I'm Disappearing
The way my husband speaks now completely dismisses me, as if I don't exist.
Today he referred back to a concert that we went to together, saying "I went to his concert." I immediately followed with, "WE went to that concert together." I always try to get myself back in his world where I belong.
Sorry for the grammar talk, but he's most often using the first person tense, talking just about himself when the events included or include both of us.
I know the reason he is self-focused, however it is heart-wrenching nonetheless.
We share so much history together, now so much is lost.
Next month we'll celebrate our 40th anniversary. I no longer expect gifts, cards or any effort whatsoever (having learned over the years it's not on his radar screen).
I strive to remain relevant in my husband's life (and not just from a caregiver point of view), I just must.
Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.
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@dianaml Very much so.
@kmliste
I absolutely do, and I also understand people can have bad marriages that may seem worse when a spouse has MCI. In each case, the “well” spouse needs to find a way to be able to change themselves to be able to cope as they will not be able to change the person with MCI. Caregivers need breaks and outside help always.
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6 Reactions@kmliste
Please take care of yourself. It sounds to me like you have alot to deal with. I hope you/he has a good doc or other support system to help with changes that are happening to him and that affect you as well.
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3 Reactions@tsch
It has been a good and long marriage. He is ill. I know that.
I know I will not change him. That is why I don’t respond in anger to him.
I usually don’t respond when I know he is being unreasonable ans not thinking clearly.
In your opinion do you think i should not vent with others who have walked this path too?
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1 Reaction@kmliste
Venting is absolutely necessary. Beyond venting, I would suggest trying to find other ways as well to make your life less stressful. Some states have respite programs and/or other types of assistance for situations like yours. Dementia is a terrible condition, and often the caregiver’s health suffers more than the person with dementia. As I said, do whatever you can to take care of yourself.
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6 Reactions@kmliste I am sure it was very good. I am hugging you. I know about hurt.
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3 Reactions@dederickve
I know it is this stage of his illness. Still it sometimes is emotionally tiring. I miss the sweet fellow I knew. Thanks for the hug. I appreciate it.
Just the way it is sometimes now
BTW my son said, “ This is a keeper, Mom."
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5 Reactions@kmliste
I see you. 🫂
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4 ReactionsHi Judi and group.
I'm at 42 years marriage and experienced lots of self loss while having long term memory friends of my husband come visit last week.
He reveled in old stories and relationships. They were great with him but I often wanted to leave the room, feeling very much on the outside.
My mantra is "try to give him a good send off while and with whom he's cognizant". It can hurt. It is a sacrifice. Getting through each day...
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7 ReactionsGood ! Fix it again, sometime. He may surprise you, and think it is great !
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2 Reactions