Symptoms following a total thyroidectomy, and feeling unheard

@frustratedjulz.
Hi, keep fighting and try to find another endocrinologist.

After a total thyroidectomy, complications such as hypocalcemia (low calcium levels) are possible. It may also be helpful to check your cortisol and ACTH levels, as this could provide more clarity about why your condition seems to be declining.

Thyroidectomy and Its Complications: A Comprehensive Analysis: https://pmc.ncbi.nlm.nih.gov/articles/PMC11852887/

Talk with your primary doctor and tell him what is going on with you And ask for help navigating what is going on with you..
You need to do your own research Google what is going on and you can go to Google scholar that is more technical for more information. If you have a good Health store around you that sells vitamins or co-op of some type or grocery store that sells a lot of vitamins. Talk to them normally they will have one or two people that have information That might help you.
Do a diary for what is going on in your life sometimes that could help your doctor a lot to figure out What is going on, exactly.
I wish you the very best navigating these

I was your age when I had my thyroid ablated and it took quite a while for my body to respond to the right dose. My endocrinologist suggested Tirosint which made a ton of difference. I asked for T3 and he gave to to me against his better judgement. But eventually it caused heart palpitations and so I weaned off it. Now I just take 75mcg of Tirosint and thyroid issues are behind me. You are not going crazy, symptoms are frustrating, but give it time and your body will adjust.

After having a total thyroidectomy and radioactive capsule, I will say that it took a lot of time for me to get better. They also took out 3 of my parathyroid's so my calcium levels had to carefully watched. IF YOUR Endo is not responsive enough, I would look for another. I hope he or she is also checking your Vit D and calcium levels. Good luck to you and hang in there, it will get better.

All comments are helpful, I very much understand the time factor. But, I just continue to feel worse. I know about the calcium and ferritin levels, endo doesn't check that either. At this same time my primary care dr and cardiologist have left their facilities. So brand new dr again. I've also tried a 3rd endo to see if I can get in sooner. They haven't even returned my call. There are not any close ends in my area.

@frustratedjulz
I'm sorry to hear you haven't been able to find a doctor who will listen, follow up with labs and information and CARE about you as a person. This last piece really contributes to your "frustrated" frustration... Here you are going through great change and disruption and a physician is not caring to attend to your condition.

I just want to add that living in an area without access to specialists, or even different doctors to choose from is very challenging. Thinking of you while you try to work through this. Wishing you better health soon.

@frustratedjulz I know it can be so terribly frustrating not having a decent doctor to help you. Do you have a comprehensive medical center near you? 1 or 2 hours drive? You can get on their website and look up the medical staff. These doctors usually work 1/2 time in their own practice and 1/2 time for the hospital. Just call one! You may need to drive some distance, but it may be well worth the drive.

@frustratedjulz
It would be helpful to know what your symptoms are currently when you say you "feel worse". I have been dealing with Endos for 20 years and it is VERY hard to find a good one! Women have so many hormonal factors that we are dealing with and I think that without the thyroid hormone it just wreaks havoc. You should be able to find a good dose and relief, unless there is something else going on. Don't give up!