Heart Rhythm Conditions – Welcome to the group

Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don’t work properly. Let’s connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.

I’m Kanaaz (@kanaazpereira), and I’m the moderator of this group. When you post to this group, chances are you’ll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

Let’s chat. Why not start by introducing yourself?

@soloact

I\'m Judith, age 72 with a birthday coming this spring. I have bradycardia (slow heart rate), which can get down to 38 bpm, and supraventricular tachycardia, known as SVT. But the SVT is intermittent and occasional, although it used to happen more often. It is most likely to happen with stress or exertion. Also have Grade II diastolic dysfunction, which translates to symptomatic heart failure, but doing relatively OK so far.

Jump to this post

Hi Judith!
I hope you continue to do well!!!
ronnie

REPLY

Hi Sharon,

My resting heart rate is also around 120, which makes everyone nervous. I\'ve gotten used to it since I have had it checked.
Funny, when I wore the halter monitor, several years ago, my heart rate was \'good\' from around 6pm to 5am. At 5am, it went up significantly and remained that way until around 6pm. I am sure you can figure out why. I arose at 5am to get ready for work, and by around 6pm, I had time to relax after work. So, work was not doing me any good. I really should wear a monitor now since I have been retired almost 6 years (lol).

My resting hear rate used to be higher. My doctor put me on the Metoprolol. After losing 90 pounds, my rate came down to 120. For about a year after the weight loss, I only took the meds when my heart rate went above 120. I now am off the Metoprolol. Because I am no able to take any NSAIDs, I take Crestor to protect my heart. I am really very good about it because of the positive impact it has on my heart.
Be well!
ronnie

REPLY
@ryman

Hi, I am Ryman. The first I really noticed my palpitations was back in the summer. I was kneading bread and my heart just started pounding. In October my heart rate dropped to 20. So I received a pacemaker. Actually, I have had a lot of trouble with it. They replaced the lead in January. The last two weeks while grocery shopping I had pain and a pounding heart. They checked my heart and the pacemaker and said they were both fine. I am having a stress test tomorrow. I have a daughter and two grandsons. My husband passed away 4 years ago. So I live with my oldest grandson.

Jump to this post

Did they do this to you at Mayo? I probably need to replace my lead too and am concerned about having a dead one in the heart too. I think that pretty much all pacemaker users cannot be MRI\'d.

REPLY
@hopeful33250

@kanaazpereira

Thank you for starting this discussion group! I too, had my first experience with tachycardia (fast heart beat) when I had a minor outpatient surgery. After that experience I obtained the anesthesiologist’s records from that surgery (that showed when my heart rate increased and what meds they used to bring it down) and any time I have surgery at a different hospital I take that record with me and show it to the anesthesiologist. Most anesthesiologists gladly look at it and assure me that they will keep a watch out for tachycardia.

Since that surgery, I’ve had other times when my heart rate has increased, once during a stress test, and once when I got very busy and tired. I now take a small amount of a beta blocker at noon and that keeps everything under control.

Once when I had the rapid heart rate during a stress test, the cardiac RN suggested coughing, when that didn’t work she suggested “bearing down” like you were trying to have a bowel movement. When that didn’t work she gave me an injection which brought everything back to normal, but I certainly was tired when all was said and done.

Someone mentioned staying away from caffeine – I have a friend with A-Fib and she told me that caffeine is often in cosmetic products and they affect her A-Fib as well. So we should all read the labels of skin care/hair products before using.

I’m glad to hear of everyone’s experience. I learn so much from hearing the experiences of others.

Teresa

Jump to this post

@markjones

I appreciate that detailed information about ingredients in skin care products. Thank you!

