MayoClinic.org
B-6 vitamin danger!
With the assistance of a neurologist at Mayo Clinic, I have almost completely eliminated the uncontrolled muscle spasms now. First and foremost: beware of taking multi-vitamin capsules that have B6 listed. B-6 overdosage (which is contained in every multivitamin I found in stores and on the internet) can cause loss of muscle control and spasms in some people. So can gluten found in many foods so now I am also gluten free. I now work out with a personal trainer 3 days a week and do water aerobics another 2 days. Got off gabapentin and also clonazepam. Using CBD oil capsules each morning (no more opioids or chemicals) and using a CBD topical ointment to rub on my leg muscles each night. He says I don’t need him anymore! And I don’t. No more shaking or muscle cramps or pain. Still a little numbness but that is receding also.
Just curious. Which mayo did you go to and who was your physician? Thanks!
Hello @1834, welcome to Mayo Clinic Connect. May I ask which member you are addressing with your question? If they are not following the discussion they may not see your question. To ensure they see your post just tag them with their member name like I did at the start of this post which sends you an email notification for this message.
John
Hi John, I got the peripheral neuropathy pain and confusion one month BEFORE I took the vitamin B-complex and the vitamin B12. My folate and homocysteine is normal. I just found out my calcium level is high now and I don't take calcium. I guess we might be looking into bone marrow cancer. I stopped the vitamin d-3 and ester-c (only took C for 5 days). I stopped the probiotic and the fish oil. Not taking any supplements at all now. I never took a multi-vitamin either. The doctor thinks it could have been an allergic reaction to the flu shot. My body is going haywire. Doctor said I could try prednisone but I'd rather wait to see what the spinal tap shows. I'm slowly getting better but today it's more the lower extremities and mostly my left leg is burning and rushing with the neuropathy and my feet. It's really bizarre how it changes each day, days or weeks what it does. I ordered 3 air purifiers last night. Trying anything. I'm even sleeping on the couch. Nice to talk to someone who listens and cares and doesn't think I'm crazy. Thank you.
@lynsorensen, Just curious. Which mayo did you go to and who was your physician? Thanks!
Hi cokie63. Just a note to say hang in there. You’ll find @johnbishop an amazing resource for guiding through the resources here. Neuropathy can be so confusing and exhausting with its constant changes. You’re not crazy. You may want to consider logging your symptoms and changes as you introduce new things into your body or environment. Different things work for everyone. I hope you find some relief. You’re not crazy. I wish you well
@cokie63 There are other reasons for high blood calcium such as hyperparathyroidism. My elderly mom had this and her blood calcium level was high and they removed a parathyroid gland (there are 4) and then tested blood levels again while she was still on the operating table to make sure they got the right one which was confirmed. Here are a few links, one from Mayo, and another form a private practice that explains a lot of causes of high blood calcium. When my mom's levels were high, she had a lot of memory problems which resolved after her surgery. This problem removes calcium from the bones and it goes into the blood. She couldn't take calcium or drink milk at all while this was happening. As soon as she had recovered from this surgery, she fell and broke her pelvis, her ankle and her foot. My thoughts are the bones were thin from this problem causing the break in her foot when she twisted her ankle resulting in the fall and pelvis fracture. She spent 3 months in a rehab center before coming back home. The parathyroids are in the front of the neck near the thyroid gland and an easy path to removal and recovery.
https://www.mayoclinic.org/diseases-conditions/hyperparathyroidism/symptoms-causes/syc-20356194
https://www.parathyroid.com/high-calcium.htm
Thanks for the links and the information @jenniferhunter!
@johnbishop Glad I could help.
Hi Jennifer, yes that is one other thing my new MD mentioned it could be. I forget so much. Thank you for your reply every bit helps to try to find an answer.
Hi givinghope, it is constantly changing. Mine seems to be decreasing but at such a slow rate. The weird sensations on/in my back like hairs are standing on end and that's just one. I found that sleeping on the couch for 2 nights helped a smidge with the brain. We put the new air purifier in our bedroom last night and when I laid in bed, my left eye immediately burned and hurt. my sinuses were better. I'm a left side sleeper. I've been sleeping with 2 heating pads under my spine which helps with my spine pain BUT I'm starting to believe that my latex topper, mattress and pillow is causing at least my eye condition which started at the same time as the peripheral neuropathy. Either hypersensitivity to everything or HIGH VOCs. I'm determined to find an answer and get better and with this chat site, I feel finally someone understands so thank you.
Hi lyn
Can you share with us what type of cbd you are using and the name of the cream
Hi johnbishop, I don't know what's going on with the B6 but I am going to ask for a retest of the B6 and B12 and calcium. My calcium is also too high now. I did find some crucial information to this puzzle of the peripheral neuropathy. I believe it is from the Flu Vaccine I got on November 15th. Yesterday I found my blood work from the day I had the flu shot and the Physician Assistant had run my calcium level and my calcium was perfect. After the onset of this peripheral neuropathy, I was tested for calcium by my new medical doctor and she found my calcium is too high now. The culprit goes back to the Flu Vaccine. No one knows our bodies better than we do.