Share this:
Darlia
@darlia

Posts: 132
Joined: Jul 21, 2017

Fibromyalgia..Is It an autoimmune disease?

Posted by @darlia, Tue, Feb 13 4:26am

Hi all! I have Fibro. I also have many autoimmune diseases. I am being challenged by my comment to a FB discussion on Fibromyalgia about whether or not it is an autoimmune diseases.. any info appreciated! Thank you and ..just keep swimming.. just keep swimming!
Darlia

Liked by grandmaR

REPLY

Hi Darlia,
This has been an on-going discussion among the medical community. I’ve suffered from Fibro for over 30 years!

There are still some old-fashioned docs who don’t believe this even exists. There are people out there who are disabled from this when they are inflamed. When I tried to get a disability policy, I was told this is an autoimmune disorder and could not get coverage. Funny, people with heart disease, diabetes and cancer can (although they pay through the nose), but I couldn’t.

ronnie

Liked by Darlia

Thanks for the reply, Ronnie. I really understand because I\'ve had it must of my life too. Diagnosed in early 80\'s, but had symptoms for like 5+ years before that. I\'ve read where the jury is out on if it\'s autoimmune or not, yet.. but I have many other actual autoimmune diseases so I Believe this disorder that we call Fibromyalgia is a complication that comes as a result of having autoimmune diseases. When I post on the Fibromyalgia Mastery onFB that it is autoimmune, several people, one specifically, freaked out on how it\'s not an autoimmune diseases but a neurological one!. Well, I have peripheral neuropathy and that\'s neurological plus the cause is having a rare antibody that is also neurological!. So I appreciate your imput!
Darlia

@darlia

Thanks for the reply, Ronnie. I really understand because I\'ve had it must of my life too. Diagnosed in early 80\'s, but had symptoms for like 5+ years before that. I\'ve read where the jury is out on if it\'s autoimmune or not, yet.. but I have many other actual autoimmune diseases so I Believe this disorder that we call Fibromyalgia is a complication that comes as a result of having autoimmune diseases. When I post on the Fibromyalgia Mastery onFB that it is autoimmune, several people, one specifically, freaked out on how it\'s not an autoimmune diseases but a neurological one!. Well, I have peripheral neuropathy and that\'s neurological plus the cause is having a rare antibody that is also neurological!. So I appreciate your imput!
Darlia

Jump to this post

Hi Darlia

You are very welcome.

I believe this will continue to be an on-going debate until the medical community can make up its mind. Problem is, I really don\'t think they care. Just think, they have known about this condition for decades and they still haven\'t made up any test for confirmation. Diagnosis, as you know, is a matter of elimination and symptoms. In addition, as you research and read other posts, you see that the treatments vary, too.

For me, what I did all those years ago helped. Low dose anti-depressants to get into deep, restorative sleep, exercise, weight loss, therapeutic massage and chiropractics worked for me. Insurance companies told me it was auto-immune and would not insure me, that I would have to go to an insurance company that insures high risk customers and they charge a fortune.

By the way, it was women who first complained about this mysterious \'disease\' and they were told, as they have for other conditions, there was nothing wrong and it was all in their head.

So, in short, I believe we need to do what we can to relieve the symptoms and not exasperate them.

Good luck to you and us all!!!!
ronnie

@darlia

Thanks for the reply, Ronnie. I really understand because I\'ve had it must of my life too. Diagnosed in early 80\'s, but had symptoms for like 5+ years before that. I\'ve read where the jury is out on if it\'s autoimmune or not, yet.. but I have many other actual autoimmune diseases so I Believe this disorder that we call Fibromyalgia is a complication that comes as a result of having autoimmune diseases. When I post on the Fibromyalgia Mastery onFB that it is autoimmune, several people, one specifically, freaked out on how it\'s not an autoimmune diseases but a neurological one!. Well, I have peripheral neuropathy and that\'s neurological plus the cause is having a rare antibody that is also neurological!. So I appreciate your imput!
Darlia

Jump to this post

I completely agree! And I went through the same…they all told me it was my imagination too!
Thank you for the encouragement. Stay safe!
Darlia

It hurts way down deep when people don't believe me. I doubt Drs would give us chemicals unless they are sure we are ill. It is so hard to convince my son. My daughter just thinks I am weak and should drop all drugs and work it off with exercise and take fake drugs. Mind you I am 75 76 in two months. The drugs allow me to live. I have she'd a lot of tears

Please login or register to post a reply.