Heart Rhythm Conditions – Welcome to the group

Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don’t work properly. Let’s connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.

I’m Kanaaz (@kanaazpereira), and I’m the moderator of this group. When you post to this group, chances are you’ll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

Let’s chat. Why not start by introducing yourself?

@nansir

Hello everyone. I'm glad to be a part of this group and to learn more about afib which I was recently diagnosed with.

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Welcome to the Heart Rhythms group on Connect, Nasir. You'll notice that I moved your message to the introduction discussion where you'll meet other members and read more about them. Click VIEW & REPLY in the email notification to see the full discussion thread.

Here are a few discussions specific to A-fib that might interest you.
– AFib questions https://connect.mayoclinic.org/discussion/good-morning-im-almost-66-years-old-with-infrequent-afib-and-on/
– Watchman Implant for A-Fib https://connect.mayoclinic.org/discussion/watchman-implant-for-a-fib/

You said you were recently diagnosed. How are you doing? Have any questions for fellow members?

I need someone input about icd my doctor told me about implanting a icd iam a little afraid dont know weather is a good option or not could someone hep with input thanks for allowing to join this group

@chica

I need someone input about icd my doctor told me about implanting a icd iam a little afraid dont know weather is a good option or not could someone hep with input thanks for allowing to join this group

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Hello @chica — welcome to Connect. I'm glad you found us. While I don't have an ICD, my daughter had a subcutaneous ICD. She has long QT syndrome and now has a pacemaker instead of the S-ICD. I think it's pretty normal to be a little afraid because of the unknown and questions you might have.

I'm tagging other members in the community who have talked about ICDs or pacemakers to see if they can provide any input for you. @gr82balive @balubeje @shortshot80 @ryman @ronbee @jimana @martishka @billmichalski @sotiredofit @ricke62 @catygirl @bevtar98 do you have any suggestions or input for @chica ?

@chicka can share a little more about your condition and what concerns you have about having an ICD?

John

Hi. I am ja n and diagnosed with Afib about a year ago. Have tried several meds and they will slow the heart rate but not the fibrilation. Dr wants to use one of the new meds to regulate the Durham but they have so mysterious side effects. Anyone experience this situation

@chica

I need someone input about icd my doctor told me about implanting a icd iam a little afraid dont know weather is a good option or not could someone hep with input thanks for allowing to join this group

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(shortshot8 Nancy) I have had my pacemaker for over 10 years and on Monday April 2, I will have a new battery installed. Have to
be in the hospital at 6:30 am. Won't take long but will be closely watched for about 3/4 hours. I just celebrated my 85th birthday on
the 19th March. Still trudging along! Will check in again next week. Nancy

@chica

I need someone input about icd my doctor told me about implanting a icd iam a little afraid dont know weather is a good option or not could someone hep with input thanks for allowing to join this group

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@shortshot80 — that is terrific! Do check in again next week. Hope all goes well on Monday.

@nansir

Hello everyone. I'm glad to be a part of this group and to learn more about afib which I was recently diagnosed with.

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Thanks everyone i am just scared of the electric shock

@chica

I need someone input about icd my doctor told me about implanting a icd iam a little afraid dont know weather is a good option or not could someone hep with input thanks for allowing to join this group

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Thank you and my best to your daughter

@chica

I need someone input about icd my doctor told me about implanting a icd iam a little afraid dont know weather is a good option or not could someone hep with input thanks for allowing to join this group

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I have a thick heart doctor said people that have this heart condition could have sudden death he feels I should have a icd in plant biut iam scared of the electri shock

@chica

I need someone input about icd my doctor told me about implanting a icd iam a little afraid dont know weather is a good option or not could someone hep with input thanks for allowing to join this group

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Though I do not have your same heart problem I can understand your fear. There's a group called Women Heart your doctor might help you connect to. Probably you will find another woman who will help you deal with this fear.

Hi, @1943. Sounds like you've tried several meds since your diagnosis a year ago, but they are not addressing all your symptoms — slowing the heart rate and not the fibrillation.

You mentioned your doctor wants to put you on one of the new meds. Which medications was the doctor looking at for you? Sounds like you have some concerns with potential side effects?

