B-6 vitamin danger!

Posted by Lynsorensen @lynsorensen, Dec 11, 2017

With the assistance of a neurologist at Mayo Clinic, I have almost completely eliminated the uncontrolled muscle spasms now. First and foremost: beware of taking multi-vitamin capsules that have B6 listed. B-6 overdosage (which is contained in every multivitamin I found in stores and on the internet) can cause loss of muscle control and spasms in some people. So can gluten found in many foods so now I am also gluten free. I now work out with a personal trainer 3 days a week and do water aerobics another 2 days. Got off gabapentin and also clonazepam. Using CBD oil capsules each morning (no more opioids or chemicals) and using a CBD topical ointment to rub on my leg muscles each night. He says I don’t need him anymore! And I don’t. No more shaking or muscle cramps or pain. Still a little numbness but that is receding also.

I share your concerns (and pain) Just a note of caution as you search for possible remedies. Most firms will offer a money back guarantee if their product does not help you. Just make sure that you check "terms and conditions" before you execute the order. One place that I tried- CBD Nanomeds is one of those that, I found out the hard way, does not offer that kind of safety net.-. Best of luck on your journey.
Arnrob

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@cancersucks

That is not a toxic dose.

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Just saying research and read up on the B6 ingredients and know yourself. I'm going for tests to see if I have SIBO or malabsorbtion because I only took 16.7mg of B6 once a day for 3 weeks and my B6 blood work was 106.7 and the B6 limit in blood work is 21.6 so I'm more than triple high B6.

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@stlouismo

Hello, I was told I had peripheral neuropathy after a back surgery that never seemed to help. The neurologist I saw for about a year moved out of state but never suggested anything so now I am just going to my regular doctor. In the past 5 years it has been about the same it starts in my toes and then my feet ankles and shins burn some. This is mostly in the evening before bedtime. I walk on a treadmill regularly and sometimes I don't feel the pins and needles. Since I have a sleep disorder I take a prescribed sleeping pill that I take with the pm tablet. After about an hour the pins and needles stop and if I am awake I get very hungry. My doctors advise is only to keep walking. I can't say my neuropathy has gotten worse as I was told it would. Although I dislike the pain and discomfort maybe I am lucky. I have tried some CBD oil orally but can't say it helped. Perhaps I should try something topical ? Here in Missouri we can't take anything with any THC unless prescribed. Any suggestions ? Jerrys

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@stlouismo
Your pins and needles stop after you take your sleeping pill? Did the doctor's say why the neuropathy you have would get worse? I'm still on a roller coaster of trying to figure out why I have peripheral neuropathy. My feet get worse when I walk. I haven't used CBD oil. I've read that people try different kinds of CBD oil (brands)because what works for one may not work for another. To soothe my feet, I soak my feet in a dish basin with warm water, epsom salts (epsom salt is magnesium so magnesium is being absorbed thru your feet just in case you take any meds that interact with magnesium)and add Himalayan pink salt to my foot bath. The hotter my feet get in shoes or the shower, the more pins and needles I get too so I cool them down with cool water. I have also rubbed some Frankincense on the soles of my feet am and pm. I've researched more ways to help neuropathy but I'm limiting my trials because I have to go for more blood work and don't want anything impacting my test results. I have two Tarlov Cysts in my sacrum which I feel is part of if not most of my neuropathy now. But that's still being investigated. Vitamin B12 methyl only is supposed to help with neuropathy. I think it was helping the neuropathy I have but I had to stop all my vitamins/herbs due to possible malabsorption or SIBO. Believe this or not, I get a bit of neuropathy relief from coffee with caffeine. It's really weird because I could never drink caffeine before.

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@stlouismo

COMPRESSION SOCKS !!!!
I walked away after my reply and remembered (my mind has some neuropathy) compression socks work great for foot and leg neuropathy for me. I have several kind of compression socks and found only one kind of compression sock works for me. So again it's trial and error but it provides me with great relief above anything else right now. Sometimes I wear them for 3 days and nights straight(no stinky feet here) when the pain has peaked and the compression socks really calms down the pain! Hope this helps. I got them from Amazon.

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@lynsorensen

Here is the quote (one of many) I found on the internet in a Google search a month ago: ” People almost never get too much vitamin B6 from food. But taking high levels of vitamin B6 from supplements for a year or longer can cause severe nerve damage, leading people to lose control of their bodily movements.Feb 17, 2016″
I checked the multivitamin capsule I was taking each morning and discovered it contained 200% ADA of B6. This on top of a vegetarian diet already rich in B vitamins. My numbness in the legs and the uncontrollable muscle spasms in arms and legs had gotten worse after I started taking them. I stopped the vitamin capsules, went on a gluten free diet, and increased exercise to 5 days a week. I met with the Neurologist at Mayo who was not surprised that a lot of my problem had been identified.

