Giving Nooro a try

Posted by madmouse43 @madmouse43, Apr 9 7:59pm

From my time here on the Mayo Clinic Connect and my own experience I realize that there is no magic bullet for painful feet from PN Wether it be drugs, machines, home remedies or anything else. All of our attempts for relief have received personal unique results.
What helps one does not necessarily help all others or even any others. It is with that in mind that I am going to give the Nooro Foot Massager which I got on a 90 day no questions asked return policy.
I will be using setting 1 at a strength of 13 to see what happens (it seemed like the most appropriate setting) for 15 minutes 1x per day.
If anyone had any hints, suggestions or comments I would live to hear from you.

Interested in more discussions like this? Go to the Neuropathy Support Group.

Someone suggested ice water foot soak, but I didn't enjoy that at all. I have found that soaking my feet in tap water gave me temporary relief, similar to using lidocaine cream. The cream numbs my feet long enough to get to sleep. As you said, we can't necessarily respond to treatments exactly like the next person.

I'm doing several things to bring my pain down. In 2017, I had a spinal cord stimulator implant that was really great as long as it lasted. Not sure how much it helps anymore, but I keep it turned on. I've been having IVig infusions for two years, until I had to stop in February because I couldn't drive to the infusion center, but I plan to get it started again. I take Prednisone to slow down the progression of CIDP, and take Duloxetine. I took morphine sulfate Contin for several years, but I stopped taking it to try a few other medications. After 2 years of trying, without success, I quit taking Clonazepam so I could go back to opioids without a huge hassle, and a month ago I started taking Dilaudid. It's the only thing that has ever helped me. I spent more than 5 years trying a really long list of medications to no avail. Well, a couple seemed to help, but they caused unacceptable side effects. Lyrica put me in the hospital. So, the search goes on. Some day a magic cure will be discovered. The only one I anticipate is getting to heaven. The cure won't be found in my lifetime, I suspect.

Let us know what you think of the Nooro. I hope it works for you.

Jim

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I’d like to know how it’s working for you. A cousin of mine ordered a similar device. Hopefully she will keep me updated as well. I pray it helps you.

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@jimhd

Someone suggested ice water foot soak, but I didn't enjoy that at all. I have found that soaking my feet in tap water gave me temporary relief, similar to using lidocaine cream. The cream numbs my feet long enough to get to sleep. As you said, we can't necessarily respond to treatments exactly like the next person.

I'm doing several things to bring my pain down. In 2017, I had a spinal cord stimulator implant that was really great as long as it lasted. Not sure how much it helps anymore, but I keep it turned on. I've been having IVig infusions for two years, until I had to stop in February because I couldn't drive to the infusion center, but I plan to get it started again. I take Prednisone to slow down the progression of CIDP, and take Duloxetine. I took morphine sulfate Contin for several years, but I stopped taking it to try a few other medications. After 2 years of trying, without success, I quit taking Clonazepam so I could go back to opioids without a huge hassle, and a month ago I started taking Dilaudid. It's the only thing that has ever helped me. I spent more than 5 years trying a really long list of medications to no avail. Well, a couple seemed to help, but they caused unacceptable side effects. Lyrica put me in the hospital. So, the search goes on. Some day a magic cure will be discovered. The only one I anticipate is getting to heaven. The cure won't be found in my lifetime, I suspect.

Let us know what you think of the Nooro. I hope it works for you.

Jim

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Do you mind if I ask how Lyrica put you in the hospital? My neurologist wants me to start taking it even though I had a bad experience with Gabapentin.

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@daj3333

Do you mind if I ask how Lyrica put you in the hospital? My neurologist wants me to start taking it even though I had a bad experience with Gabapentin.

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After a few days of taking it, I became incoherent - couldn't compete a sentence, no memory. I stopped taking it in the hospital and recovered quickly. Kind of a bummer because it was helping with the pain. Lots of people take it with no problems

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@jimhd

After a few days of taking it, I became incoherent - couldn't compete a sentence, no memory. I stopped taking it in the hospital and recovered quickly. Kind of a bummer because it was helping with the pain. Lots of people take it with no problems

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Thank you for the information

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Please let me know if this works. Are there any reasons why a person should not use his device, for example , I have a pace maker and some devices do not want you to use it for that reason.

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I have CIPN after receiving several chemotherapies. The Nooro was a gift to see if using this device gave me any relief and improved the use of my feet. (I have also used an air pressure device on my feet and calves.)

I used it faithfully for the recommended month 2x a day. I could only feel anything at the highest number. I had no improvement, I am sorry to say.

I have tried Gabapentin with no improvement for 2 years until I experienced memory difficulties. I have no pain but only the tingling, numbness, icy cold with terrible stiffness during the colder weather. I only wear HOKA shoes as they support me and I use a walking stick when off the pavement or if my balance is unusually difficult.

My hands are also affected. The biggest hurdle is attitude adjustment.....still working on that!

Good luck with Nooro - hope it works for you!

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@skipneuroathy

Please let me know if this works. Are there any reasons why a person should not use his device, for example , I have a pace maker and some devices do not want you to use it for that reason.

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That is something that would be wise to contact Nooro about.

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@daj3333

Do you mind if I ask how Lyrica put you in the hospital? My neurologist wants me to start taking it even though I had a bad experience with Gabapentin.

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Lyrica and Gabapentin are different chemical composition. I switched from Gabapentin to Lyrica. Definitely different.

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@nathandavid

I’d like to know how it’s working for you. A cousin of mine ordered a similar device. Hopefully she will keep me updated as well. I pray it helps you.

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I tried Norro and got nothing. I returned it and got a full refund.

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