Share this:

Empty Sella Syndrome

Posted by @caras in Brain & Nervous System, Aug 29, 2012

Hello, Newly diagnosed with this syndrome. Basically pitatuary gland is pinched and/or not able to be found on MRI and now affecting my vision and my ACTH and prolactin levels are wacky. MRI found a csyst or possible CSF leakage. Anyone experience this? I am just beginnin this journey and looking for any information at all.
Thank you,
Cara in ND


Posted by @mathewphilips, Aug 30, 2012

Sorry to hear about your condition. But luckily the enodcrine ( hormonal ) problems can be treated successfully by drugs. Hey what about your vision ? Is it already affected? I wonder how the empty sella will affect the vision..
Good luck.


Posted by @caras, Aug 30, 2012

Thanksfor your reply! Yes, my vision has been affectred so I wonder if the cyst will nn to be removed or how theytake care of that problem.


Posted by @mouser, Sep 9, 2012

If you can swing it, I recommend coming to The Twin Cities in Minnesota to have your surgery. I work at Abbott Northwestern Hospital on neuroscience. We deal with situations just like yours all the time and we are very experienced.


Posted by @mouser, Sep 9, 2012

Dr. Nagib is the neurosurgeon I recommend


Posted by @nickryder, Sep 11, 2012

A few years ago I was diagnosed with empty cella syndrome, they can't see my pituitary . Nobody seemed overly concerned, I inject myself with 2 cc's of testosterone every two weeks. I take a myriad of medications. 30 pills per day. I haven't been the same since I was diagnosed. A lot of the doctors had never heard of empty syndrome. It does put you through some changes.

Posted by Anonymous-c1a06bac, May 22, 2013

I am currently being worked up for terrible headaches. Had an MRI of my brain and aside from finding out I probably had a stroke, the report states, "incidental partially empty sella" is found. Having no idea of what this was, I started researching it. I have so many of the symptoms. Have asked the Neurologist about it but was told that headaches are not a component of this disorder. Everything I've read states headaches are experienced by 90% of those with this condition. We are still working on a cause for my headaches but wondering what symptoms others are having with the empty sella...?? I don't think I've had my prolactin level checked (but my daughter recently found out she has a pituitary prolatinoma)- so then I also wonder if there's a heriditary component to any of this. ??? Any info is appreciated!!


Posted by @frankie999, Aug 27, 2015

Newly diagnosed with empty sella. My doctor said the MRI showed it was in the normal range, anybody know what this means? I suffer from headaches, nauseau, heart palpitations and shortness of breath. My prolactin levels are way up, so is cortisol. I am also hypothyroid. She said there was no adenoma.

Any info really appreciated.

Edited: 08/27/2015 @ 10:03pm

Please login or become a member to post a comment.