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Hypertrophic Cardiomyopathy (HCM) Support Group

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Discussion
Why Camzyos instead of surgery?
I am just curious - once HOCM is diagnosed, why is Camzyos recommended instead of other treatments - like myectomy? (is that what once treated...
Last active: Jan 16, 2025
Discussion
Effects after stopping Camzyos
Has anyone taken Camzyos for months then stopped? Did you experience any effects of stopping it suddenly. I just stopped it last week and am...
Last active: Feb 18 7:40am
Discussion
Anyone have slow results on Camzyos?
Hello, I’m a 48 year old female newly diagnosed with OHCM just over 6 months ago. On Camzyos for 18 weeks now. Mostly 5mg but...
Last active: 5 days ago
Discussion
UTI after starting Camzyos?
I have only in my life had a UTI once 40 years ago, as soon as I started Camzyos I got a UTI... coincidence?
Last active: Dec 18, 2025
Discussion
Is Camzyos used for nonobstructive HCM?
I am taking Entresto for nonobstructive HCM, but its benefits/effects are rather subtle.... and I don't notice any side effects. However, it's expensive (along with...
Last active: Nov 8, 2024
Discussion
Storing Camzyos in a tropical country
I expect to travel to a tropical country in the next few weeks and wondering how best to store the Camzyos tablets. Read somewhere that...
Last active: Feb 15, 2024
Discussion
On Camzyos with new pericardial effusion.
I have been on Camzyos since Oct 2023 with decent results and a normal gradient after starting. I have been significantly more short of breath...
Last active: Jun 13, 2025
Discussion
Side Effects starting on Camzyos
Just starting 5mg. First day I got really woozy an hour after, stayed in and out of that for maybe 4-5 hours, but evening felt...
Last active: Jan 8 12:58pm
Discussion
Side Effects of Mavacamten (Camzyos)
I was on Mavacamten (Camzyos) for 6 months. It immediately triggered Burning Mouth Syndrome, Chronic Lingual Papilitis, and a metal taste in my mouth. I...
Last active: Sep 2, 2025
Discussion
Camzyos treatment location / expertise?
Hi, I’m recently diagnosed with O HCM this summer, and I think like everybody recently diagnosed I’m anxious and a little bit worried about the...
Last active: Sep 8, 2025