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Hi Lyn.. I'd love to connect with you, since it sounds like you've remedied a lot of your symptoms.. Please let me know is your willing and how best to connect..

Loreal

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@cokie63

@stlouismo
Your pins and needles stop after you take your sleeping pill? Did the doctor's say why the neuropathy you have would get worse? I'm still on a roller coaster of trying to figure out why I have peripheral neuropathy. My feet get worse when I walk. I haven't used CBD oil. I've read that people try different kinds of CBD oil (brands)because what works for one may not work for another. To soothe my feet, I soak my feet in a dish basin with warm water, epsom salts (epsom salt is magnesium so magnesium is being absorbed thru your feet just in case you take any meds that interact with magnesium)and add Himalayan pink salt to my foot bath. The hotter my feet get in shoes or the shower, the more pins and needles I get too so I cool them down with cool water. I have also rubbed some Frankincense on the soles of my feet am and pm. I've researched more ways to help neuropathy but I'm limiting my trials because I have to go for more blood work and don't want anything impacting my test results. I have two Tarlov Cysts in my sacrum which I feel is part of if not most of my neuropathy now. But that's still being investigated. Vitamin B12 methyl only is supposed to help with neuropathy. I think it was helping the neuropathy I have but I had to stop all my vitamins/herbs due to possible malabsorption or SIBO. Believe this or not, I get a bit of neuropathy relief from coffee with caffeine. It's really weird because I could never drink caffeine before.

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Cold water feels better on my feet too.

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Hi! I’m new to this post. I took a b complex supplement this weekend and it has absolutely made me sick. Nausea. Anxiety. And shaking/trembling. All vitamins in the complex were 1200% the daily allowance. What was I thinking? How could they sell this at that recommended dosage? My question is are there any tricks to stop the shaking? It seems to be the main lingering symptom. I’m on day 4 of no vitamins and I just took the single recommended dose. Any help appreciated.

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@eeklady

Hi! I’m new to this post. I took a b complex supplement this weekend and it has absolutely made me sick. Nausea. Anxiety. And shaking/trembling. All vitamins in the complex were 1200% the daily allowance. What was I thinking? How could they sell this at that recommended dosage? My question is are there any tricks to stop the shaking? It seems to be the main lingering symptom. I’m on day 4 of no vitamins and I just took the single recommended dose. Any help appreciated.

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Hi @eeklady — I have no medical training or background but anyone with neuropathy has to be super careful with B6. You might want to check with your local doctor or pharmacist about your symptoms. The recommended daily allowance of B6 for adults is less than 2 mg and if your b complex supplement is 1200% daily allowance that would be a big problem unless your B6 levels are being monitored by your doctor. Here's a fact sheet that may be helpful:

Vitamin B6 Fact Sheet
https://ods.od.nih.gov/factsheets/VitaminB6-HealthProfessional/

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@johnbishop

Hi @eeklady — I have no medical training or background but anyone with neuropathy has to be super careful with B6. You might want to check with your local doctor or pharmacist about your symptoms. The recommended daily allowance of B6 for adults is less than 2 mg and if your b complex supplement is 1200% daily allowance that would be a big problem unless your B6 levels are being monitored by your doctor. Here's a fact sheet that may be helpful:

Vitamin B6 Fact Sheet
https://ods.od.nih.gov/factsheets/VitaminB6-HealthProfessional/

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Thanks for your reply. I appreciate it.

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@johnbishop

Hi @eeklady — I have no medical training or background but anyone with neuropathy has to be super careful with B6. You might want to check with your local doctor or pharmacist about your symptoms. The recommended daily allowance of B6 for adults is less than 2 mg and if your b complex supplement is 1200% daily allowance that would be a big problem unless your B6 levels are being monitored by your doctor. Here's a fact sheet that may be helpful:

Vitamin B6 Fact Sheet
https://ods.od.nih.gov/factsheets/VitaminB6-HealthProfessional/

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Here is an additional case which is highly likely an example of Vit B6 toxicity. My 73 y.o. wife developed severe burning on the soles of the feet which made sleep very difficult. When she shared it with me (M.D./Pathologist, retired), I hit the literature to explore possible causes that might be diagnosed by her general physician. As noted, this phenomenon is often idiopathic (no known cause) though myeloma protein, lupus, etc. and, oh yes, excess pyridoxine (B6) are known to be causes. Next step, to check my wife's vitamin bottles: multivites 2/day X 50 mg, plus B vitamins at "200 mg" day. Literature states anywhere from 100 and up may be toxic. Next step: discontinue both. watch and wait. One week later, after several nights of wonderful sleep, we conclude that this is highly likely to have been a case of pyridoxine toxicity (Thank the Good Lord!). So, beware out there. Joseph Keffer, M.D.

