Posts (1096)

17 hours ago · Updates in Celiac Disease

Celiac disease is emerging not only as a disease affecting people, but as a subject for intense research. Where are we with research on this condition? Dr. Joseph Murray, M.D., talks about ongoing trials and studies, at Mayo Clinic and globally, and the many different efforts to target celiac disease beyond, or in addition to a gluten-free diet.

For more information about celiac disease, please visit mayoclinic.org/celiac disease

Dr. Murray, M.D,  is a gastroenterologist and celiac disease expert at Mayo Clinic.

17 hours ago · Celiac Disease 101 – An Overview

Celiac disease (gluten-sensitive enteropathy), sometimes called sprue or coeliac, is an immune reaction to eating gluten, a protein found in wheat, barley and rye. Dr. Joseph Murray, M.D., gives us a comprehensive overview about the causes, symptoms, complications and treatment of celiac disease.

For more information about celiac disease, please visit mayoclinic.org/celiac disease

Dr. Murray, M.D,  is a gastroenterologist and celiac disease expert at Mayo Clinic.

 

3 days ago · What is the recovery like following septal myectomy? in Hypertrophic Cardiomyopathy (HCM)

Hi @lottyfeeble21,

We were wondering how you were doing? Did you have the surgery? We’d love to hear back from you.

3 days ago · Afib and HCM in Heart & Blood Health

Hi Jinal @jshah,

I’m tagging @lottyfeeble21 who has talked about coping with afib and HCM in this discussion:

https://connect.mayoclinic.org/discussion/what-is-the-recovery-like-following-septal-myectomy/

I wasn’t quite sure if you’ve read the information from Mayo Clinic about the surgical maze procedure, https://www.mayoclinic.org/tests-procedures/maze-procedure/gnc-20303046, and I’ve copied some relevant details for your convenience below:
“Surgical maze procedures have a high success rate, with from 70 to 95 percent of people being free of atrial fibrillation long term after the procedure. Up to 35 percent may still need medications to help control their irregular heart rhythm. If your atrial fibrillation recurs, you may need another catheter ablation or other treatment.”
@cynaburst, do you have some more insight for @jshah?

Here’s another great source of information (and reassurance, perhaps):
The Mayo Clinic Experience and Patient Stories: https://www.mayoclinic.org/diseases-conditions/hypertrophic-cardiomyopathy/care-at-mayo-clinic/mac-20350208

Jinal, I can imagine you have a plethora of concerns and questions about your husband’s surgery; what is worrying you the most? Remember that you are not alone – the Connect community is listening.

3 days ago · Video Q&A about Sleep Disorders (or Problems) in Children and Teens in About Kids & Teens

Hi Deb @empower,

Welcome, and thanks so much for joining the Connect community with some great information which I’m certain that @jhines will appreciate too.

We have several discussions which I thought might interest you, where members talk about dermatitis/atopic dermatitis and severe itching.
– Systemic Uncontrollable Itching https://connect.mayoclinic.org/discussion/systemic-uncontrollable-itching/ where you can meet @acgraves16 @mroreo126
– Cutaneous T Cell Lymphoma https://connect.mayoclinic.org/discussion/cutaneous-t-cell-lymphoma/ where @lhilly @cindylb and others discuss contact and spongiotic dermatitis.

I’d also encourage you to view the Skin Health group on Connect: https://connect.mayoclinic.org/group/skin-conditions/
Please feel free to go through the discussions and join in if you wish – we learn so much through shared experiences.

@empower, may I ask if you’ve found any relief from topical applications and/or medications?

3 days ago · Myasthenia gravis (MG) in Autoimmune Diseases

Hi @mylife and @750scar78,

I’ve enjoyed reading the support and information you have shared and provided for each other on Connect. This is what Connect is about, and it’s so great to see it in action. Thank you!

Mayo Clinic also has some very detailed care options for MG; here’s some information which you may find helpful:

https://www.mayoclinic.org/diseases-conditions/myasthenia-gravis/care-at-mayo-clinic/mac-20352044

I’m confident that @gretagean @lynnes @dschmidt and others will join this conversation and share their insights.

@mylife, may I ask what meds you’ve been prescribed? Mestinon seems to be the most common choice for MG. @750scar78, if you wish, please let us know if you have any questions after visiting with the neurologist. We look forward to getting to know both of you.

3 days ago · Collagenous Gastritis in Digestive Health

Welcome to Connect, @theresap. Thank you so much for joining and sharing your information. While incredible progress has been made in medicine, there are still some conditions where cure remains elusive. But sharing stories and experiences helps us cope with our struggles, helps us learn from each other, and to know that we are not alone – this is what Connect is all about.
Please let us know if you have any questions or if you would like to share your insights; we look forward to getting to know you.

3 days ago · Collagenous Gastritis in Digestive Health

I’m so glad to hear that you will be seeing Dr. Murray at Mayo Clinic, @kellye5! I’d encourage you to view the Visiting Mayo Clinic group on Connect – https://connect.mayoclinic.org/group/traveling-to-mayo-clinic-minnesota/ where you will find some fantastic discussions, and information, too
Please do keep us updated about your son’s progress, and we wish you all success.