Anyone with Delayed Sleep Phase have a Pineal cyst?
Hi. I'm new to the group and was reading about other folks with Delayed Sleep Phase disorder. I have had this issue for about 35 years, and although I have been on sleep meds, I was not officially diagnosed till last year. I was diagnosed back in the 1980s with a Pineal Cyst, and for YEARS asked all my sleep providers if it could be related to my sleep issues (the pineal gland is where melatonin is produced). I am finally seeing a sleep psychologist who is assisting me in addressing it. I'm not too hopeful after reading everyone's posts. Wondering if anyone with Delayed sleep phase also happens to have a Pineal cyst or if anyone has any info about the relationship between the two which could affect treatment.
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Hello,
I have also been diagnosed with DSPS since the 90's. I do not have a Pineal cyst but I have also been seeing a Sleep Therapy psychiatrist for the past year. I have had numerous previous attempts at various sleep meds but they all have backfired on me throughout the years. One after another they have made me worse than I was. Is there anything that you have found successful?
@mikamouse Over the years I have been on numerous sleep meds all of which eventually didn't work. I had been on sonata, gabepentin and mirtazapine for years and just last year weaned from all of them with the help of this sleep psychologist only to discover they hadn't really been helping- the amount of sleep I was/am getting ( 5hrs a nite pretty consistently)and the fact that I still can't fall asleep till 2AM being off the meds means I was basically taking them for nothing. I just did another DLMO (Dim Light Melatonin onset) assay which will hopefully assist the psychologist in determining a new treatment plan for me but her next available appointment is Oct 14th so I have nothing to tell you about any successful treatment for me. I know after the first test she said my normal sleep onset time is likely about 4am, This second test is to determine a more exact time. She had indicated before the test that after she got the results, she would recommend me going to sleep at the time the test determined as my normal sleep time for about a week- so for a week I would go to bed at 4am if that was the time the test indicated, and sleep so I could see what it felt like. Then she would back up my sleep time in increments and upon awakening use light therapy to shut down the melatonin. I have read in this support group from others with Sleep delay that light therapy didn't help so thats why I posted this question. I will be sure to get back to this group after I see her in Oct to share the plan but am sure it will take quite some time to determine if her plan works for me. Have you tried anything beyond meds? What has your psychiatrist recommended? Thanks for responding. Maybe we may get others who have tried things more recently than the last posts to respond and share. Hope we can reconnect after I know/try more.
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