Hypertrophic Cardiomyopathy (HCM) Support Group

I am just curious - once HOCM is diagnosed, why is Camzyos recommended instead of other treatments - like myectomy? (is that what once treated...

Has anyone taken Camzyos for months then stopped? Did you experience any effects of stopping it suddenly. I just stopped it last week and am...

Hello, I’m a 48 year old female newly diagnosed with OHCM just over 6 months ago. On Camzyos for 18 weeks now. Mostly 5mg but...

I have only in my life had a UTI once 40 years ago, as soon as I started Camzyos I got a UTI... coincidence?

I am taking Entresto for nonobstructive HCM, but its benefits/effects are rather subtle.... and I don't notice any side effects. However, it's expensive (along with...

I expect to travel to a tropical country in the next few weeks and wondering how best to store the Camzyos tablets. Read somewhere that...

I have been on Camzyos since Oct 2023 with decent results and a normal gradient after starting. I have been significantly more short of breath...

Just starting 5mg. First day I got really woozy an hour after, stayed in and out of that for maybe 4-5 hours, but evening felt...

I was on Mavacamten (Camzyos) for 6 months. It immediately triggered Burning Mouth Syndrome, Chronic Lingual Papilitis, and a metal taste in my mouth. I...

Hi, I’m recently diagnosed with O HCM this summer, and I think like everybody recently diagnosed I’m anxious and a little bit worried about the...