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sodonnell
@sodonnell

Posts: 1
Joined: Aug 30, 2016

More than one auto immune disease?

Posted by @sodonnell, Aug 30, 2016

I was diagnosed with Wegeners GPA and also Microscopic Colagenous Colitis. Are there any others in this group who have two different auto-immune diseases?

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Hi, sorry to hear that. Looks like you have a beauty there but at least they say its treatable. Is your diagnosis recent and are you receiving treatment? Personally, I’ve had Grave’s disease and Sjogren’s syndrome which often is accompanied by some flavor of thyroid autoimmunity. I think that you’ll find that having more than 1 autoimmune diagnosis is probably the rule rather than the exception. Someone has formally named the condition where 3 or more occur but its likely that more than 1 is common.

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3150011/

Liked by Deena

Welcome to Connect, @sodonnell.
You will find that many people have more than one autoimmune disease condition. I’ll let @johnwburns speak to that.
In the meantime, let me introduce you to a few members who have similar conditions as yourself. Please meet @shosh37 who also just joined Connect today and who has collagenous colitis.
And meet @bobsconnect @kecaj who have Granulomatosis with polyangiitis (Wegener’s) (GPA).

@sodonnell – were you just recently diagnosed? We look forward to getting to know you.

Hi! Although I suppose I am not technically fully diagnosed yet, but current seems to be Fibromyalgia and Seronegative. In fact my doctor most recently wrote in my summary “Fibromyalgia V. Seronegative” Does the “V” mean literally versus? Like either/or? Or does this mean she believes I have both?

Nanke, seronegative is not a condition, but rather a description. Seronegative means that tests don’t show the presence of specific antibodies in your blood. For example in the case of rheumatoid arthritis seronegative RA doesn’t have anti-cyclic citrullinated peptides (anti-CCPs), whereas seropositive RA does. Here’s some more information http://www.arthritis.org/about-arthritis/types/rheumatoid-arthritis/articles/what-type-do-you-have.php

In the summary that your doctor wrote, what was the word that followed seronegative?

@colleenyoung

Nanke, seronegative is not a condition, but rather a description. Seronegative means that tests don’t show the presence of specific antibodies in your blood. For example in the case of rheumatoid arthritis seronegative RA doesn’t have anti-cyclic citrullinated peptides (anti-CCPs), whereas seropositive RA does. Here’s some more information http://www.arthritis.org/about-arthritis/types/rheumatoid-arthritis/articles/what-type-do-you-have.php

In the summary that your doctor wrote, what was the word that followed seronegative?

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Hi @colleenyoung, thanks for your reply! this is exactly what she wrote:

seronegative
vs fibro

with the ‘vs fibro’ in italics, and no word after seronegative. I have assumed seronegative RA, because we discussed it a little and that had been a previous diagnosis at this clinic when I was seen by a resident. Also I have been having severe joint pains, mostly symmetrical, in hand, wrist, elbows, etc and basically fitting the symptom profile. Thanks for the link.

Hi, i have multiple actually, Diabetes since i was 13 years old, then Rheumatoid arthritis since couple of years followed by fibromailogia and some disorders with the thyroid:) 🙂
Very recent also diagnosed with Solaris
Is this normal to have all these

Primary Biliary Sclorsis ,fybromyalgia

Hi. Yes I have RA and fibromyalgia.

I have RA and Sjogren’s. I believe it is fairly common to have more than one auto immune disease. My experience has been a diagnoses does not have to lead to a dark hole. Find what works for you. I highly recommend swimming and walking. Pace yourself, but try to stay active.

It is true that if you have one autoimmune disease, you may likely develop another one.

http://aje.oxfordjournals.org/content/169/6/749.full

An article discussing having more than one autoimmune disease

I have seronegative RA & Psoriatic arthritis

I have multiple. Started with fibromyalgia and psoriatic arthritis. Recently added RA and Raynauds syndrome. One of my docs said common that you start to add more as you go. Good luck to all with finding treatment and relief.

Liked by Deena, mikee

Well just one auto immune disease can throw your systems off causing other disease and complications I have Primary Biliary Conlangitsis and fibromyalgia God knows what else? Good luck to all

Liked by mikee

I have stiff person sydrom

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