Demodex

Posted by medical1question @medical1question, Aug 10 5:26pm

Four years ago, with no history of any skin issues, I developed overnight red, pustules and papules on my eyebrows. Over the four years, I’ve gone to three dermatology groups known to be selected by other healthcare professionals, and have seen a total of seven practitioners. They have said it’s rosacea, seborrheic dermatitis, or actinic keratosis. I’ve been prescribed expensive new topicals, two different antibiotic courses, etc. Each visit I hear, “Well, you can try this.”

I’m an RN, and I know my body. I keep telling each dermatologist that I believe it could be an infestation or overpopulation of demodex; demodex reproduce at night on your skin (they live in hair follicles) and most evenings my eyebrows begin to itch about the time it’s getting dark. With needle-tipped tweezers, I can pull white cyndrically-shaped mucous-type material attached to a hair follicle. None of the practitioners have followed guidance from an article on the NIH website for ensuring there is a skin scraping or other method to obtain a demodex count. None has acknowledged the damaging effects on self image that abound in the literature for rosacea, with which demodex is associated. This post is in no way to disparage dermatologists in general, but I clearly don’t fit the mold of the repetitive frequently seen five minute visits to which they may be accustomed. Has anyone experienced an overpopulation of demodex? How was it diagnosed and treated? Thank you.

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Hi @medical1question and welcome. I can imagine that ongoing symptoms with no relief is quite frustrating.

I am inviting @gottab, @ainsleigh, and @markopolo who have mentioned Demodex here on Connect.

– Human Demodex Mite: The Versatile Mite of Dermatological Importance https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3884930/#!po=0.877193

Are you immunocompromised in any other way?

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@amandaa

Hi @medical1question and welcome. I can imagine that ongoing symptoms with no relief is quite frustrating.

I am inviting @gottab, @ainsleigh, and @markopolo who have mentioned Demodex here on Connect.

– Human Demodex Mite: The Versatile Mite of Dermatological Importance https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3884930/#!po=0.877193

Are you immunocompromised in any other way?

Jump to this post

Thank you, Amanda. I’ve read this abstract, and it’s a good one. No, I’m not immunocom-
promised to my knowledge. I’ve had two ANA that have come back negative for Lupus; however, my daughter was diagnosed with Lupus about a year ago.

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