B-6 vitamin danger!

Posted by Lynsorensen @lynsorensen, Dec 11, 2017

With the assistance of a neurologist at Mayo Clinic, I have almost completely eliminated the uncontrolled muscle spasms now. First and foremost: beware of taking multi-vitamin capsules that have B6 listed. B-6 overdosage (which is contained in every multivitamin I found in stores and on the internet) can cause loss of muscle control and spasms in some people. So can gluten found in many foods so now I am also gluten free. I now work out with a personal trainer 3 days a week and do water aerobics another 2 days. Got off gabapentin and also clonazepam. Using CBD oil capsules each morning (no more opioids or chemicals) and using a CBD topical ointment to rub on my leg muscles each night. He says I don’t need him anymore! And I don’t. No more shaking or muscle cramps or pain. Still a little numbness but that is receding also.

@melissaw

@johnbishop @njcarolnjn in regards to your neuropathy, are you still experiencing symptoms? Do you know your calcium and/or iron levels? I have found that low dose calcium brings down B6 levels and improves neuropathy that is induced by elevated B6 levels.

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Thanks @melissaw — I still have the numbness but it's not progressing since I've been taking supplements. I've had all the blood panels taken and all are within normal range.
John

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I am new to this community. Are there still members following this B6 discussion?

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I have been diagnosed with vitamin b6 toxicity with four very toxic levels drawn. Not coming from anything I take and I don't take supplements. We can't get the level down no matter what we try. I have electric shocks, numbness, pins and needles and much more. Any suggestions? Thinking about going to the Mayo Clinic and need to know if they can help? I have been to two neurologists / endocrinolgists / general dr.'s / ob-gyn's and had over 200 blood tests drawn. The idea was Hypophosphatasia – but I had a bone scan and completely normal and a detailed dental exam for bone less and completely normal. Any help is greatly appreciated. Thank you!

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@airialsmith

I have been diagnosed with vitamin b6 toxicity with four very toxic levels drawn. Not coming from anything I take and I don't take supplements. We can't get the level down no matter what we try. I have electric shocks, numbness, pins and needles and much more. Any suggestions? Thinking about going to the Mayo Clinic and need to know if they can help? I have been to two neurologists / endocrinolgists / general dr.'s / ob-gyn's and had over 200 blood tests drawn. The idea was Hypophosphatasia – but I had a bone scan and completely normal and a detailed dental exam for bone less and completely normal. Any help is greatly appreciated. Thank you!

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Hi @airialsmith, welcome to Connect. I know vitamin b6 toxicity can be hard to pin down. I found a website with a lot of good information that may be helpful to you.

Find Out the Real Reason For Vitamin B6 Toxicity
https://www.easy-immune-health.com/vitamin-b6-toxicity.html

@airialsmith have you ever been tested for the MTHFR gene? The MTHFR gene is extremely common and can lead to a problem processing the B Vitamins.

Mayo Clinic is very good at diagnosing health issues that are difficult to diagnose. If you would like to seek help from Mayo Clinic, you can contact one of their appointment offices. The contact information for Minnesota, Arizona and Florida can be found here:

Mayo Clinic Contact Information: http://mayocl.in/1mtmR63.

John

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@airialsmith

I have been diagnosed with vitamin b6 toxicity with four very toxic levels drawn. Not coming from anything I take and I don't take supplements. We can't get the level down no matter what we try. I have electric shocks, numbness, pins and needles and much more. Any suggestions? Thinking about going to the Mayo Clinic and need to know if they can help? I have been to two neurologists / endocrinolgists / general dr.'s / ob-gyn's and had over 200 blood tests drawn. The idea was Hypophosphatasia – but I had a bone scan and completely normal and a detailed dental exam for bone less and completely normal. Any help is greatly appreciated. Thank you!

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Hi, @airialsmith – I would like to join @johnbishop in welcoming you to Mayo Clinic Connect. You may notice that I merged your discussion with an existing discussion titled, "B-6 vitamin danger." I moved it here so you could read through some of the other members' posts on Vitamin B6 toxicity and interact with some of them.

