I'm Disappearing

Posted by judimahoney @judimahoney, Jul 19 10:07pm

The way my husband speaks now completely dismisses me, as if I don't exist.
Today he referred back to a concert that we went to together, saying "I went to his concert." I immediately followed with, "WE went to that concert together." I always try to get myself back in his world where I belong.
Sorry for the grammar talk, but he's most often using the first person tense, talking just about himself when the events included or include both of us.
I know the reason he is self-focused, however it is heart-wrenching nonetheless.
We share so much history together, now so much is lost.
Next month we'll celebrate our 40th anniversary. I no longer expect gifts, cards or any effort whatsoever (having learned over the years it's not on his radar screen).
I strive to remain relevant in my husband's life (and not just from a caregiver point of view), I just must.

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

@judimahoney your post really resonated with me today. My husband has been so self-focused, rude, unapologetic, demanding, and unappreciative lately that I am running low on patience and running at low-level constant annoyance. He has such arrogance and confidence when he speaks to me, as if I am the one who doesn’t know what is going on instead of him! “Sir, you can’t even manage to write a check anymore, so pardon me if I follow the financial advice of our advisor instead of you.” He can’t even make a plan to get to the bathroom in time to prevent an accident, but he tries to tell me what I should be planning and doing! He tells me he would like “dinner at 5:30” now. “Sir, you”ll get dinner when I am done making it and not before.” He sleeps until 5 or 6 pm everyday anyway! He has “memories” of things we did together, but he re-writes them in ways that aren’t really true. I don’t correct him, but it is hard to sit and listen to him especially when his misremembering is hurtful or leaves me out. I know it’s not his “fault” and that it’s the disease but tolerating this constantly is very difficult for me. I’m to the point where I really just don’t want to be around him if I can help it and try to just keep busy in another room (hard because he shadows), or do chores outside (he avoids any “work” like the plague) or just pray that he won’t talk. Lately I feel like I’m in an emotionally abusive relationship. It’s the only abusive relationship where it is not only socially acceptable to stay in it, but there is an expectation that you do so. I pray every day that this is a phase that will pass.🙏 And soon! I know others have written that I will miss him when he is gone and I am alone, but right now all I want is peace.

REPLY
Profile picture for kmliste @kmliste

@dianaml I hate this “crazy land” way of living too. Last night I made a new recipe from Bon Appetit magazine- a very simple pasta dish. He said, “what the hell is this!!!?” Our son was there and said “I think it is good!” I too, hate the meanness and “in your face” stuff. I didn’t say a word to him. wasn’t worth it.

Jump to this post

@kmliste
Yes, I've had similar scenarios occur. I'm so sorry. What a drag right?

REPLY
Profile picture for mm180 @mm180

@judimahoney your post really resonated with me today. My husband has been so self-focused, rude, unapologetic, demanding, and unappreciative lately that I am running low on patience and running at low-level constant annoyance. He has such arrogance and confidence when he speaks to me, as if I am the one who doesn’t know what is going on instead of him! “Sir, you can’t even manage to write a check anymore, so pardon me if I follow the financial advice of our advisor instead of you.” He can’t even make a plan to get to the bathroom in time to prevent an accident, but he tries to tell me what I should be planning and doing! He tells me he would like “dinner at 5:30” now. “Sir, you”ll get dinner when I am done making it and not before.” He sleeps until 5 or 6 pm everyday anyway! He has “memories” of things we did together, but he re-writes them in ways that aren’t really true. I don’t correct him, but it is hard to sit and listen to him especially when his misremembering is hurtful or leaves me out. I know it’s not his “fault” and that it’s the disease but tolerating this constantly is very difficult for me. I’m to the point where I really just don’t want to be around him if I can help it and try to just keep busy in another room (hard because he shadows), or do chores outside (he avoids any “work” like the plague) or just pray that he won’t talk. Lately I feel like I’m in an emotionally abusive relationship. It’s the only abusive relationship where it is not only socially acceptable to stay in it, but there is an expectation that you do so. I pray every day that this is a phase that will pass.🙏 And soon! I know others have written that I will miss him when he is gone and I am alone, but right now all I want is peace.

Jump to this post

@mm180
It's hard not to feel resentful when they avoid work like the plague (especially when it seems they are perfectly capable of helping).
I'm so sorry about the constant demands and attitude you are dealing with (thankfully my husband is not manifesting like that).
We can only hope these challenging phases pass, but then what?
All the best to you. 🌺

REPLY
Profile picture for dianaml @dianaml

@kmliste
Yes, I've had similar scenarios occur. I'm so sorry. What a drag right?

