Does anyone here have Hashimoto’s Thyroiditis?

Posted by alicebean @alicebean, Apr 27 8:52pm

I was diagnosed about 4 months ago, after almost two years of going to doctors for multiple symptoms. A simple deeper drive into my thyroid numbers revealed this diagnosis. It took so long to find out and that months of PT, scans, x-rays, MRIs, neurological studies could have been avoided. But I am here now and wondering if anyone has experience managing symptoms and flares?

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I have had Hashimoto's with hypothyroidism for about 15 years with no major symptoms. However, after getting scleroderma 4 years ago and chronic fatigue that comes with this condition, my PCP put me on Synthroid. I do not feel any difference. It gives me a little GI sensitivity for a couple of hours after intake.
I have seen multiple posts on the web regarding desiccated bovine thyroid alternatives, Amour Thyroid and NP Thyroid. Do those really work? Do they cause any reaction, being "biologics"?

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I was diagnosed with Hashimoto's at age 39 after the birth of my children and right before I went into preimenopause. It has been over 25 years now and I have been on Synthroid the whole time. I have good days and bad days. I have to watch everything I eat. During the times I was diagnosed with Covid it was bad. First covid was April 2020, 2021, 2022, 2024 I had so many symptoms and at the same time I am was in Postmenopause oh boy! I don't know where to start. Vertigo/Meniere's Disease, Vestibular Migraines,
Fatigue, Gut Issues, Body Aches, and my hair thinning. After talking with everyone on here I was able to get get information and was able to help my symptoms. In November 2025 the vertigo finally went away. I only get the vestibular migraines with the weather pressures. The body aches and fatigue are still there but not as bad. In February 2026 my son noticed a bald spot on top of my head. I was diagnosed with Alopecia Areata. Has anyone else having this issue? I am now starting research on how to stop it. Any help would be greatly appreciated. Thank you. Peace and Blessings to everyone.

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Profile picture for Becky, Volunteer Mentor @becsbuddy

@bstrudel1 Welcome to Mayo Clinic Connect! I’m glad that you’re here. Have you had Hashimoto’s for long? If you have any questions about it, this is the place to ask!

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@becsbuddy Thanks for the welcome! I was diagnosed about 5 months ago, but looking back, I had symptoms for about two years. I found a clinic in Charleston SC that deals with thyroid diseases and they have been helpful. Thank you!

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You did not say what types of doctors you are seeing. If you are not seeing an Endocrinologist for your thyroid issues you need to find one. Next you need a Rheumatologist to help with the autoimmune problems. Your PCP needs to help coordinate with your. They can be valuable since they have a very different perspective than any specialist.

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I was diagnosed with Hashimoto’s after going to several doctors for 2 years, so I totally relate. Staying away from sugar as much as possible has helped, as well as being gluten free and eating lots of fruits, veggies, nuts and seeds. I take 50 mcg of LEVOTHYROXINE every morning for associated hypothyroidism, which seems to help. I still have to sleep at least 9 hours per night to feel rested, plus a short nap in the afternoon…

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Profile picture for lkhorton01 @lkhorton01

I was diagnosed with Hashimoto’s after going to several doctors for 2 years, so I totally relate. Staying away from sugar as much as possible has helped, as well as being gluten free and eating lots of fruits, veggies, nuts and seeds. I take 50 mcg of LEVOTHYROXINE every morning for associated hypothyroidism, which seems to help. I still have to sleep at least 9 hours per night to feel rested, plus a short nap in the afternoon…

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@lkhorton01 we sound very similar in experiences. I also take 50 mg a day of Levothyroxine. I was just starting a gluten free diet when I had another bowel obstruction 2 weeks ago. After it cleared I was advised to go on a bland diet, which was another dietary challenge. So, one day at a time, I am slowly working my way to finding what works best for me. I do know that diet has a direct impact on diminishing Hashimoto’s symptoms.

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I manage my Hashimoto’s symptoms by eliminating gluten, dairy, soy and seed oils. They are inflammatory foods and cause body inflammation. I also have a Thyroid condition and take Synthroid to treat that. The only way to treat Hashimoto’s alone is by diet. There is a great brook written by Isabella Wentz, Pharmacist on the Root Cause of Hashimoto’s and how to control it. It’s an excellent tool. All the best!

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Profile picture for alicebean @alicebean

@lkhorton01 we sound very similar in experiences. I also take 50 mg a day of Levothyroxine. I was just starting a gluten free diet when I had another bowel obstruction 2 weeks ago. After it cleared I was advised to go on a bland diet, which was another dietary challenge. So, one day at a time, I am slowly working my way to finding what works best for me. I do know that diet has a direct impact on diminishing Hashimoto’s symptoms.

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@alicebean So sorry to hear about your bowel obstruction. I also have IBS-D and GERD, so I understand digestive issues. Glad you’re staying away from gluten, as your whole digestive system should feel better without it.

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Profile picture for lkirnbauer @lkirnbauer

I manage my Hashimoto’s symptoms by eliminating gluten, dairy, soy and seed oils. They are inflammatory foods and cause body inflammation. I also have a Thyroid condition and take Synthroid to treat that. The only way to treat Hashimoto’s alone is by diet. There is a great brook written by Isabella Wentz, Pharmacist on the Root Cause of Hashimoto’s and how to control it. It’s an excellent tool. All the best!

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@lkirnbauer --- if interested in Izabella Wentz's books --note her 1st name is spelled Izabella, not Isabella--which with my local library meant they had zero of her books----- I corrected the spelling--and Ouija! all of her books appeared-- and I've checked them all out. I always try local library because this allows me to decide if I want to plunk down the $ to buy x book.

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Profile picture for jabrown0407 @jabrown0407

You did not say what types of doctors you are seeing. If you are not seeing an Endocrinologist for your thyroid issues you need to find one. Next you need a Rheumatologist to help with the autoimmune problems. Your PCP needs to help coordinate with your. They can be valuable since they have a very different perspective than any specialist.

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@jabrown0407 -- I've found that rheumatologists and/or endocrinologists--- like most conventional doctors=== favor pharmaceuticals over natural approaches to health. At any rate, please reconsider telling someone they "need" to find x specialist --nowadays, not everyone has insurance. This is a fact that is going to increase because of the state of health care in this country.

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