Hoping that members like @gman007 @parus @arnrob @nydiver59 who have talked about Vitamin B6 toxicity will join in to share their experiences and offer any thoughts on the difficulties getting the level down no matter what you try, and dealing with symptoms of electric shocks, numbness, and pins and needles.

I also would echo what @johnbishop said about considering contacting Mayo Clinic about the potential of being seen.

How are you managing your symptoms currently, @airialsmith?

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@airialsmith Please keep posting as to what you find out. This sounds like it would be rather frightening.

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Is anyone still on this thread?

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@rjb1682

Is anyone still on this thread?

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Hello @rjb1682, welcome to Connect. There are some active members in this discussion including @airialsmith, @parus, @arnrob and @nydiver59 and myself.

@rjb1682 do you have a question you are trying to get answered?

John

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@parus

@johnbishop Thank you John. I am not scheduled for any follow-ups until the 6 month check-up. I see the pain specialist in February. I can ask him for input if he has the time. Always the feeling of “get them in, get them out” or like patients are being herded like cattle. Pay no mind unless one hits the ground and cannot get up. I won’t try that technique. Just very discouraged with a low quality of life. Thing is I am retired (not by choice) and they have other patients that there is hope for in some way. Sounds like the depression talking and it is. Thing is I do not have a history of pain until 2009. Seems since I have mental health issues I am not being listened to and any of the structural problems cannot be fixed, Fibromyalgia meds do nothing but mess with my psyche. If a doctor cannot prescribe a pill to help I feel like my seeing one is pointless. I am not drug seeking, attention seeking or any of the other things that I have had hurled at me. I am whining and not my thing either. Discouragement sums it up. Yup, the 2 “D” words.
I also get asked when I see the therapist again. In short, tell the therapist. What is a therapist supposed to do for physical problems. Even the therapist says, “what am I supposed to do?”. Suck it up old person your life is over and you are a waste of my time and skin.

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My psychiatrist said that "pain is depressing". That rings true, doesn't it …
Peggy

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what kind of cbd oil and cbd lotion I tried one for 50!dollars and it didn't help

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@nydiver59

Hi all, I’m new to the group and hope to find some answers. I was diagnosed in January with high levels of vitamin B6, per the lab sheet normal is 5.3 – 46.7 ug/L and I was at 93. I had been having burning sensations/pain on my hands, feet, face and sporadically on other areas for quite a while. I visited several doctors and finally ended up at an allergist office (he’s the first one to think to test for B6). He felt the B6 was causing peripheral neuropathy. His advice was to stop taking all vitamin supplements and protein shakes and retest in 3 weeks. I spent the last month drinking 90 oz of water per day and really trying to limit my B6 intake. Fast-forward to last week and the blood work came back with normal B6 levels, 22 ug/L. I guess the questions at this point are; how long does it take for the symptoms to resolve and what follow up should I be doing?

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Hi I'm new to this today. But I'd like to let everyone know my experience recently. I had breast cancer in 2015 did chemo and radiation and all this time I've had neuropathy in my feet and can't walk. And I mean I can't walk they are so bad. I recently went to a neurologist and had some blood work done. He told me that my B6 level was 292.8! He told me that the normal should run around 1:25. He told me that B6 causes nerve peripheral neuropathy!! So I was pleased to find this group I hope that everyone will go get a blood test on your B6. All this time I thought it was from the chemotherapy but now I think it is from B6 overdose. The only problem is is I don't know where I'm getting all the B6. I don't do fruit protein shakes or vitamins. I'd like to hear some comment and feedback

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I reply to this thread lower below it's my first time on here so I was confused on how to reply. But I'd like everyone who is experiencing peripheral neuropathy, to read the comments below that I wrote. In short I would like to tell everyone that is taking B6 my neurologist told me that B6 causes peripheral neuropathy!! I trust his advice and I don't know how to lower my B6 because I don't know what is giving me this excessive B6. But I can barely walk my feet hurt so bad I have stopped working and going anywhere that requires a lot of walking please get your B6 checked it's a simple blood test and reply to this I would appreciate all the comments

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