Hypertrophic Cardiomyopathy (HCM) Support Group

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@dconner Hello, again, @dconner! I see you posted here as well as in the "Introduce Yourself"...

https://connect.mayoclinic.org/comment/1565342/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 3 8:33am

Thanks everyone for sharing your personal experiences with Camzyos. I am still waiting to get started...

https://connect.mayoclinic.org/comment/1577649/

Discussion: typical side effect for Camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: 6 days ago

I’m absolutely fine. I didn’t stop the Camzyos when I took Legevrio. And it all worked...

https://connect.mayoclinic.org/comment/1355889/

Discussion: Is it safe to stop Csmzyos for 6 days?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 25, 2025

salve a tutti da l'Italia, prendo camzyos 2.5mg da 28 giorni sembra che funziona molto bene...

https://connect.mayoclinic.org/comment/1568987/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 7 11:16am

Hmmm Interesting...I was told Omeprizole was a NO with Camzyos!? They prescribed me Pantoprazole instead! I...

https://connect.mayoclinic.org/comment/1218221/

Discussion: I take 5mg Camzyos in the morning.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 21, 2025

I was on Camzyos for 1yr & 8mths. I was on 10mg the last 4mths before...

https://connect.mayoclinic.org/comment/1472233/

Discussion: HCM and Dizziness

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 1 1:44pm

@linda421 Have positive thoughts on that and it will work for you. That happened to me...

https://connect.mayoclinic.org/comment/1578857/

Discussion: Clinical trial

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: 4 days ago

I just started Camzyos on Medicare part D approved coverage only because my Cardiologyst office did...

https://connect.mayoclinic.org/comment/1370280/

Discussion: Cost of Camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 14, 2025

Please contact your Cardiologist who prescribed you CAMZYOS right now and do not waist your time...

https://connect.mayoclinic.org/comment/1534351/

Discussion: Symptoms getting worse on Camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 24 11:38am

We are all on the precipice of needing heart surgery. Camzyos is just delaying it. I...

https://connect.mayoclinic.org/comment/1302172/

Discussion: Camzyos improved my gradient but my symptoms are not better

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 12, 2025

I am on Camzyos and decided to have surgery later this month. Mayo Clinic said to...

https://connect.mayoclinic.org/comment/960444/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 7, 2023

@memphis901, welcome. Here is a good discussion to help you connect with other member starting Camzyos:...

https://connect.mayoclinic.org/comment/1406267/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Oct 1, 2025

I had alcohol septal ablation, I'm not on Camzyos. Alcohol septal ablation surgery was uncomfortable but...

https://connect.mayoclinic.org/comment/1573583/

Discussion: Anyone have slow results on Camzyos?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 13 8:15am

It did provide much relief BUT the side effects of Camzyos (dizziness, head spinning, feeling sluggish)...

https://connect.mayoclinic.org/comment/960506/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 7, 2023

https://connect.mayoclinic.org/discussion/camzyos-mavacamten-prescription/ https://www.camzyos.com Hello @mcgu, and welcome to Mayo Connect. It looks like this is your first...

https://connect.mayoclinic.org/comment/1190265/

Discussion: Side Effects of Mavacamten (Camzyos)

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Dec 14, 2024

Please find a Cardiologist specialized in HOCM (Hypertrophic Obstructive Cardiomiopathy) that is "Camzyos certified" and talk...

https://connect.mayoclinic.org/comment/1183428/

Discussion: Post septal myectomy

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Dec 2, 2024

https://connect.mayoclinic.org/discussion/camzyos-mavacamten-prescription/ Hi Mark @flyman437, it looks like this is your first time posting, so welcome aboard...

https://connect.mayoclinic.org/comment/1103836/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 11, 2024

So happy to hear that you’ve had such an immediate and positive result with Camzyos. My...

https://connect.mayoclinic.org/comment/1014294/

Discussion: HOCM & VFib amiodarone, sotalol,camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Feb 12, 2024

I am on 10mg Camzyos started in jan 2026 but I also take Ambien 5 mg...

https://connect.mayoclinic.org/comment/1546966/

Discussion: Camzyos and insomnia.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 10 7:38am

@hougoss He did recommend Camzyos but my insurance ( Medicare) denied it.

https://connect.mayoclinic.org/comment/1516916/

Discussion: Just Diagnosed with HCOM

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 1 6:35am

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