I dropped out for awhile

Posted by diverdown1 @diverdown1, 3 days ago

I stopped commenting and reading for awhile. I have been in a real funk. It seems like everywhere I turn, the other shoe is dropping. I am still dealing with LC. I am so tired of it. I wake up everyday with fatigue and malaise. I have tinnitus, my feet and joints hurt most days, although not everyday. I believe that the depression comes from being so isolated. People do not understand, at least in my circle. I went from working a full time job, graduate school (online) and AA meetings daily to staying in my house. I am graduating in August, hopefully and I wonder how the hell I will function. I am hoping to get a remote position. I absolutely hate this virus. I will say that I received a reply from someone on a post I made awhile back. Thank you, you know who you are. It brought me back here...to you all, that understand. I am grateful. It has lifted my mood.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

Profile picture for klf58 @klf58

@diverdown1 I'm sorry to hear of your trauma history. I have cptsd (diagnosed years before I got covid) and I will say that my mental health has declined since I got covid 6 years ago due to depression over not being able to live and work the way I used to. Everything is a struggle. Please know that you have support here. It's amazing that you're still working on your degree. I'm still working to keep my insurance. I wish I could retire early, but that is not financially feasible. You have endured a lot, so give yourself some grace and compassion for still showing up and for pursuing a degree that will help others. I, too, am in the helping profession with a specialty in trauma-informed care, so I can relate in many ways to your struggles. Take gentle care of yourself. I've got movers coming on Friday and I'm only able to pack a couple boxes at a time. Fortunately I have an understanding spouse, but I do fear that he is going to get tired of dealing with my long covid and mental health issues. I do suspect that for those of us with trauma history and mental health issues covid certainly has exacerbated them, at least for me. I recently filled out my Johns Hopkins long covid study survey (in the hopes that research will help others someday, even though I think it's too late for me) and that always depresses me to see how in 6 years I have not improved and doubt I ever will at this point. Hang in there Sadly, there are many of us who empathize and understand the ravages of this illness.

Jump to this post

@klf58 Good luck with the move. I also moved back into my house after my partner passed. It is full of good and bad memories, however I am grateful that I have a place to live. Is the Johns Hopkins survey for anyone with long COVID or is it only for clients. I am not sure I have improved or if I have assimilated to how this feels. I know that recently my mood is shitty but I also have other major things happening in my life, I know others do as well. I freak out due to my age. I should be retiring at this point, however, now I also owe on student loans. I try to just do what I can today. My clinical field placement is aware of my health issues. I am not sure they believe it, but the students with disabilities every semester, sends ADA accommodations to my Professors and I am also transparent with my Professors. I started this journey before I got sick, and they have all been very kind with everything that has occurred. Thank you for the reply. I know moving is the worst. Hang in there.

REPLY
Profile picture for lkirnbauer @lkirnbauer

I’m sorry you’re suffering with LC. I too suffer from Long Covid and when I say suffer, I lost my taste and smell in December of 2022 when I caught Covid and it’s still not back. I also had several other symptoms of Long Covid that have dissipated like horrible body tremors, stuttering, bad headaches, fatigue, heart palpitations and loss of taste and smell. To help with body tremors, I had 7 Stellate Ganglion Block injections over a period of time. The 7th one took my body tremors way down and I only experience them if I am stressed or anxious. I’m hoping my taste/smell will return because existing like this is quite dull. I may be leaving the Group for a while as well, it can be depressing and I have enough of that on my own!

Jump to this post

@lkirnbauer I can relate to the taste and smell factor. I also lost mine in the beginning. It has returned, although sometimes I am unable to feel temperature. This virus seems to just cycle through every function of the body. It is so weird. It mimics other autoimmune diseases. I hope that you do not leave the group. I did and I feel better having come back. Hang in there.

REPLY
Profile picture for diverdown1 @diverdown1

@shmerdloff This was in one of my daily readings this morning. Thought of you.

When we are no longer able to change a situation- we are challenged to change ourselves.
~ Viktor E. Frankl

Jump to this post

🙂

REPLY
Profile picture for diverdown1 @diverdown1

@klf58 Good luck with the move. I also moved back into my house after my partner passed. It is full of good and bad memories, however I am grateful that I have a place to live. Is the Johns Hopkins survey for anyone with long COVID or is it only for clients. I am not sure I have improved or if I have assimilated to how this feels. I know that recently my mood is shitty but I also have other major things happening in my life, I know others do as well. I freak out due to my age. I should be retiring at this point, however, now I also owe on student loans. I try to just do what I can today. My clinical field placement is aware of my health issues. I am not sure they believe it, but the students with disabilities every semester, sends ADA accommodations to my Professors and I am also transparent with my Professors. I started this journey before I got sick, and they have all been very kind with everything that has occurred. Thank you for the reply. I know moving is the worst. Hang in there.

