First Name

Last Name

Country of Residence
United States of America

Health Interests
Autoimmune diseases, Blood disorders, Cancer, Children's and teen's health issues, Digestive disorders, Eye disorders, Healthy Aging, Healthy Living, Heart and blood vessel disorders, Hormonal and metabolic disorders, Immune disorders, Kidney and urinary tract disorders, Mental health disorders, Women's health issues, Other

Posts (2090)

1 day ago · Primary Sclerosing Cholangitis (PSC) in Transplants

Hi @sandyjr,

I came across this post about your daughter and thought you might be interested in viewing this video where Mayo Clinic gastroenterologist, Dr. Mark Topazian talks about IgG4-related sclerosing cholangitis or IgG4-associated cholangitis – especially since they mimic primary sclerosing cholangitis.


2 days ago · Seeking advice for first time Mayo Clinic visit with toddler (patient) in Visiting Mayo Clinic

Hello @kristap31,

Although I reside in Rochester, I continue to be impressed about the accommodations that Mayo Clinic makes to suit patients’ schedules, especially if you’re coming from out of town. I would start by calling Mayo Clinic Concierge Services – it is a free service that you can use prior and during your visit to help you find services, such as accommodations, transportation and things to do. You can contact them by email, phone, chat or in person during business hours:

* Phone: 507-538-8438
* Live Chat: https://www.mayoclinic.org/patient-visitor-guide
* Email: concierge@mayo.edu
* Web form: https://www.mayoclinic.org/patient-visitor-guide/minnesota/becoming-a-patient/concierge-travel-services

I’d like to invite @rosemarya @flor @50surgeries @jillnc @badboys1965 @cap217 @rosannen @user_chdb5e8ac to join in with their insights too.
For more tips from Connect members, please see these discussions:
– Tips for first dr visit and tests/appt schedules https://connect.mayoclinic.org/discussion/tips-for-first-dr-visit-and-testsappt-schedules/
– New to Mayo and first time traveling to MN…https://connect.mayoclinic.org/discussion/new-to-mayo-and-first-time-traveling-to-mn/
– First Time and Terrified https://connect.mayoclinic.org/discussion/first-time-and-terrified/

Here are some quick links:
– FAQ about Visiting Mayo Clinic: https://www.experiencerochestermn.com/mayo-clinic/faq/
– Parking at Mayo Clinic, Minnesota https://www.mayoclinic.org/patient-visitor-guide/minnesota/travel-lodging-maps/parking

May I ask if you are able to share some more details about your son, @kristap31?

2 days ago · Bladder Cancer/Small cell bladder cancer in Cancer

Hello @mcgonzalez36,

I moved your message to the Cancer group where we have several members talking about bladder cancer, and I'd like to connect you with them. I'm so glad you reached out to Connect, and even more glad to learn that your grandma will be coming to Mayo Clinic. Waiting is sometimes the hardest part – it helps to hear from someone who has been there.

While we wait for others to join in here are some discussions which I would encourage you to go through:
– Bladder Cancer: High grade https://connect.mayoclinic.org/discussion/bladder-cancer-1/
– Bladder cancer https://connect.mayoclinic.org/discussion/bladder-cancer-20c2b4/

There are so many kinds of bladder cancer and ways to treat it – do you know what type of bladder cancer your grandma has?

2 days ago · Living with Neuropathy - Welcome to the group in Neuropathy

Here’s a more recent article that describes "Neuropathic Pain after Spinal Surgery" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5573860/

2 days ago · Neuropathy and other strange symptoms in Brain & Nervous System

Hello @jola65,

Many Connect members have talked about similar electric shock type pain, although mainly in their scalp. However, I think it may be a discussion worth checking out; you can read through some of those posts and jump in where you feel comfortable here, https://connect.mayoclinic.org/discussion/electric-shock-type-pain-in-my-scalp/.

I’m also tagging @ftlamont @sooz50 @danibec31 @chipp123 to see if they might have more insights to share.

2 days ago · Zometa infusions in Breast Cancer

Hi @baby99,

I agree with @colleenyoung that you should consult with your oncologist. I also thought you might be interested in this information about zometa and joint pain: https://www.cancer.net/coping-with-cancer/physical-emotional-and-social-effects-cancer/managing-physical-side-effects/joint-pain

2 days ago · Med detective needed, award given - adrenaline spikes in Diabetes/Endocrine System

Welcome, @peacock23 – are you able to share some more information about yourself? Look forward to getting to know you.

2 days ago · Living with Neuropathy - Welcome to the group in Neuropathy

Welcome to Connect, @gmaoffour,

Unfortunately, neuropathic pain after spinal surgery, (also called failed back surgery syndrome FBSS), happens all too often. @sheriatrapidcit @jenniferhunter @suerc @lynn12 @salsa @beckyann @tom2017 and many others have recently shared their experiences in this discussion, as well:
– Chronic pain and spinal fusion https://connect.mayoclinic.org/discussion/chronic-pain-and-spinal-fusion/

@gmaoffour, could you share a few more details? How are you managing the pain? Has anything helped to give you temporary relief?