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Posts (2350)

Sat, Mar 28 11:09am · Pain around pacemaker site in Heart Rhythm Conditions

@lov, it is absolutely natural that you are worried––pacemakers can detect asymptomatic AF but are not routinely monitored for this purpose.
However, since you are taking a blood thinner, you you seem to be on the right track to prevent the risk of stroke.
Here’s a recently published study that investigated whether pacemaker checks could be used to identify patients with asymptomatic AF, who could then be given anticoagulation for stroke prevention. https://www.sciencedaily.com/releases/2015/10/151017152236.htm

I’d like to connect you with others who are living with a pacemaker like @dragonass @lmclaugh @lynjolo @exboater @danab @rog @elwood @maryrohrer1 @texas14. You can also read their stories in these discussions:
– Pacemaker recipients https://connect.mayoclinic.org/discussion/pacemaker-recipients
– KardiaMobile https://connect.mayoclinic.org/discussion/kardiamobile/

There are service animals–Cardiac Alert/Response dogs–that are able to detect various heart-related symptoms. You could ask your local ASPCA or Humane Society chapter for more information.

Recovery after pacemaker surgery takes time, @lov and everyone is different. Are you noticing any improvements at all?

Sat, Mar 28 10:25am · Dofetilide (Tikosyn): adjusting dosage in Heart Rhythm Conditions

Hi Didi,
Here’s some information about Tikosyn (dofetilide): http://www.mayoclinic.org/drugs-supplements/dofetilide-oral-route/description/drg-20063516

I’m tagging @2880 @vermontrob @crazyheart @predictable, and hope they will join in with some more information. Since Tikosyn belongs to the group of medicines known as antiarrhythmics, I’d also like to introduce you to @woodieryan @jimana who have written about antiarrhytmic drugs; do you have any insights to share with @bergem?

Sat, Mar 28 9:56am · Long QT Syndrome in Heart Rhythm Conditions

Hi @lilkeilty07,

Welcome to Connect, and thanks so much for sharing your story. Kudos to you for being in recovery; I’m certain it has taken tremendous strength and determination.

Here is some information about Long QT syndrome (LQTS) from Mayo Clinic: http://www.mayoclinic.org/diseases-conditions/long-qt-syndrome/home/ovc-20340773

I’m tagging fellow Connect members @sharlynn62 @sheilajean @lorrainechavez @medpup1 @manysilver who have discussed amphetamines. I hope they might share their knowledge and experiences with you.

@incrediblemulk98 has written about the use of hydrocodone and heart issues in this discussion, “False positive on EKG” https://connect.mayoclinic.org/discussion/false-positive-on-ekg/, and I would also like to invite Connect Mentors @johnbishop and @predictable to join this conversation, as they may be able to offer some insight.

@lilkeilty07, have you consulted with a cardiologist?

Sat, Mar 28 9:54am · Pacemaker recipients: Looking for support from others in Heart Rhythm Conditions

Hello @cupcake1979,

Welcome to Connect; I’m so sorry that you aren’t feeling well, and we’re glad that you’ve joined us.

We have an active discussion about pacemakers (and heart rhythm issues), which you may wish to see:
– Pacemaker recipients: https://connect.mayoclinic.org/discussion/pacemaker-recipients/
If you wish, you can post your concerns in that conversations as well.

Meanwhile, I’m sure that Connect members @balubeje @ronbee @jimana @martishka @billmichalski @sotiredofit @ricke62 @catygirl @bevtar98 @marke92 @bibi12 will return to share their experiences with you.

@cherfenn @oldkarl @incrediblemulk98 have discussed heart rhythm issues like tachy-brady syndrome (sick sinus syndrome), and I wonder if they have more insight to offer?
Here’s some information about sick sinus syndrome from Mayo Clinic: http://www.mayoclinic.org/diseases-conditions/sick-sinus-syndrome/basics/definition/con-20029161

@cupcake1979, since you mentioned, “…am currently experience constant chest pains…” may I ask if your health care team has ruled out any coronary blockage? Are you able to take a lower dose of the beta blocker?

Tue, Mar 24 11:44am · Music Helps Me in Just Want to Talk

Many of you probably know about this, but I just thought I’d mention that the Met also broadcasts live opera performances via satellite, from New York City to many movie theaters – Metropolitan Opera Live in HD or The Met: Live in HD.
Once the world goes back to normal, albeit a “new normal,” it’s worth exploring: https://www.metopera.org/season/in-cinemas/

Thu, Mar 19 11:12am · Primary Sclerosing Cholangitis (PSC) in Transplants

Hi @sandyjr,
I moved your message to this conversation about PSC so that others could read more of your story to help with your question. Simply click VIEW & REPLY in your email notification to find your post.

Would you be able to share a few more details (in this discussion) about your daughter’s diagnosis?

Thu, Mar 19 10:36am · constipation in Digestive Health

Welcome to Connect, @jjzabler45,

I’m tagging @elle1233 @januaryjane @jackiem95 @ken82 @tennisgolf @lioness and @astaingegerdm to see if they can share their thoughts about your symptoms. In the meantime, could you share a few more details?
How often do you have a bowel movement? Are you experiencing any pain? Have you consulted your doctor or health care provider?

Wed, Mar 18 10:53am · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

Hello @karukgirl,

At a time when life isn’t normal in any sense of the word, I think your decision to postpone the surgery is commendable. I can imagine it’s a hard choice, but look at it this way: you’ve taken significant steps towards “flattening the curve."
By following current guidelines, you are allowing doctors and your health care team to prioritize and make the best use of medical resources for the more critically ill patients, and you are reducing the risk of coronavirus spread––patients who’ve had surgery are more susceptible to infections.

Still, knowing you have a condition that needs to be fixed and can be fixed, but not at the time it was scheduled to be fixed, can be incredibly stressful! Have the doctors explained whether postponing the procedure will or will not affect the ultimate outcome?