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@jhkeffer

Here is an additional case which is highly likely an example of Vit B6 toxicity. My 73 y.o. wife developed severe burning on the soles of the feet which made sleep very difficult. When she shared it with me (M.D./Pathologist, retired), I hit the literature to explore possible causes that might be diagnosed by her general physician. As noted, this phenomenon is often idiopathic (no known cause) though myeloma protein, lupus, etc. and, oh yes, excess pyridoxine (B6) are known to be causes. Next step, to check my wife's vitamin bottles: multivites 2/day X 50 mg, plus B vitamins at "200 mg" day. Literature states anywhere from 100 and up may be toxic. Next step: discontinue both. watch and wait. One week later, after several nights of wonderful sleep, we conclude that this is highly likely to have been a case of pyridoxine toxicity (Thank the Good Lord!). So, beware out there. Joseph Keffer, M.D.

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Hello Joseph @jhkeffer, Welcome to Connect. Thank you for sharing how B6 toxicity affected your wife. It's great to hear that discontinuing the multivitamins made a difference. Most people don't understand the impact and just think it's only vitamins…vitamins are good for you. A person really has to be their own advocate and learn as much as they can about their health. It's awesome that your wife has her own live in doctor who can be her advocate. Thanks again for sharing on Connect.

There is another discussion on Connect that you may be interested in (just in case).

> Groups > Neuropathy > Burning Feet syndrome
https://connect.mayoclinic.org/discussion/burning-feet-syndrome/

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@johnbishop

Hello Joseph @jhkeffer, Welcome to Connect. Thank you for sharing how B6 toxicity affected your wife. It's great to hear that discontinuing the multivitamins made a difference. Most people don't understand the impact and just think it's only vitamins…vitamins are good for you. A person really has to be their own advocate and learn as much as they can about their health. It's awesome that your wife has her own live in doctor who can be her advocate. Thanks again for sharing on Connect.

There is another discussion on Connect that you may be interested in (just in case).

> Groups > Neuropathy > Burning Feet syndrome
https://connect.mayoclinic.org/discussion/burning-feet-syndrome/

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You won’t believe this! My first neurology visit in June 2018 had me leaving with a food grade vitamin RX called Metanx, you call the company directly and they mail it to your home. Of course I was very excited and hoping for relief and began taking them immediately – within a few days my tingling burning numbness pain increased tremendously, I cut it back to one time per day instead of two, felt somewhat better, so totally eliminated it and was back to my baseline. THEN I did my research and deduced that it was the 70 mg. of B6 which I didn’t need, based on my primary care doctor ordered bloodwork. This neurologist never even checked my vitamin levels before prescribing this! He was 'fired'.

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Hi @wisfloj. So glad you were able to find the cause on your own. For a blood test result, the doctor has to specifically ask for each test. I don’t think there is a general test to check all vitamin levels. Unfortunately some doctors do not look at vitamins for causes of side effects. That is why I believe each person has to learn about there own body through trial and error. How did you suspect a B6 toxicity? Were you taking the supplement for a long time, over a year? Any side effects besides neuropathy? I know some foods are fortified with vitamin Bs.

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@avmcbellar

Hi @wisfloj. So glad you were able to find the cause on your own. For a blood test result, the doctor has to specifically ask for each test. I don’t think there is a general test to check all vitamin levels. Unfortunately some doctors do not look at vitamins for causes of side effects. That is why I believe each person has to learn about there own body through trial and error. How did you suspect a B6 toxicity? Were you taking the supplement for a long time, over a year? Any side effects besides neuropathy? I know some foods are fortified with vitamin Bs.

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Let me clarify- I initially went to my primary care doctor because of tingling in my hands and feet, she ordered some general bloodwork and did detect low B 12 so I started supplementing with that, after spine x-rays and MRIs, plus a brain MRI she suggested I see a neurologist since she didn’t know what was causing the symptoms which in the mean time were increasing from tingling to pain and burning by this point. The neuro. did the usual vibration and reflex tests then prescribed Metanx not knowing my B levels or any vitamin levels at the time. I had only taken it for about 7 to 10 days when I felt like all the nerves in my body were activated and painful, hard to describe but it definitely wasn’t helping me. Upon returning to my primary care doctor I asked to be checked for B1,B6 and B 12 again, the B 12 Was way too high so I had to reduce my supplement to one time a day.
So basically I have idiopathic neuropathy aka “don’t know the cause and there is no cure”

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WISFLOJ Do you remember what your b-12 was. Mine is 2,000 .,but no one says it's too high although it's not in the range.

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