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Comments (10,000+)

Mayo Connect does not promote or endorse Lung Matters or their protocols. But as a support...

https://connect.mayoclinic.org/comment/1205184/

But as a support group by and for the ... I too was banned from the group. ... ll see that we are a great support group

Discussion: Lung Matters Protocol

Support Group: MAC & Bronchiectasis

Posted: Jan 6 9:44am

I ordered a medical bracelet as soon as I was diagnosed. It's like a talisman if...

https://connect.mayoclinic.org/comment/1204236/

whole business is very scary and this group

Discussion: I'm scared. Just sayin... also med ID bracelets?

Support Group: Aortic Aneurysms

Posted: Jan 5 6:59am

Thanks for this information. I have an appt this Tuesday with my rheumatologist to discuss adding...

https://connect.mayoclinic.org/comment/1203771/

Based on posts in this group, I think

Discussion: How did you cope with the side effects tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 4 12:38pm

Hello @greenmountainzebra, Yes, as mentioned by @vinnie694, the NETs virtual support group meets on the first...

https://connect.mayoclinic.org/comment/1203540/

vinnie694, the NETs virtual support group

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 4 8:21am

My situation is a little different from yours, but also has some similarities. I have been...

https://connect.mayoclinic.org/comment/1203447/

I am also looking for a support group ... I joined a group with which it is pleasant

Discussion: Dealing with a Spouse with a “Mild Cognitive Impairment”

Support Group: Caregivers: Dementia

Posted: Jan 4 6:06am

Welcome @rnwings, It can definitely be discouraging dealing with neuropathy. I think I asked the same...

https://connect.mayoclinic.org/comment/1203219/

discussions in the Neuropathy Support Group ... them - https://connect.mayoclinic.org/group

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Jan 3 1:53pm

Hi @wildapple50 it is very encouraging to hear your experiences. What is your bmd% increase during...

https://connect.mayoclinic.org/comment/1202560/

possible, could you share what age group

Discussion: Transdermal HRT

Support Group: Osteoporosis & Bone Health

Posted: Jan 2 3:02pm

Meditate (there are a couple apps for this. I like Calm). Also have 1 -;3 weekly...

https://connect.mayoclinic.org/comment/1202433/

Also have 1 -;3 weekly online group

Discussion: Will anyone explain his/her use of rest when they crash?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jan 2 11:47am

My doctor actually laughed when I requested a ctx and p1np. I insisted. I told him...

https://connect.mayoclinic.org/comment/1202283/

I just wanted the results so this group

Discussion: Is a dexa every 2 years enough?

Support Group: Osteoporosis & Bone Health

Posted: Jan 2 9:18am

You can encourage her to take part in a group therapy/physical activity for her issues. It...

https://connect.mayoclinic.org/comment/1202166/

can encourage her to take part in a group

Discussion: Any caregivers gaining weight?

Support Group: Caregivers

Posted: Jan 2 7:16am

@jczerewko I should tell you that this isn’t the place for this question. Maybe you could...

https://connect.mayoclinic.org/comment/1202046/

in the Just Want to Talk discussion group

Discussion: Oral Lichen Planus - my new dental treatment plan...

Support Group: Autoimmune Diseases

Posted: Jan 1 9:13pm

Jenniesmiler & others on this thread. I hear you Jenniesmiler. I'm 58 with COPD. I quit...

https://connect.mayoclinic.org/comment/1201576/

;re brave going on this discussion group

Discussion: My breathing

Support Group: COPD: Chronic obstructive pulmonary disease

Posted: Jan 1 8:33am

Before I retired, I worked for the county helping with road maintenance. During bad storms and...

https://connect.mayoclinic.org/comment/1201240/

I'm thankful for this group as you

Discussion: What should I do next?

Support Group: Prostate Cancer

Posted: Dec 31, 2024

My evenity an one shot of Prolia were given in my endocrinologist's office but he is...

https://connect.mayoclinic.org/comment/1206644/

he is part of a county wide medical group

Discussion: Stopping Evenity

Support Group: Osteoporosis & Bone Health

Posted: Jan 8 9:32am

I have an intense personality (Aries 🤣) and I have always laughed my way through all...

https://connect.mayoclinic.org/comment/1202446/

happy with the outcome, love support group

Discussion: Stage 1, very treatable invasive lobular carcinoma

Support Group: Breast Cancer

Posted: Jan 2 12:21pm

As you prepare for bone marrow transplant, you may wish to follow the BMT group and...

https://connect.mayoclinic.org/comment/1207156/

transplant, you may wish to follow the BMT group ... ) & CAR-T Cell Therapy Support Group ... https://connect.mayoclinic.org/group

Discussion: Darzalex (daratumumab): What side effects did you have?

Support Group: Blood Cancers & Disorders

Posted: Jan 8 8:27pm

Thank you @mimimmx for providing such a detailed information. I will check the Facebook group.

https://connect.mayoclinic.org/comment/1207637/

I will check the Facebook group.

Discussion: Anyone participate in RMC9805 and RMC6236 clinical trials?

Support Group: Pancreatic Cancer

Posted: Jan 9 12:02pm

Hello Vincenzo, I'd love to chat with you about our experience. I copy and pasted the...

https://connect.mayoclinic.org/comment/1208220/

message to another Connect member or group

Discussion: GNET Sarcoma-Gastrointestinal Neuroectodermal Tumors

Support Group: Sarcoma

Posted: Jan 10 9:17am

@verena Best wishes ❤️‍🩹 You make a very good point about how long the period of...

https://connect.mayoclinic.org/comment/1207806/

I also belong to another support group

Discussion: Scanxiety tips and tricks

Support Group: Cancer

Posted: Jan 9 4:13pm

You kidding me it’s been reported for unscientific information and censorship You can’t mention the word...

https://connect.mayoclinic.org/comment/1205047/

complain they are intimidated by the group ... tumor that’s discrimination against a group

Discussion: Lung Matters Protocol

Support Group: MAC & Bronchiectasis

Posted: Jan 6 7:56am