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Autoimmune diseases, Cancer, Children's and teen's health issues, Digestive disorders, Healthy Living, Heart and blood vessel disorders, Hormonal and metabolic disorders, Immune disorders, Kidney and urinary tract disorders, Mental health disorders, Women's health issues, Other, Blood disorders, Eye disorders, Healthy Aging

Posts (1611)

2 days ago · New Ken Burns film, "The Mayo Clinic, Faith - Hope - Science" in Just Want to Talk

My husband was able to attend the pre-screening event too, and had nothing but praise for the film, and for the film-maker, Ken Burns.

He mentioned that the movie was particularly inspiring because it shows how care, hope arose out of tragedy and devastation caused by a tornado. It truly is the story about a place that offers hope when there is none, and depicts the true value of Mayo Clinic – the needs of the patient come first.
I'm really looking forward to seeing it next week.

2 days ago · Coronary artery disease/Specifically Ectasia CAE in Heart & Blood Health

Hi @dpframing,

I merged your message about finding others with CAE with this discussion so that you can reconnect and continue the conversation with members in this group. I'm tagging @seaera too, so that she can join in with her concerns as well as any insights she might have.

You might be interested in reading this published article which outlines some updates on the current knowledge of CAE:


3 days ago · PRINZMETAL ANGINA/VARIANT ANGINA in Heart & Blood Health

Hi @angiemama1,

In addition to the information that Justin provided, here's an article that has more details; Prinzmetal's angina is also known as variant angina or coronary vessel spasm/coronary artery vasospasm:


3 days ago · Mixed connective tissue disease in Autoimmune Diseases

Oh @liyana! I'm so sorry to hear about all that you're going through. Managing a condition like MCTD is a tough journey, but I want you to know that you don’t have to do it alone. It’s horrible to feel frightened and alone. But I sure like your attitude of trying to figure things out and also listen to others. Often, that is all one needs – to be heard and to be acknowledged – to feel better.

While you wait to see your doctor on Nov. 14th, would you consider seeing a counselor or a therapist? I'm glad you're part of this group; please know that you're in a good place to get the support you need.

3 days ago · Ascending aorta dialation in Aortic Aneurysms

Hello @estanley2008,

Welcome to Connect. You may notice that I moved your first message and combined it with this existing discussion on ascending aorta dilation. I did this as I thought you might like to meet the many members who have discussed much of what you are experiencing.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.

This Mayo Clinic webpage has tons of information about thoracic aortic aneurysm, diagnosis & treatment, and care at the Clinic:


Here are a few conversations on Connect, which I encourage you to read:
– Large ascending aorta in young healthy 45 year old woman http://mayocl.in/2gwDknX
– New Diagnosis – ascending aorta aneurysm https://connect.mayoclinic.org/discussion/new-diagnosis-27f493/

I’m also tagging members @laverne @jimemerson @elsinann @teatime @thegoodwife @thankful @janet26 @debbydiane @ginko Mentor @hopeful33250 who can share their experiences and provide some guidance and thoughts.

@estanley2008, I can imagine your concern when, as you said, "The er called umc who said they would not even see me at that size, even with symptoms1" Did they give you any explanation?

Thu, Sep 13 10:06am · Effective Screening for Early Onset IBD in Gastroenterology & GI Surgery

A study published in the journal Inflammatory Bowel Diseases, where researchers focused on early-onset inflammatory bowel disease – eoIBD  (refers to those patients under the age of 10 years), found that in contrast to adult-onset IBD, young patients tend to have more rare diseases which can be linked to problems with a specific gene. Dr. Michael Stephens, M.D., explains the benefits of targeted gene panel sequencing as an effective screening method for early-onset IBD.

For more information about IBD, visit mayoclinic.org/IBD.

Dr. Stephens is a gastroenterologist who specializes in pediatric and adolescent medicine at Mayo Clinic.

Tue, Sep 11 8:04am · I received 2 hip replacements and then developed cobalt & chromium. in Bones, Joints & Muscles

Thanks for the suggestion, @johnbishop

Hi @jcmoffat,

I moved your message and combined it with this existing discussion about high chromium levels so that you can meet a few other members who have also discussed similar issues. I hope @janneg @marysapp @edithmiller and @tubetweak will return to share their insights with you.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.

In the United States, from what I've read, patients who've had hip replacement surgery (which can result in such high metal levels), may report their concerns to the FDA by filling out a form. @jcmoffat, have you contacted the surgeon and/or your care team that performed the knee replacement? Are you experiencing any symptoms?

Sat, Sep 8 12:36am · Patients and caregivers are “Experts by Experience” in Just Want to Talk

Life is indeed a precious gift, and nobody knows that better than organ transplant recipients. Rosemary @rosemarya shares her transplant journey – a story of confronting guilt, overcoming fears, and endless gratitude to the donor, and to the family who gave her permission to enjoy life.

PS: Enjoy your life – Experts by Experience