Jump to this post

@diverdown1 I am not a client; I just fill the survey out every however months they resend;
Johns Hopkins COVID Long Study https://share.google/Qt4eAqW7Hb5Gyir88

REPLY
Profile picture for diverdown1 @diverdown1

@klf58 Good luck with the move. I also moved back into my house after my partner passed. It is full of good and bad memories, however I am grateful that I have a place to live. Is the Johns Hopkins survey for anyone with long COVID or is it only for clients. I am not sure I have improved or if I have assimilated to how this feels. I know that recently my mood is shitty but I also have other major things happening in my life, I know others do as well. I freak out due to my age. I should be retiring at this point, however, now I also owe on student loans. I try to just do what I can today. My clinical field placement is aware of my health issues. I am not sure they believe it, but the students with disabilities every semester, sends ADA accommodations to my Professors and I am also transparent with my Professors. I started this journey before I got sick, and they have all been very kind with everything that has occurred. Thank you for the reply. I know moving is the worst. Hang in there.

Jump to this post

@diverdown1
Thank you for your support I have just packed three boxes and have had to lie down. I get so angry that I don't have the stamina I used to, but then anger saps my energy even more. It must be hard to be back in the place where your partner passed. I really admire your bravery and tenacity in the face of adversity! I'm glad your program is accommodating. When I filled out my employment enrollment forms I did cite disability in case I do need accommodations. I am a workaholic, which I only recently learned is a trauma response, but I can't continue to push myself the way I always have pre-covid. My therapist says I am burnt out. No kidding!

REPLY
Profile picture for diverdown1 @diverdown1

@shmerdloff Thank you for that. I agree with some of what you said. Happiness is not a place, or a goal or a "hey, I am now happy." It is a spectrum, a journey. moments in time. If you ascribe to Eastern thought, it is the present moment. Also, I love your question about "the Pursuit of Happiness," and as you said, everything is subjective. Some people (psychopaths) are happy killing someone. As everything is subjective, it is almost impossible to know what someone else believes except in their actions. This is one of my favorite quotes...
Flow with whatever may happen
and let your mind be free;
Stay centered by accepting whatever you are doing.
This is the ultimate.

-Chuang Tsu

I do believe we are all connected on a level that is not visible and I mean everything is connected in the Universe. This gives me peace in times when I am freaking out. I also believe and want to say that there is a big difference in depression, sadness, and hopelessness, the latter being brutal. Gratitude also helps me get out of the hole. I am okay at this moment. I may not feel good, but I have shelter, food, water, a car, my 2 dogs and 2 cats and I know that things could be much worse. I also agree that EVERYTHING is on a spectrum. Black and white thinking does no good, and I fight that. I need to find the gray (thanks Grateful Dead) See what I did there? I appreciate your post. It made me smile and challenged this brain to think. Acceptance is key in situations that I am unable to control. AA taught me that gem and honestly the only absolute truth in this life is "change."

Jump to this post

Thank you. In L.A. Story, Steve Martin wrote, "Free your mind. Your body
will follow."
Lao and Chuang are two of my favorite Tzus.
You and I may not get to Nirvrama (as my friend used to call it) but
this is the Right Path, unless we are merely comforted by conversing with
someone who agrees with us. But then it wouldn't matter anyway.🫂

REPLY

So happy to see you back and active on Connect @diverdown1! Hoping that your journey forward will be easier with a lot less pain.

REPLY
Profile picture for frouke @frouke

Welcome back, I too noticed that you haven’t been around for a while, I’m sorry that LC is taking such a toll on your health, it’s truly a sinister virus. I’m sure you will get back your life soon, you have the determination and brains to fight back, here’s to moving forward, amen 🙏

Jump to this post

@frouke It is so good to hear from you. I have known you (virtually) for a couple of years now! How are you doing?

REPLY
Profile picture for John, Volunteer Mentor @johnbishop

So happy to see you back and active on Connect @diverdown1! Hoping that your journey forward will be easier with a lot less pain.

Jump to this post

@johnbishop Hey John! I wondered about you yesterday as I was writing. How the heck are you doing? What about your four paws? You have been so kind to me throughout all of this. I have been in a funk. My mother's dementia is accelerating and it is brutal. Life is hard but the only option I am allowing myself is too keep going. Let me know how you are doing!

REPLY
Profile picture for shmerdloff @shmerdloff

Thank you. In L.A. Story, Steve Martin wrote, "Free your mind. Your body
will follow."
Lao and Chuang are two of my favorite Tzus.
You and I may not get to Nirvrama (as my friend used to call it) but
this is the Right Path, unless we are merely comforted by conversing with
someone who agrees with us. But then it wouldn't matter anyway.🫂

Jump to this post

@shmerdloff Your two "favorite Tzus!" That garnered a smile and a chuckle. Sun Tzu? Isn't he the war Tzu? Nirvrama! I also always think of Dave Grohl, Kurt Cobain, Pat Smear, when I hear the word Nirvana. No irony lost on Kurt Cobain, RIP. I don't really know what the right path is, but I know what it is not (I think, anyway). I figure you are familiar with Eckhart Tolle. I find so much peace in his words. He has a You Tube channel as well and I love listening to the answers to people's difficult questions.

REPLY
Please sign in or register to post a reply.