Does anyone here have Hashimoto’s Thyroiditis?
I was diagnosed about 4 months ago, after almost two years of going to doctors for multiple symptoms. A simple deeper drive into my thyroid numbers revealed this diagnosis. It took so long to find out and that months of PT, scans, x-rays, MRIs, neurological studies could have been avoided. But I am here now and wondering if anyone has experience managing symptoms and flares?
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I have had Hashimoto's with hypothyroidism for about 15 years with no major symptoms. However, after getting scleroderma 4 years ago and chronic fatigue that comes with this condition, my PCP put me on Synthroid. I do not feel any difference. It gives me a little GI sensitivity for a couple of hours after intake.
I have seen multiple posts on the web regarding desiccated bovine thyroid alternatives, Amour Thyroid and NP Thyroid. Do those really work? Do they cause any reaction, being "biologics"?
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2 ReactionsI was diagnosed with Hashimoto's at age 39 after the birth of my children and right before I went into preimenopause. It has been over 25 years now and I have been on Synthroid the whole time. I have good days and bad days. I have to watch everything I eat. During the times I was diagnosed with Covid it was bad. First covid was April 2020, 2021, 2022, 2024 I had so many symptoms and at the same time I am was in Postmenopause oh boy! I don't know where to start. Vertigo/Meniere's Disease, Vestibular Migraines,
Fatigue, Gut Issues, Body Aches, and my hair thinning. After talking with everyone on here I was able to get get information and was able to help my symptoms. In November 2025 the vertigo finally went away. I only get the vestibular migraines with the weather pressures. The body aches and fatigue are still there but not as bad. In February 2026 my son noticed a bald spot on top of my head. I was diagnosed with Alopecia Areata. Has anyone else having this issue? I am now starting research on how to stop it. Any help would be greatly appreciated. Thank you. Peace and Blessings to everyone.
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3 Reactions@becsbuddy Thanks for the welcome! I was diagnosed about 5 months ago, but looking back, I had symptoms for about two years. I found a clinic in Charleston SC that deals with thyroid diseases and they have been helpful. Thank you!
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1 ReactionYou did not say what types of doctors you are seeing. If you are not seeing an Endocrinologist for your thyroid issues you need to find one. Next you need a Rheumatologist to help with the autoimmune problems. Your PCP needs to help coordinate with your. They can be valuable since they have a very different perspective than any specialist.
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1 ReactionI was diagnosed with Hashimoto’s after going to several doctors for 2 years, so I totally relate. Staying away from sugar as much as possible has helped, as well as being gluten free and eating lots of fruits, veggies, nuts and seeds. I take 50 mcg of LEVOTHYROXINE every morning for associated hypothyroidism, which seems to help. I still have to sleep at least 9 hours per night to feel rested, plus a short nap in the afternoon…
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1 Reaction@lkhorton01 we sound very similar in experiences. I also take 50 mg a day of Levothyroxine. I was just starting a gluten free diet when I had another bowel obstruction 2 weeks ago. After it cleared I was advised to go on a bland diet, which was another dietary challenge. So, one day at a time, I am slowly working my way to finding what works best for me. I do know that diet has a direct impact on diminishing Hashimoto’s symptoms.
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1 ReactionI manage my Hashimoto’s symptoms by eliminating gluten, dairy, soy and seed oils. They are inflammatory foods and cause body inflammation. I also have a Thyroid condition and take Synthroid to treat that. The only way to treat Hashimoto’s alone is by diet. There is a great brook written by Isabella Wentz, Pharmacist on the Root Cause of Hashimoto’s and how to control it. It’s an excellent tool. All the best!
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2 Reactions@alicebean So sorry to hear about your bowel obstruction. I also have IBS-D and GERD, so I understand digestive issues. Glad you’re staying away from gluten, as your whole digestive system should feel better without it.
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1 Reaction@lkirnbauer --- if interested in Izabella Wentz's books --note her 1st name is spelled Izabella, not Isabella--which with my local library meant they had zero of her books----- I corrected the spelling--and Ouija! all of her books appeared-- and I've checked them all out. I always try local library because this allows me to decide if I want to plunk down the $ to buy x book.
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3 Reactions@jabrown0407 -- I've found that rheumatologists and/or endocrinologists--- like most conventional doctors=== favor pharmaceuticals over natural approaches to health. At any rate, please reconsider telling someone they "need" to find x specialist --nowadays, not everyone has insurance. This is a fact that is going to increase because of the state of health care in this country.
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