/comment/186043/
read Shani Weber's Hypermobile Ehlers-Danlos
I have Ehlers-Danlos Syndrome 3.I I am in pain 24/7 of varying degrees. I have been...
https://connect.mayoclinic.org/comment/94850/
I have Ehlers-Danlos Syndrome 3.I
I
Wow, thanks for your reply and so sorry to hear about all your challenges!! My physical...
https://connect.mayoclinic.org/comment/53357/
as well but I have never heard of Ehlers-Danlos
You may want to look into and consider being evaluated for connective tissue disorder (Like Ehlers...
https://connect.mayoclinic.org/comment/82574/
for connective tissue disorder (Like Ehlers ... (I have Ehers Danlos Syndrome).
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