Does anyone here have Hashimoto’s Thyroiditis?

Posted by alicebean @alicebean, Apr 27 8:52pm

I was diagnosed about 4 months ago, after almost two years of going to doctors for multiple symptoms. A simple deeper drive into my thyroid numbers revealed this diagnosis. It took so long to find out and that months of PT, scans, x-rays, MRIs, neurological studies could have been avoided. But I am here now and wondering if anyone has experience managing symptoms and flares?

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Profile picture for bearbayou @bearbayou

@jabrown0407 -- I've found that rheumatologists and/or endocrinologists--- like most conventional doctors=== favor pharmaceuticals over natural approaches to health. At any rate, please reconsider telling someone they "need" to find x specialist --nowadays, not everyone has insurance. This is a fact that is going to increase because of the state of health care in this country.

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@bearbayou Thanks for the reminders. The reasons the doctors prefer Big Pharma is two fold, one is the personal financial rewards they may or may not receive and the other is FDA approval for your problem.
OTC drugs are not monitored with FDA approval for anything and you cannot find double blind studies that support the claims made, plus many do not have dosage guidelines and side effects are never listed. All good reasons that I am extremely cautious about taking supplements.

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Profile picture for jabrown0407 @jabrown0407

@bearbayou Thanks for the reminders. The reasons the doctors prefer Big Pharma is two fold, one is the personal financial rewards they may or may not receive and the other is FDA approval for your problem.
OTC drugs are not monitored with FDA approval for anything and you cannot find double blind studies that support the claims made, plus many do not have dosage guidelines and side effects are never listed. All good reasons that I am extremely cautious about taking supplements.

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@jabrown0407 --- hello again. I feel that each of us is best served when we decide which healing approach(es) serves our health. Yet, I'm not against prescribed -drugs or else I'd be in trouble with my Hashimoto. .. unfortunately, now I am in trouble because the FDA (headed by Kennedy) is now actively removing porcine- based thyroid RXs from category of accepted treatments for hypothyroid and Hashimoto. ..I can't do the chemical RX for my hypothyroid/Hashimoto.. Thankfully, I can still get something thru Amazon, but unsure for how long. -- I feel each of us has to be informed and take a more active role in our health. --Conclusion: you do you and I'll do me...And may everyone make wise choices regarding their health..

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Profile picture for bearbayou @bearbayou

@lkirnbauer --- if interested in Izabella Wentz's books --note her 1st name is spelled Izabella, not Isabella--which with my local library meant they had zero of her books----- I corrected the spelling--and Ouija! all of her books appeared-- and I've checked them all out. I always try local library because this allows me to decide if I want to plunk down the $ to buy x book.

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@bearbayou Oops, sorry! Easy mistake to make, however. Glad you found her books, she’s very helpful.

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Hi all. I really appreciate hearing the kinds of approaches you have used to help keep Hashimoto’s symptoms to a minimum. I have seen an endocrinologist who favors a mix of conventional medicine along with dietary changes. So, I feel I have found the best of both worlds. I do research Dr.s who claim to have found natural supplements, and sell them, claiming they work. Clinical studies and evidence-based numbers really speak for themselves. Again, I am learning and if something has worked well for you, please share. If anything, I am glad I am not alone it this journey.

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Profile picture for Becky, Volunteer Mentor @becsbuddy

@bstrudel1 Welcome to Mayo Clinic Connect! I’m glad that you’re here. Have you had Hashimoto’s for long? If you have any questions about it, this is the place to ask!

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@becsbuddy
Hi, Becky -
I have Hashimoto’s and was told by a naturopath clinic to avoid sugar completely, even mayonnaise and sweet pickle relish. Then I finally was able to see an Endocrinologist who said “everything in moderation.” So how much sugar do you think is okay to consume? I know everyone is different, but I am interested in your thoughts?
Thank you!

