I'm a parent of an adult child, recently diagnosed with astrocytoma
Due to privacy concerns, I will keep this as anonymous as possible. I have a child in early thirties who was recently diagnosed with a grade 2 astrocytoma. There is reluctance to seek a second opinion from Mayo (or any other world-renowned facility). I am a nurse and feel that it’s very important. I don’t know that current doctor is not good; I just feel like with something this serious, there needs to be more than one set of eyes and one brain. If I can talk my child into it, what is the cost of a second opinion –based on medical records — at Mayo? I have done some internet research and some of it seems very hopeless. I don’t want to take a chance of alienating my child if a second opinion wouldn’t even do any good. Advice, please? I will fight as hard as I have to (and risk him getting mad at me) as long as I know it’s not futile. Genetics show that the tumor is IDH mutant positive but missing the 1p19q chromosome co-deletion which, as I understand it, worsens the prognosis.