Anyone have Schwannomatosis? (Neurofibromatosis type 1 (NF1)
Would anyone like to share their experiences with Schwannomatosis? I run, walk, bike, and snowshoe race with the NF Endurance Team and the Children's Tumor Foundation to bring awareness and advocacy for Neurofibromatosis and Schwannomatosis. I'm passionate in my hope for a cure for NF. I'm a patient at the Mayo Clinic in Rochester, too.