Jump to this post

@dianaml
Right! It is a drag. He is out playing golf today. He’ll come home later and complain about one guy in their foursome. I won’t deal with that until later….. 🙂 Meanwhile I have some time by myself. I will be working around here but I won’t have to see or listen to the “sniper.” He is still quite sharp however his personality has changed. My beloved dog died late last year so I feel I can leave the house now. (he previously started 3 fires).I don’t want him to burn down the house of course but at least the dog won’t be hurt. Am I beginning to sound like a country song?
I was trying to explain MCI to a friend I know thru church. I know she loves and cares about me but she doesn’t understand. I don’t think many people do understand.My understanding of MCI is that it may move thru stages but it doesn’t always mean Alzheimer’s Disease. Meanwhile she and I go eat together and have fun.
I keep about book not of “wrongs” but incidences to share with my doctor and with his if need be. Looking back some of them seem comical but at the time they aren’t because of the insistence that it really happened, the anger or somehow I did it. For example, the time he saw that the gas in his vehicle was low. In his mind someone had siphoned the gas out. He insisted I call the Chief of Police. He keeps copious records (he was a chief financial officer of a corporation). A few days later he showed me a spreadsheet of his gas usage in this vehicle and decided he had driven up the gas. Or when he found a large fast food drink cup with other trash in it tossed in the bed of his truck. He yelled and yelled at me, “Why did you do that !!!!!!!What is wrong with you!!!!!!” When his tirade at me was over I asked him to consider that maybe when he was parked somewhere some rude person did that rather than mess up his/her own vehicle. He walked off. Not all days are like this but I am disappearing. I used to be funny and took care of myself. Now…..I just feel like I look 200 years old. Thank you so much for listening. My tears have started to flow and it is a great release.

REPLY

Its not clear to me if your husband has dementia. I assume he does, and if that is the case, anything he says is subject to distortion. But trying to “correct” such a person is bound to fail. Better to not take comments that seem unkind as personal.

REPLY
Profile picture for kmliste @kmliste

@dianaml
Right! It is a drag. He is out playing golf today. He’ll come home later and complain about one guy in their foursome. I won’t deal with that until later….. 🙂 Meanwhile I have some time by myself. I will be working around here but I won’t have to see or listen to the “sniper.” He is still quite sharp however his personality has changed. My beloved dog died late last year so I feel I can leave the house now. (he previously started 3 fires).I don’t want him to burn down the house of course but at least the dog won’t be hurt. Am I beginning to sound like a country song?
I was trying to explain MCI to a friend I know thru church. I know she loves and cares about me but she doesn’t understand. I don’t think many people do understand.My understanding of MCI is that it may move thru stages but it doesn’t always mean Alzheimer’s Disease. Meanwhile she and I go eat together and have fun.
I keep about book not of “wrongs” but incidences to share with my doctor and with his if need be. Looking back some of them seem comical but at the time they aren’t because of the insistence that it really happened, the anger or somehow I did it. For example, the time he saw that the gas in his vehicle was low. In his mind someone had siphoned the gas out. He insisted I call the Chief of Police. He keeps copious records (he was a chief financial officer of a corporation). A few days later he showed me a spreadsheet of his gas usage in this vehicle and decided he had driven up the gas. Or when he found a large fast food drink cup with other trash in it tossed in the bed of his truck. He yelled and yelled at me, “Why did you do that !!!!!!!What is wrong with you!!!!!!” When his tirade at me was over I asked him to consider that maybe when he was parked somewhere some rude person did that rather than mess up his/her own vehicle. He walked off. Not all days are like this but I am disappearing. I used to be funny and took care of myself. Now…..I just feel like I look 200 years old. Thank you so much for listening. My tears have started to flow and it is a great release.

Jump to this post

@kmliste
Wow! I so get that.. the stories are different but they overview is certainly the same. Irritability, everything is your fault, paranoia, no trust. I think sometimes we have to remember what it must be like for them. But then I don't know if they really get it themselves. They certainly can't remember certain things the way we do. It feels mysterious at times doesn't it?

REPLY
Profile picture for cyds @cyds

@cyds Correction - married for 17 years, not 1.

Jump to this post

@cyds had to smile at your post, as a caregiver to a wife of 53 years with Alzheimer’s sometimes one year feels like 17… thanks

REPLY
Profile picture for tsch @tsch

Its not clear to me if your husband has dementia. I assume he does, and if that is the case, anything he says is subject to distortion. But trying to “correct” such a person is bound to fail. Better to not take comments that seem unkind as personal.

Jump to this post

@tsch
Do you understand about MCI ?

REPLY
Profile picture for dianaml @dianaml

@kmliste
Wow! I so get that.. the stories are different but they overview is certainly the same. Irritability, everything is your fault, paranoia, no trust. I think sometimes we have to remember what it must be like for them. But then I don't know if they really get it themselves. They certainly can't remember certain things the way we do. It feels mysterious at times doesn't it?

Jump to this post

@dianaml

I just wrote a lengthy response and lost it.

i do think YOU understand.

REPLY
Profile picture for kmliste @kmliste

@tsch
Do you understand about MCI ?

Jump to this post

@tsch
I just felt I should add something. My dog loved him, too. She was older when she got sick. She knew him when he was well and himself. He was being mean to me one evening and she went down low and growled at him. Even she knew there was a change. He left me alone/stopped his behavior at that point.
he does not abuse drugs or alcohol. Never has. I do not think that he is misdiagnosed.

REPLY
Please sign in or register to post a reply.