I'm Disappearing

Posted by judimahoney @judimahoney, Jul 19 10:07pm

The way my husband speaks now completely dismisses me, as if I don't exist.
Today he referred back to a concert that we went to together, saying "I went to his concert." I immediately followed with, "WE went to that concert together." I always try to get myself back in his world where I belong.
Sorry for the grammar talk, but he's most often using the first person tense, talking just about himself when the events included or include both of us.
I know the reason he is self-focused, however it is heart-wrenching nonetheless.
We share so much history together, now so much is lost.
Next month we'll celebrate our 40th anniversary. I no longer expect gifts, cards or any effort whatsoever (having learned over the years it's not on his radar screen).
I strive to remain relevant in my husband's life (and not just from a caregiver point of view), I just must.

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

Profile picture for dianaml @dianaml

@kmliste
Wow! I so get that.. the stories are different but they overview is certainly the same. Irritability, everything is your fault, paranoia, no trust. I think sometimes we have to remember what it must be like for them. But then I don't know if they really get it themselves. They certainly can't remember certain things the way we do. It feels mysterious at times doesn't it?

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@dianaml Very much so.

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@tsch
Do you understand about MCI ?

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@kmliste
I absolutely do, and I also understand people can have bad marriages that may seem worse when a spouse has MCI. In each case, the “well” spouse needs to find a way to be able to change themselves to be able to cope as they will not be able to change the person with MCI. Caregivers need breaks and outside help always.

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@kmliste
Please take care of yourself. It sounds to me like you have alot to deal with. I hope you/he has a good doc or other support system to help with changes that are happening to him and that affect you as well.

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@tsch
It has been a good and long marriage. He is ill. I know that.
I know I will not change him. That is why I don’t respond in anger to him.
I usually don’t respond when I know he is being unreasonable ans not thinking clearly.

In your opinion do you think i should not vent with others who have walked this path too?

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Profile picture for kmliste @kmliste

@tsch
It has been a good and long marriage. He is ill. I know that.
I know I will not change him. That is why I don’t respond in anger to him.
I usually don’t respond when I know he is being unreasonable ans not thinking clearly.

In your opinion do you think i should not vent with others who have walked this path too?

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@kmliste
Venting is absolutely necessary. Beyond venting, I would suggest trying to find other ways as well to make your life less stressful. Some states have respite programs and/or other types of assistance for situations like yours. Dementia is a terrible condition, and often the caregiver’s health suffers more than the person with dementia. As I said, do whatever you can to take care of yourself.

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Profile picture for kmliste @kmliste

@dianaml I hate this “crazy land” way of living too. Last night I made a new recipe from Bon Appetit magazine- a very simple pasta dish. He said, “what the hell is this!!!?” Our son was there and said “I think it is good!” I too, hate the meanness and “in your face” stuff. I didn’t say a word to him. wasn’t worth it.

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@kmliste I am sure it was very good. I am hugging you. I know about hurt.

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Profile picture for dederickve @dederickve

@kmliste I am sure it was very good. I am hugging you. I know about hurt.

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@dederickve
I know it is this stage of his illness. Still it sometimes is emotionally tiring. I miss the sweet fellow I knew. Thanks for the hug. I appreciate it.
Just the way it is sometimes now

BTW my son said, “ This is a keeper, Mom."

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Profile picture for kmliste @kmliste

@dianaml
Right! It is a drag. He is out playing golf today. He’ll come home later and complain about one guy in their foursome. I won’t deal with that until later….. 🙂 Meanwhile I have some time by myself. I will be working around here but I won’t have to see or listen to the “sniper.” He is still quite sharp however his personality has changed. My beloved dog died late last year so I feel I can leave the house now. (he previously started 3 fires).I don’t want him to burn down the house of course but at least the dog won’t be hurt. Am I beginning to sound like a country song?
I was trying to explain MCI to a friend I know thru church. I know she loves and cares about me but she doesn’t understand. I don’t think many people do understand.My understanding of MCI is that it may move thru stages but it doesn’t always mean Alzheimer’s Disease. Meanwhile she and I go eat together and have fun.
I keep about book not of “wrongs” but incidences to share with my doctor and with his if need be. Looking back some of them seem comical but at the time they aren’t because of the insistence that it really happened, the anger or somehow I did it. For example, the time he saw that the gas in his vehicle was low. In his mind someone had siphoned the gas out. He insisted I call the Chief of Police. He keeps copious records (he was a chief financial officer of a corporation). A few days later he showed me a spreadsheet of his gas usage in this vehicle and decided he had driven up the gas. Or when he found a large fast food drink cup with other trash in it tossed in the bed of his truck. He yelled and yelled at me, “Why did you do that !!!!!!!What is wrong with you!!!!!!” When his tirade at me was over I asked him to consider that maybe when he was parked somewhere some rude person did that rather than mess up his/her own vehicle. He walked off. Not all days are like this but I am disappearing. I used to be funny and took care of myself. Now…..I just feel like I look 200 years old. Thank you so much for listening. My tears have started to flow and it is a great release.

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@kmliste
I see you. 🫂

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Hi Judi and group.
I'm at 42 years marriage and experienced lots of self loss while having long term memory friends of my husband come visit last week.
He reveled in old stories and relationships. They were great with him but I often wanted to leave the room, feeling very much on the outside.
My mantra is "try to give him a good send off while and with whom he's cognizant". It can hurt. It is a sacrifice. Getting through each day...

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Profile picture for kmliste @kmliste

@dederickve
I know it is this stage of his illness. Still it sometimes is emotionally tiring. I miss the sweet fellow I knew. Thanks for the hug. I appreciate it.
Just the way it is sometimes now

BTW my son said, “ This is a keeper, Mom."

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Good ! Fix it again, sometime. He may surprise you, and think it is great !

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