Heart Rhythm Conditions – Welcome to the group

Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don’t work properly. Let’s connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.

I’m Kanaaz (@kanaazpereira), and I’m the moderator of this group. When you post to this group, chances are you’ll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

Let’s chat. Why not start by introducing yourself?

Hello @ppartrid

When you see your cardiologist on the 27th that would be a good question to ask. Did you by chance read the link that I sent to you in my earlier email?

The article said this about the complications from PVCs:

Complications:
Having frequent PVCs or certain patterns of them might increase your risk of developing heart rhythm problems (arrhythmias) or weakening of the heart muscle (cardiomyopathy). Rarely, when accompanied by heart disease, frequent premature contractions can lead to chaotic, dangerous heart rhythms and possibly sudden cardiac death.

I would encourage you to read the entire article (https://www.mayoclinic.org/diseases-conditions/premature-ventricular-contractions/symptoms-causes/syc-20376757). By reading this article you have a better understanding of this disorder and it might also help you to be better prepared when you discuss this with your cardiologist.

I look forward to hearing from you again!

Teresa

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@ppartrid

I'm not sure I qualify for this group. I'm dealing with frequent pvc's and it's quite unnerving. Everything else is okay. BP is under control…Pulse is normal range…no fatigue or chest pain. Feel just fine except for those PVC'S. Can they weekend or damage your heart? I've had them for years (23 yrs old) but never as often as I'm getting them now (63 yrs old). Scared it can effect my heart. I have no known heart problems that I'm aware of.

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I have had pvc s for 18mos and have a loop I'm for 24hr 
monitoring
I have been taking magnesium supplement and the have lessened to almost nothingSo far so goodI have had two ablation for afib and no reoccurencesDon't give up you can control these thingsRek

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@ppartrid

The only symptom I have is the flutter or flip flop feeling in my chest, sometimes making me cough. It happens every day, often on throughout the day. Sometimes it will wake me up at night. My heart rate stays pretty normal through activity and resting. Resting… mid 60's and while active, normally around 105-110. BP is also under control, taking Toprol 25 mg and Aldactone 12.5 mg. I have an appt with my Cardiologist on the 27th of this month. Has anyone been told by a Cardiologist that PVC's won't damage or weeken the heart? That is my biggest concern. I constantly worry about that.

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Pc's are more of an emotional burden than anythingThey can be controlled many waysMagnesium.  Surgery.  EtcDo not give up you can get good help and remediesRek

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@ppartrid

The only symptom I have is the flutter or flip flop feeling in my chest, sometimes making me cough. It happens every day, often on throughout the day. Sometimes it will wake me up at night. My heart rate stays pretty normal through activity and resting. Resting… mid 60's and while active, normally around 105-110. BP is also under control, taking Toprol 25 mg and Aldactone 12.5 mg. I have an appt with my Cardiologist on the 27th of this month. Has anyone been told by a Cardiologist that PVC's won't damage or weeken the heart? That is my biggest concern. I constantly worry about that.

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@twptrustrek

I was interested in your comment about magnesium. Can you tell us more about how that has helped you?

Teresa

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@chica

I need someone input about icd my doctor told me about implanting a icd iam a little afraid dont know weather is a good option or not could someone hep with input thanks for allowing to join this group

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(shortshot80 Nancy) Pacemaker battery replacement is not a hard thing to go through. I had to be at the hospital at 6:30am, (j Had to leave home at 4:30am drive about 75 miles. Surgery at *am. The doc does not have to put you out (any more) except little old ladies,
like me (85). I was asleep for 45 minutes. (not a deep sleep either). was back in my room and had some breakfast , got dressed and came home by noon last Monday April 2. Doc changed the battery and repositioned the pacemaker and then glued me back together.
I still have a little glue left but another shower or two should take care of it. My pacemaker had quit the week before surgery and all that happened was…. I kept getting really super tired. The tiredness is going away, not ready to run a race or anything, but feeling much better. My pacemaker lasted about two weeks past the 10 year mark. It will take a while to get up to speed, but that's ok. While I'm here, I need to tell you that (due to the cancer, my brain told me I couldn't sleep in my bedroom, because I couldn't breathe in there.. So came out into the front room slept in a chair. Also couldn't eat. (Mind playing tricks) So went to primary care doc. He gave me so LoRazpam (sp) which has helped me to understand what has been happening. I even ended up in the hospital for four days, because of my mind going crazy. Believe me this has not been fun! After the medicine I am able to sleep in my bed, and even fix something to eat. Yes I list some weight. Doc was not pleased either, but understood what I was telling him. I'm getting much better and even eating better. What happened was all mind games and if you can recognize (with out going crazy) check with your doc and they do help, without any problems. At least for me, I was able to understand what was happening.. Some time a swift kick cam je;[!
Nancy

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@chica

I need someone input about icd my doctor told me about implanting a icd iam a little afraid dont know weather is a good option or not could someone hep with input thanks for allowing to join this group

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@shortshot80

Hi Nancy: I am glad to hear that the lorazepam (Ativan) is still working well for you and helping with your appetite as well.