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Profile picture for lkhorton01 @lkhorton01

@becsbuddy
Hi, Becky -
I have Hashimoto’s and was told by a naturopath clinic to avoid sugar completely, even mayonnaise and sweet pickle relish. Then I finally was able to see an Endocrinologist who said “everything in moderation.” So how much sugar do you think is okay to consume? I know everyone is different, but I am interested in your thoughts?
Thank you!

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@lkhorton01 good question. I think everyone is different. As a rule, I try to avoid obvious sweets, like donuts, candy, etc. I don’t drink fruit juices or sodas. But, today is my husband’s birthday and I am going to have a slice of cake! I have found the less sugar I have the less I crave it.

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Profile picture for alicebean @alicebean

@lkhorton01 good question. I think everyone is different. As a rule, I try to avoid obvious sweets, like donuts, candy, etc. I don’t drink fruit juices or sodas. But, today is my husband’s birthday and I am going to have a slice of cake! I have found the less sugar I have the less I crave it.

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@alicebean
Thanks for your reply! Great reminder re: the less you have sugar, the less you crave it.

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Profile picture for bearbayou @bearbayou

@jabrown0407 --- hello again. I feel that each of us is best served when we decide which healing approach(es) serves our health. Yet, I'm not against prescribed -drugs or else I'd be in trouble with my Hashimoto. .. unfortunately, now I am in trouble because the FDA (headed by Kennedy) is now actively removing porcine- based thyroid RXs from category of accepted treatments for hypothyroid and Hashimoto. ..I can't do the chemical RX for my hypothyroid/Hashimoto.. Thankfully, I can still get something thru Amazon, but unsure for how long. -- I feel each of us has to be informed and take a more active role in our health. --Conclusion: you do you and I'll do me...And may everyone make wise choices regarding their health..

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@bearbayou You may have options you have not thought of. I have had to get my BP drug from Canada due to multiple problems. The primary problem is I have to have brand because the generic causes my BP to go into stroke territory, brand works great to manage my BP.

I would recommend you check out ordering from Canada. Google it, there are approved pharmacies and their prices vary by pharmacy. You need to get your local doctor to Rx the drug, fax the drug Rx to the selected pharmacy in Canada, then call them to pay and have them ship the drug. It has worked for me for years.

I wish you success on your journey.
BTW - I agree that each patient needs to make appropriate decisions on their own health care. However, that means you need to know a great deal more than ever before to make the right decision based on your individual situation. Leaning in equals accepting accountability.

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Profile picture for lkhorton01 @lkhorton01

@becsbuddy
Hi, Becky -
I have Hashimoto’s and was told by a naturopath clinic to avoid sugar completely, even mayonnaise and sweet pickle relish. Then I finally was able to see an Endocrinologist who said “everything in moderation.” So how much sugar do you think is okay to consume? I know everyone is different, but I am interested in your thoughts?
Thank you!

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@lkhorton01 Well, I might be prejudiced , but I would take the endocrinologist’s word. I’m a believer in doctors and science-based medicine. But, your best bet would be to ask the endocrinologist what is their recommendation. Most food has some sugar, so I would say just don’t add any sugar! See if any continuing education programs have courses in using the sugar substitutes. It could be difficult, but do-able.
Do you have a rheumatologist? What is their opinion?

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Profile picture for Becky, Volunteer Mentor @becsbuddy

@lkhorton01 Well, I might be prejudiced , but I would take the endocrinologist’s word. I’m a believer in doctors and science-based medicine. But, your best bet would be to ask the endocrinologist what is their recommendation. Most food has some sugar, so I would say just don’t add any sugar! See if any continuing education programs have courses in using the sugar substitutes. It could be difficult, but do-able.
Do you have a rheumatologist? What is their opinion?

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@becsbuddy
I agree with listening to the Endocrinologist, so am limiting sugar…. I’ve found Stevia and honey to be good sugar substitutes. Thank you!

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