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Sleep Disorders & Parkinson's Video

Posted by @hopeful33250, Jun 8, 2017

Hello @chrisj2491 @denie57 @johnjames @trouble4343 @ggopher @tntredhead @aperob @caryp43 @burgle @macbeth @knightkris @mariemarie @pjsammy

During our discussion about Mood Disorders and Parkinson’s some of our Members discussed that sleep problems affect their mood. This is certainly true – the better we sleep, the better we feel during the day. I recently came across a video done by the University of Michigan in which Dr. Andrew Berkowski discusses this phenomena in Parkinson’s patients, here is the website where you can watch this presentation, https://www.youtube.com/watch?v=6s4A6HFkjGo&feature=youtu.be

I hope that you learn something from this video that will be helpful to you in understanding your sleep problems and the types of remedies available.

Teresa

REPLY

Video is great, thanks. 

Thanks for rhe video. I will, when I have some time, check it out. As it is my main problem. Sleep! Or excuse me, lack of .

@knightkris

Thanks for rhe video. I will, when I have some time, check it out. As it is my main problem. Sleep! Or excuse me, lack of .

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Hi Kris, @knightkris

Have you had a chance to look at the video yet? I’m always wondering what people take away from these videos.

Teresa

I was just thinking about the video that I posted and wondering how you are all doing with your sleep problems.

Any new developments in your sleep health? Have you found any good solutions yet? Is there anything you would like to share that might be helpful to the rest of us?

Teresa

@hopeful33250

I was just thinking about the video that I posted and wondering how you are all doing with your sleep problems.

Any new developments in your sleep health? Have you found any good solutions yet? Is there anything you would like to share that might be helpful to the rest of us?

Teresa

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I had a supervised sleep study a few months ago that resulted in getting an oral appliance due to apnea and then a home sleep study to verify it is working. But I still nap a lot and have a few other issues. 

Had a Neuro appointment today and it appears I’m not taking the Sinemet right. The probiotic helps with my bowels but can’t be taken with Sinemet which I have been doing. So, I’ll make that change, put caffeine and soda (for taking Sinemet) back in my

diet and see where that leads. 

Oh, and I have Raynaud’s.

Steve  

@hopeful33250

I was just thinking about the video that I posted and wondering how you are all doing with your sleep problems.

Any new developments in your sleep health? Have you found any good solutions yet? Is there anything you would like to share that might be helpful to the rest of us?

Teresa

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It is good to hear from you Steve, @ggopher

It sounds like you have had a lot of changes since we last heard from you. I am glad to hear that the sleep study resulted in some help for you.

Is the sleeping apparatus a CPAP machine? Are you getting more REM sleep now?

Teresa

@hopeful33250

I was just thinking about the video that I posted and wondering how you are all doing with your sleep problems.

Any new developments in your sleep health? Have you found any good solutions yet? Is there anything you would like to share that might be helpful to the rest of us?

Teresa

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The apparatus is like two tooth trays hinged together to push the lower jaw forward. A CPAP was not recommended.

I can’t say my REM has improved much but I don’t seem quite as tired all day as I did. Napping a little less.

Steve  

Thanks for the additional information, Steve, @ggopher, could you give us the name of this apparatus?

Teresa

@hopeful33250

Thanks for the additional information, Steve, @ggopher, could you give us the name of this apparatus?

Teresa

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The brand name of mine is Silent Night.

My kids would call that a Dad Joke.

There are a number of dentists in town making these or similar ones for around $600.

Steve  

Thanks, Steve @ggopher, I had not heard about that before. From your description it doesn’t sound like any air is being used like the CPAP.

Teresa

Hi Kris, @knightkris

I hope you are doing well. I know that sleep has been a problem for you also. Any improvements along that line? How are dealing in general with your Parkinson’s disorder? Any changes?

Teresa

@hopeful33250

Thanks, Steve @ggopher, I had not heard about that before. From your description it doesn’t sound like any air is being used like the CPAP.

Teresa

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No air but it is an odd feeling. 

Steve  

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