What's your experience wtih Brinsupr (brensocatib)?

@blm1007blm1007 No, I meant my local doctors. I see both my ID and Pulm doctor in June and July, respectively. I won't be going back to NJH until October. Yes, depending on what units you use, define the number of zeros. So, mine were 4100 last check. The year prior when I had 5840, I may have had a slight infection since my CRP was elevated. Last check my CRP was normal.

@kathyjjb Interesting about having the CRP checked.
Does your Pulm or Primary Care Doctor, PCD, do that test? How often? Are you in pre Medicare or Medicare?

My PCD is hesitant somewhat in prescribing certain tests due to not knowing if certain tests will be approved. I wanted my D level tested ,at least once a year, and they said I needed to check with Medicare to see if it would be approved. I thought the doctors office did the inquiry, Advance Beneficiary Notice for approval or non approval.
Barbara

Well I just got hit with that Common Cold, which can be a side effect of Brinsupri and it sure is a whammy. Three days of sinus headaches, coughing, mucus production, disrupted sleep & zero energy. This has exhausted me. Wondering if anyone else has had it? Hoping it's on it's way out/gone.
Still questioning if Brinsupri is helping. My husband says he hasn't seen a difference in me to this point. Weighing risks vs benefits!

Well I just got hit with that Common Cold, which can be a side effect of Brinsupri and it sure is a whammy. Three days of sinus headaches, coughing, mucus production, disrupted sleep & zero energy. This has exhausted me. Wondering if anyone else has had it? Hoping it's on it's way out/gone.
Still questioning if Brinsupri is helping. My husband says he hasn't seen a difference in me to this point. Weighing risks vs benefits!

@tolepainter I've been on brensocatib for 8 months and, like you, have had lots of upper airway side effects. Dry cough, tons of sinus drainage, sneezing. It may be just due to seasonal allergies, but I've never really had bad allergies before.

One the plus side, I have considerably more energy than I've had in a long time. I still become short of breath with exercise, but that's probably due to having had a lung lobe removed from bronchiectasis. I also have a significant decrease in mucus production.

After 3 years of dealing with this disease, I finally feel like I'm getting my life back, which is such a blessing!

Yes, the lobectomy was difficult. I'd compare it to my abdominal hysterectomy in terms of discomfort and recovery time, though the hysterectomy was more painful. I had the lobectomy because my right middle lobe was non-functioning and a repository for infection. Dr Mitchell at the University of Colorado did the surgery robotically and I was out of bed the next day and walking briskly by day 3. The surgery was recommended by my doctor at NJH, whom I totally trust, and Dr Mitchell has a lot of experience with MAC and bronchiectasis patients.

I was also 72 when I had the surgery. Good luck!

Yes, the lobectomy was difficult. I'd compare it to my abdominal hysterectomy in terms of discomfort and recovery time, though the hysterectomy was more painful. I had the lobectomy because my right middle lobe was non-functioning and a repository for infection. Dr Mitchell at the University of Colorado did the surgery robotically and I was out of bed the next day and walking briskly by day 3. The surgery was recommended by my doctor at NJH, whom I totally trust, and Dr Mitchell has a lot of experience with MAC and bronchiectasis patients.

I was also 72 when I had the surgery. Good luck!