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Side Effects of Mavacamten

Posted by deanna529 @deanna529, Nov 16 10:38am

I was on Mavacamten (Camzyos) for 6 months. It immediately triggered Burning Mouth Syndrome, Chronic Lingual Papilitis, and a metal taste in my mouth. I have never had this before. I had to stop the drug because this was worse than HOCM. Quality of life was awful. I couldn't taste anything. Reported it to Bristol Meyers Squib. It had only been on the market for 1 1/2 years when I tried it. At least it is documented.
Has anyone had any bad side effects on Mavacamten?

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Mentor
Debra, Volunteer Mentor | @karukgirl | Nov 17 10:17am

That is so terrible @deanna529! I can't imagine. Have things gotten better for you?

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