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944 total results

Comments (863)

After moving to Connecticut from Maryland in 2008 and beginning to experience lowering hormone symptoms, I...

https://connect.mayoclinic.org/comment/135112/

weight loss, chronic joint pain, Raynauds

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Nov 23, 2018

HI COLLEN, THANK YOU FOR TELLING ME ABOUT MORE GROUP SITES. THEY ARE HELPFUL FOR SURE,...

https://connect.mayoclinic.org/comment/64259/

DISEAES AND MAC P,LUS SJORGEN'S AND RAYNAUD

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: May 10, 2018

@lauren123 Hi Lauren. Yes, there are two kinds of Raynaud's. There is PRIMARY which is only...

https://connect.mayoclinic.org/comment/197571/

Yes, there are two kinds of Raynaud& ... There is PRIMARY which is only Raynaud ... disease(s) that commonly co-exist with Raynaud ... common diseases than can accompany Raynaud ... of their experiences with SECONDARY Raynaud

Discussion: Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Support Group: Autoimmune Diseases

Posted: May 7, 2018

Hi. My daughter developed a hemangioma a week after birth on her forehead. It went away...

https://connect.mayoclinic.org/comment/382792/

years old and has an extreme case of Raynaud's

Event: Video Q&A about Vascular Malformations and Related Syndromes

Posted: Dec 6, 2017

I found Dr. Griffing's presentation very informative and helpful. Thank you! I am wondering about the...

https://connect.mayoclinic.org/comment/175001/

I have anti-centromere antibodies, Raynauds

Discussion: Highly recommend Dr. Griffing's Video Q&A about Scleroderma

Support Group: Autoimmune Diseases

Posted: Nov 22, 2017

Do you know of any Mayo Clinic-sponsored Scleroderma-related research studies seeking 65+ year-old individuals with the...

https://connect.mayoclinic.org/comment/382423/

• First diagnosed with Raynauds and

Event: Video Q&A about Scleroderma

Posted: Nov 15, 2017

I had a supervised sleep study a few months ago that resulted in getting an oral...

https://connect.mayoclinic.org/comment/152991/

Oh, and I have Raynaud’s.

Discussion: Sleep Disorders & Parkinson's Video

Support Group: Parkinson's Disease

Posted: Sep 27, 2017

Hi everyone, I believe I have neuropathy in my feet but my orthopedic doctor has diagnosed...

https://connect.mayoclinic.org/comment/156222/

orthopedic doctor has diagnosed it as Reynaud's

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Sep 20, 2017

Welcome to Connect, Mary. I'd like to introduce you to @kdubois @mooneagle @dash99999 @taterjoy @dogmamat @olga1dubrovsky2_babies...

https://connect.mayoclinic.org/comment/140102/

have all talked about Scleroderma or Raynaud's ... been experiencing scleroderma and Raynaud's

Discussion: Scleroderma and Raynauds

Support Group: Autoimmune Diseases

Posted: Feb 27, 2017

I have multiple. Started with fibromyalgia and psoriatic arthritis. Recently added RA and Raynauds syndrome. One...

https://connect.mayoclinic.org/comment/113381/

Recently added RA and Raynauds syndrome

Discussion: More than one auto immune disease?

Support Group: Autoimmune Diseases

Posted: Nov 25, 2016

First my heart goes out to you. I think this is another very hard to diagnosis...

https://connect.mayoclinic.org/comment/93917/

I was told years ago that I have Raynauld's

Discussion: One hand on just one side goes numb

Support Group: Autoimmune Diseases

Posted: Apr 15, 2016

Hi, this is my first time on here. I am 33 and have had fibro since...

https://connect.mayoclinic.org/comment/73998/

They think I have raynauds can it affect

Discussion: Fibromyalgia: Anyone out there with the same diagnosis?

Support Group: Fibromyalgia

Posted: Nov 11, 2012

I always think I have it because I grew up in Chicago and when I was...

https://connect.mayoclinic.org/comment/1282160/

The Raynauds sort of goes along with

Discussion: Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Support Group: Autoimmune Diseases

Posted: Apr 15 12:45am

I have had Raynaud's for 40 years. Mostly very cold fingers and toes for the first...

https://connect.mayoclinic.org/comment/1282520/

I have had Raynaud's for 40 years

Discussion: Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Support Group: Autoimmune Diseases

Posted: Apr 15 12:36pm

Have you checked for Ehlers-Danlos syndrome? It matches almost everything you said and was the first...

https://connect.mayoclinic.org/comment/1278053/

Also, Raynauds is typically a secondary

Discussion: Desperate for Advice

Support Group: Autoimmune Diseases

Posted: Apr 9 4:05pm

@nathansmith7143 My son takes medication for adhd that causes some side effects (gets tired and he...

https://connect.mayoclinic.org/comment/1279637/

side effects (gets tired and he has Reynauds

Discussion: Head feels like it will explode daily. Severe cognitive difficulties

Support Group: Brain & Nervous System

Posted: Apr 11 7:29pm

Hi John, I saw 2 different hand drs. In 2017-2018 when my index finger right hand...

https://connect.mayoclinic.org/comment/1039048/

I had previous signs of raynauds in ... The raynauds white fingertip discoloration

Discussion: Managing Small Fiber Neuropathy, Sjogren's, Hashimoto's

Support Group: Autoimmune Diseases

Posted: Mar 23, 2024

Are you sure you don't have Raynaud's Syndrome (Raynaud's Disease). ??? Check it out online. Check...

https://connect.mayoclinic.org/comment/1220540/

Are you sure you don't have Raynaud ... 's Syndrome (Raynaud's Disease

Discussion: Gave Nooro a try - A WARNING

Support Group: Neuropathy

Posted: Jan 24 10:54am

hi @trustissues, there are medications--calcium channel blockers that are prescribed for Raynauds. But first, how are...

https://connect.mayoclinic.org/comment/1220571/

channel blockers that are prescribed for Raynauds

Discussion: Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Support Group: Autoimmune Diseases

Posted: Jan 24 11:10am

Yup. I have it too. Female, 62yo. Diagnosed (and treated) after 6 rheumatologists misdiagnosed and mistreated...

https://connect.mayoclinic.org/comment/1240992/

Experienced fatigue and raynaud’s.

Discussion: Antisynthetase Syndrome: Anyone else?

Support Group: Autoimmune Diseases

Posted: Feb 19 5:57pm