@chica

I need someone input about icd my doctor told me about implanting a icd iam a little afraid dont know weather is a good option or not could someone hep with input thanks for allowing to join this group

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Hello @chica and welcome to Mayo Connect,

I am so sorry to hear that you are dealing with this new heart diagnosis. I can certainly understand your fear and uncertainty. I have been dealing with heart issues since I was age 11, brought on by Rheumatic Fever. While my heart problems are not the same as yours I can certainly understand some of the fears and uncertainties that you are experiencing.

If you are comfortable sharing more information, can you talk a little more about this "thick heart"? What type of tests have you had and what type of symptoms do you have? Did your doctor give this disorder any other name such as cardiomyopathy?

I found a Mayo Clinic website that has information about cardiomyopathy (which is described as a "thick heart.") Here is the link, https://www.mayoclinic.org/diseases-conditions/cardiomyopathy/symptoms-causes/syc-20370709.

Mayo Connect is here to support and encourage you. I look forward to hearing from you again.

Teresa

@chica

I need someone input about icd my doctor told me about implanting a icd iam a little afraid dont know weather is a good option or not could someone hep with input thanks for allowing to join this group

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@eileena

I appreciate the information about Women Heart. I found their website and found it to be very interesting. Here is the link, http://www.womenheart.org/.

Teresa

@chica

I need someone input about icd my doctor told me about implanting a icd iam a little afraid dont know weather is a good option or not could someone hep with input thanks for allowing to join this group

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Until I found them I hadn't known that the number one killer of us women in this country is heart disease. The breast cancer people seem to put out huge amounts of information about their problem, but we need more to spread the news so we can help other women to deal with the actual number one enemy.

Heart disease in women has only really recently entered into the public's mind and has begun to be more researched by the medical community. Most research was done on men in the past. Since we are not exact copies of them our disease does not exactly mimic theirs. Mostly men get CAD(coronary artery disease) and we get PAD(peripheral artery disease). Even if we are the same weight and physical dimensions as men our hearts are smaller.

Hope this has enlightened somewhat.

@nansir

Hello everyone. I'm glad to be a part of this group and to learn more about afib which I was recently diagnosed with.

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@chica It's understandable to be nervous and reasons vary for individuals as to why they might be encouraged to get one. I had a heart attack in 2012 followed by a couple different strokes. My cardiologist team recommended an ICD for me mostly as a precautionary step. While I was in ICU following the placement of one stent and a couple balloon procedures to increase blood flow, the nurses rushed into my room with a surprised look on their faces when I began talking with them. They asked how I was feeling and if I felt anything strange. I said I hadn't noticed anything peculiar (since I already had weird sensations being hooked up with some type of internal pump in my artery to attempt to help the heart recover. The nurses said their monitors showed that I was in v-tach (Ventricular tachycardia) and somehow my heart managed to get out of v-tach on its own. This might have been the second time I had v-tach, but not sure. Anyhow, with having that happen and low ejection fraction, the team recommended it as a precautionary approach. Luckily, I have not had any heart rhythm problems since having it implanted to need it to shock me. I was scared, and still a little bit, about what that first shock might feel like if it ever happens; however, I outweigh that fear with the risk of needing to have my heart shocked and what could happen if I didn't have it. I have the Merlin wireless unit that automatically downloads all the information the ICD monitors and the cardiology department reads to determine if events are happening and if I need to be seen. I am seen in person every 6 months where they test the unit by placing a device over my ICD (works through my clothing even) and control the ICD and run a couple tests, such as pacing my heart, as the ICD can be used as a pacemaker in times of need. There is no shock or any pain at all when they do this test, just feel my heart beat faster for a few seconds. Hopefully I'll never have to have it shock my heart, but it provides security of mind knowing it's there if my heart needs it. I've had it in over 5 years and my last check showed it still had another 4-5 years before needing to have the battery replaced. The incision was sore for a couple days, but it's manageable. The other thing I worried about was will it interfere with sleeping (I have a low heart rate) and while working out in the gym. So far I haven't noticed my heart being affected while sleeping or exercising by the device trying to pace my heart differently than what it is doing on its own. Maybe I'm just lucky, but I feel it's worth having in place just in case. I wish you the best!

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