It sounds like the pacemaker replacement went without a hitch! I'm happy for you.

Teresa

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Hi,
I'm an almost seventy year old man, who has suffered from PVC's most of his life, as well as Atrial Fibrillation for eight years. I'm seeking out people who can share their experiences as well as let me share my own.

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Your situation sound similar to mine. Ive had PVC's for at least 40 years also. Was also diagnosed with Paroxysmal Afib eight years ago. I take flecainide and metoprolol for the Afib. A year ago I experienced a few episodes of break out afib, so my Cardiologist upped my flec to 200 mgs a day, from 100. That seemed to stop the afib episodes, as well as my PVC's. I have had PVC's for as long as I can remember. I was always told they were being caused by stress. I also had a heart murmur, but they don't seem to think that has anything to do with it. Have been treated for anxiety from time to time. Was always told when I had my pvc's to simply "don't think about them". It's hard to do when you feel like theres a frog jumping around in your chest! I have never smoked, and stopped drinking when I was diagnosed with afib. I also avoid anything with caffeine. I did do quite a lot of "recreational drugs" in my earlier years. Haven't for probably thirty years now. I still wonder if they had something to do with my problems now. I have had a catheterization a few years back, they said my arteries were clear. I had a chemical stress test a year ago, and also was told all was ok. They also gave me an echo, which was ok as well.
Recently I had an episode of Afib, but it only lasted a few hours. It was preceded however by a lot of PVC's One after every beat. I think it's called Bigemy. Since that night, I have started having almost constant PVC's they go away if I take a long walk, but come back right afterward. They also go away once I go to sleep. I had recently moved up here to the Mountains of North Carolina. My new cardiologist up here, put me on a heart monitor for a month. Said we might have to adjust my meds. He also asked if I had ever considered an ablation. Don't have my follow up until May 10th. I'm assuming they are not too worried, as they didn't have me come in sooner. They did call me twice to ask, " You are showing a lot of PVC's, do you feel them". Do I feel them! I feel it in my head, in my chest, and I feel like I'm going to faint half the time. I try to ignore them, but it's really difficult. What really scares me, is the thought that they will lead to something more serious. That my heart might stop entirely, or go into VF. Strange that since these have been happening, I haven't had another afib episode. It all, totally scares the hell out of me though!

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Hi. I am Karen, age 68, with a-fib diagnosed four years ago (and recently diagnosed with PCVs). For a-fib, I tried several drugs including Multaq which made me nauseas, weak and tired) I also tried flecanide, which made me sick. I could not tolerate any of the drugs they administered in the hospital, one after another (including Dofetiide which did not work, Dronedarone and propafenone. Flecanide seemed to almost stop the a-fib but made me very nauseas, I now just take metoprolol and Xarelto for a-fib.

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Hi. I joined the group because for the last 8 mos I have had symptomatic PVCs. I know they are benign but I still have ended up in the ER 3 x’s. The extreme temporal headache, jaw pain and dizziness makes ignoring them impossible. I also can’t seem to function for the days it occurs. I do have days when I am without symptoms. I am now getting a second opinion and am scheduled for a heart cath on Monday. I am wearing a 30 day monitor.

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Hi Kanaaz
Glad to be joining the group. Hoping in finding out how others manage their symptoms of POTS/Dysautonomia.
My daughter was recently diagnosed with dysautonomia. Her heart stops while having fainting episodes. On the tilt table test her pause was 30 seconds. She has been dealing with this since a teenager she is now 28. Her fainting episodes are triggered by anxiety or pain. It happens on average 3 times a yr. Many yrs of wrong medications & misdiagnosis has allowed this disorder to control her daily activities in her life.
Her new neuroscience dr recommends a pacemaker & is referring us to Mayo Clinic to see an Autonomic Specialist. We have been put on a waiting list at Mayo. It could be 6 months before we get in. It’s hard to wait so long for relief since she also suffers with migraines, neck pain, weakness, overall just never feeling “normal”. She is extremely thin, pale & always Cold.
Curious if others with similar symptoms/ diagnosis found relief from a pacemaker implant?
Concerned mom

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