Teresa

REPLY
@skymya

Hi!
Am 39 years of age. Last year on May 18 I had at least 2 heart attacks, blood clots, complete rental shutdown and grand mal seizures. I was in a coma for 9 days and it took 75 days for me to get back home to my 5 kids/husband. I now have a irregular heart beat,heart damage, beats to fast tachycardia and my blood doctor thinks i have APLS a blood clot autoimmune disorder also so blood thinners for the rest of my life.. I was supposed to have a EPS ablation tomorrow with the option for a defibrillator but the doc office called now its next month. I had chest pain off and on for a few years but just blew it off as stress/panic attacks. My mother had Afib for a number of years and two ablation later is Afib free now. Happy to start talking to others and learning their stories.
Amber

Jump to this post

Hi @skymya,

I can only imagine the stress of all that you\'ve been through! Thank you for joining Connect, and sharing your story. Here\'s some information about Antiphospholipid syndrome (APLS) from Mayo Clinic: https://www.mayoclinic.org/diseases-conditions/antiphospholipid-syndrome/symptoms-causes/syc-20355831

I\'d also like to invite @soitis4590 and @lena999 to join the conversation and share their experiences. You can view @soitis4590\'s posts here: https://connect.mayoclinic.org/discussion/antiphospholipid-and-lyme-disease/

Although this is an older discussion, https://connect.mayoclinic.org/discussion/antiphospholipid-antibody-syndrom/, I hope @taogirl2 @colettehellerud @lagata are keeping well, and will return to share their insights as well.

@skymya, may I ask why the ablation was postponed?

REPLY

This side of heaven we are always going to have \"issues\". I am thankful that their are folks we can talk with about our particular \"issues\". I see my pacemaker as a miracle. Mine was inserted almost three years ago for bradycardia and without it I would probably not be here. My heart would stop beating for 6 seconds at a time-apparently that raised some eyebrows. I\'m not saying life with a pacemaker is all fun and joy but it was an option and I ran with it. I am on Metoprolol ER 25mg-which I break in half and take twice a day-12 hours apart. Last fall I was started on Eliquis as AFIB has popped up in my monitoring. When AFIB entered the scene I went through several tests and everything came back normal, fine, A okay. I was encouraged to up my exercise game and I have. I don\'t know when the Afib strikes I seem to be asymptomatic. As I told the cardiac nurse there are days I feel sluggish so I nap but those days are few and far apart. In April I will turn 64. I retired four years ago. I would suggest having a B12 level drawn if you are low on that vitamin you can be run down as well along with other symptoms. I have been B12 deficient for lots of years and just a few years ago learned by dad was also. He was bone dry and now has back the energy level an 86 year old should have if not better. Just a thought. Thanks for reading, thanks for sharing and I will keep each of you in my prayers. Thank you MAYO clinic.

REPLY

Well, my resting is down on the metoprolol. At first was 55 to 60 but has been creeping up over the last year. Probably at about 80 during the day. Weight is not an issue for me although I did lose about 15 pounds over the last six months because of a diet change. It is just always so interesting that though are hearts are beep-bopping all over the place — that all is "normal". Really severe palpitations can be so disconcerting. So I really get it when people are anxious about that.

REPLY

Hi, my name is Tim. I received a heart transplant 12 years ago. I have had 5 stents in my new heart and 2 years ago had a pacemaker installed because of a Brady event. Needed adjustment early on but doing well now. Taking meds to help regulate irregular heartbeat. Thanks for allowing me to participate.

REPLY
@ryman

Hi, I am Ryman. The first I really noticed my palpitations was back in the summer. I was kneading bread and my heart just started pounding. In October my heart rate dropped to 20. So I received a pacemaker. Actually, I have had a lot of trouble with it. They replaced the lead in January. The last two weeks while grocery shopping I had pain and a pounding heart. They checked my heart and the pacemaker and said they were both fine. I am having a stress test tomorrow. I have a daughter and two grandsons. My husband passed away 4 years ago. So I live with my oldest grandson.

Jump to this post

No, Mayo did not do this. My surgery was in Buffalo, NY. I was told that I could have MRIs before they left the dead lead in. Then they said I couldn’t. I hate those tests anyway. Best of luck to you.

REPLY

@bjork579 Hello Tim

I see that this is your first post on Connect. Welcome! I am glad that you have chosen to participate. I am very impressed with all of the good cardiac treatment you have had, including a heart transplant. I'd like to introduce you to @rosemarya. Rosemary is the volunteer mentor of the Transplant discussions and has had two transplants herself (kidney and liver). I am sure she would like to welcome you to post in her discussion groups as well.

I look forward to reading more of your posts.

Teresa

REPLY
Please sign in or register to post a reply.