Connect
Educating others on autoimmune diseases
I am a patient with MS, Lupus, Sarcoidosis, Psoriasis, Erethema Nodosum, Scleritis, Blferitis, optic Neuritis, Gastroparesis and many more.
There are over 100 autoimmune related diseases that so many people are unaware of and need ro educate themselves as well as their Doctor's so that no one will have to wait 35 yrs for a true diagnosis like I did.
Autoimmune diseases are the number one killer especially to women and children.
Please visit aarda.org to learn more about autoimmune and how it can be related to your chronic illness. I promise you wont be sorry that you did. I am just an advocate for everyone here who is looking for answers and seeking help.
Thank you for listening. xoxo
Like
Helpful
HugInterested in more discussions like this? Go to the Autoimmune Diseases Support Group.
Connect
Oral lichen planus is getting worse and it is very painful to eat. Has anybody else overcome this?
-
Like -
Helpful -
Hug
1 ReactionI have auto immune hymolitic anemia with both warm and cold antibodies. Usually life threatening for most people because of not knowing where to go. Thanks! What else can we do?
I have had Lupus for twenty years, RA, Sjogrens Syndrome and I have recently been diognosed with Autoimmune Hepatitis. Has anyone delt with AH, it is frightening and mine has gone into Cirrhosis.
-
Like -
Helpful -
Hug
2 ReactionsI have had Psoriasis for several years, and was diagnosed with pustular 6 years ago. Now my doctor suspects I may have MS. Does anyone know if the Psoriasis causes MS? My symptom is numbness inside and out of left side of face as well as the chin.
I've had Lupus/MCTD for 18 years. I have recently been diagnosed with Pulmonary Fibrosis, pretty much a death sentence, unless I can get a lung transplant. I can understand your fear. Have 'they' talked to you about a liver transplant?
Not without a boost of prednisone.
I was diagnosed with Lupus 18 years ago and 'upgraded' to MCTD several years ago. I have also had 2 minor strokes. In November I was diagnosed with Pulmonary Fibrosis, Yuk! I have my first appointment with Mayo in Phoenix in March. Eventually, I guess a lung transplant will be considered.....
They have, for now I am on Prednisone and Azathioprine which has greatly helped. It appears that my body was entirely inflamed. My Mom had MS and it apears that there is a genetic link for AH. Are you on a lung transplant list?
Psoriasis is an auto immune disorder as is MS but Psoriasis would not cause MS.
I'm not on a transplant list. My breathing isn't that bad yet, but I guess it progresses fairly quickly. Has the medication effected your original diagnosis?