The Loneliness

Posted by Gratia @gratia, 3 days ago

How do you manage the profoundly lonely moments as a caregiver for your loved one with dementia? I’m a person who absolutely enjoys and needs a lot of “alone time”, however this situation somehow makes me feel much more lonely. And sad. Very sad. It’s probably the limited and circular conversations coupled with the loss of social life and work.
Thank you for listening.
❤️

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Profile picture for hikingcaver @hikingcaver

@labrown I was a hs teacher for 30 years. Loved my students and faculty and constant interactions. Now having my wife unable to have a conversation, combined with the‘friends’ who can’t be here for me - ISOLATION, is tough for me. Yes a couple friends are wonderful but not the same.

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@hikingcaver Thank you for your response. Yes, you do understand. Weekends are especially hard.

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Profile picture for kjc48 @kjc48

@gratia I go back and forth through these threads as they give me hope and daily clarity. The loneliness we describe and how to get through it. I think of the poem, "Footprints." I remember giving my mother the poem (in a wall plaque) when she died only to somehow realize I either misplaced or threw it out accidentally at some point. Two days ago, a small book marker fell out of of one of my books and my husband found it on the floor (and somehow knew not to throw it away). It was "footprints". I think how we get through the day's loneliness is by recognizing that God carries. That one set of footprints is the Lord's reply: I love you and I would never leave you. During your times of trial and suffering, when you see only one set of footprints, it was then that I carried you." Best, Karla

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@kjc48 You are right Karla. I was feeling a bit over whelmed this morning thinking I just can't manage this place of ours (house and eight acres) by myself. It's just too much. The Lord quickly tapped me on the shoulder before I totally broke down and reminded me I wasn't doing it by myself, he is right there with me. I have always loved the "Footprints" poem. Thank you for reminding me of it.

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My mother died of cancer and I had given her that poem. Somehow, in all the paperwork, I must have thrown it out. And I was devastated. I couldn't believe when my husband found it, put it on the top of the dining room table. Didn't throw it out yet never told me he found it. Like a good omen, there it was the little bookmarker on the table. To remind me, of the Lord's presence in all we do. Funny, how God works, when you don't think anyone is there? A house and 8 acres, oh my......I do hope you have help with that house and all that acreage, I'm assuming it's not all grass to mow! I'm in 8 storage facilities, stuff crammed everywhere because I had to move out of my house due to mold. All of that stuff, I don't know what to do with. The kids don't want it. It's too much to clean out. I don't have 8 acres, but I do have 8 storage facilities. One day at a time. That's all we can do. This week I'm going into the storage to see what I can finally part with. It's time. Best, Karla

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We are doing it because, as others have said, "We are doing the Lord's work." So many of you do it all the time, with joy, devotion and humility. Thanks for showing the way.

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Profile picture for kjc48 @kjc48

@gratia I go back and forth through these threads as they give me hope and daily clarity. The loneliness we describe and how to get through it. I think of the poem, "Footprints." I remember giving my mother the poem (in a wall plaque) when she died only to somehow realize I either misplaced or threw it out accidentally at some point. Two days ago, a small book marker fell out of of one of my books and my husband found it on the floor (and somehow knew not to throw it away). It was "footprints". I think how we get through the day's loneliness is by recognizing that God carries. That one set of footprints is the Lord's reply: I love you and I would never leave you. During your times of trial and suffering, when you see only one set of footprints, it was then that I carried you." Best, Karla

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@kjc48 Thank you for sharing this Karla. It’s reassuring to remember we are not completely alone. Sending peaceful and positive thoughts your way.🤗

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Profile picture for hikingcaver @hikingcaver

@labrown I was a hs teacher for 30 years. Loved my students and faculty and constant interactions. Now having my wife unable to have a conversation, combined with the‘friends’ who can’t be here for me - ISOLATION, is tough for me. Yes a couple friends are wonderful but not the same.

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@hikingcaver It’s a lonely walk but when crossing paths with others who on a similar journey, it’s a reminder that you are not alone. Sending positive uplifting energy your way.

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Profile picture for kjc48 @kjc48

@gratia I go back and forth through these threads as they give me hope and daily clarity. The loneliness we describe and how to get through it. I think of the poem, "Footprints." I remember giving my mother the poem (in a wall plaque) when she died only to somehow realize I either misplaced or threw it out accidentally at some point. Two days ago, a small book marker fell out of of one of my books and my husband found it on the floor (and somehow knew not to throw it away). It was "footprints". I think how we get through the day's loneliness is by recognizing that God carries. That one set of footprints is the Lord's reply: I love you and I would never leave you. During your times of trial and suffering, when you see only one set of footprints, it was then that I carried you." Best, Karla

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@kjc48

I echo what you said so well, Karla. When we are lonely, it's because we have momentarily lost our God connection. Especially as caregivers, we need to "walk the walk"--with every breathe. That's doesn't mean that we don't get lonely, or have meltdowns. We are only human.

Onward!

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Profile picture for Gratia @gratia

@hikingcaver It’s a lonely walk but when crossing paths with others who on a similar journey, it’s a reminder that you are not alone. Sending positive uplifting energy your way.

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@gratia Thank you

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Profile picture for georgescraftjr @georgescraftjr

@kjc48

I echo what you said so well, Karla. When we are lonely, it's because we have momentarily lost our God connection. Especially as caregivers, we need to "walk the walk"--with every breathe. That's doesn't mean that we don't get lonely, or have meltdowns. We are only human.

Onward!

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@georgescraftjr THANK YOU ALL. now i am looking for ways to diminish her fear and anxiety up her lexipro??
Going to contact dr tomorrow, and look into 2 different palliatve care people.. HUGS

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Profile picture for georgescraftjr @georgescraftjr

@kjc48

I echo what you said so well, Karla. When we are lonely, it's because we have momentarily lost our God connection. Especially as caregivers, we need to "walk the walk"--with every breathe. That's doesn't mean that we don't get lonely, or have meltdowns. We are only human.

Onward!

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@georgescraftjr

Oh dear. Sorry for all my typos.

P.S. ...and sorry for always using the word "typos" loosely--to include spelling errors, which I know are different from typos.

George's Wife (AKA @typoqueen)

P.S. I was being over-inclusive in echoing Karla. To clarify, I just wanted to thank her for the reminder of the "Lord's presence in all we do." That knowledge is empowering, and it lightens our burdens.

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