Ehlers-Danlos Syndromes Welcome

Jun 22 8:00am | Samantha Campbell | @samanthacmaa | Comments (2)

 

Welcome to the Mayo Clinic Ehlers-Danlos Syndrome page. We are pleased to offer this resource within the Mayo Clinic Connect community. Whether you are new to Mayo Clinic, or an established patient, we want your experience to be the best it can be. Your care is our top priority. We have a team of experts from around the world working together to improve the care of all patients with Ehlers-Danlos Syndromes (EDS) and Hypermobility Disorders (HSD).

There are many reasons why patients from all over the world come to Mayo Clinic. Our patients and families are evaluated with a family-centered model meaning the family pedigree is one of the most important steps in the clinical evaluation. Our approach includes comprehensive evaluations, diagnostics, and individualized treatment plans. Over the years, our staff has gained experience and expertise in diagnosing and treating patients with EDS and HSD. As a result, many physicians refer their complex or high-risk patients with a variety of complications to us due to our ever-expanding experience and expertise.

Through this blog, we will be providing further research updates, topics of interest, and guidance for you and your family. Please stay connected for regular updates to our Newsfeed and explore the available Resources.

Read more about EDS from Mayo Clinic.

 

Thank you for this blog. I feel pretty alone with this condition, even though other family members have it. My former PCP had HEDS himself, and recognized my constellation of conditions and referred me for an assessment, but he retired, and none of my current physicians really has a deep grasp of the implications of having it.

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@gracebalch

Thank you for this blog. I feel pretty alone with this condition, even though other family members have it. My former PCP had HEDS himself, and recognized my constellation of conditions and referred me for an assessment, but he retired, and none of my current physicians really has a deep grasp of the implications of having it.

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Hi Grace, welcome to Mayo Clinic Connect. I'm glad you found this blog and the patient community here. Allow me to introduce you to some other EDS-ers (people living with Ehlers Danlos syndrome), like @hugforhope @healthhopefreedom @wittmack @csalter @lifetimepain @smbryce1 @moms34eds and @dianeehlinger to name a few.

Please follow the Bones, Joints & Muscles group (https://connect.mayoclinic.org/group/arthritis-and-joint-conditions-268850/) and join the EDS discussions like these ones.

– Ehlers Danlos Syndrome https://connect.mayoclinic.org/discussion/ehlers-danlos-syndrome-new-diagnosis-1/
– Ehlers Danlos Syndrome (EDS) & HSD, calling all types!https://connect.mayoclinic.org/discussion/edshsd-calling-all-types/

How are you doing?

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