Chronic pain - Let's talk

Posted by leh09 @leh09, Mar 23, 2016

Are there any discussions for chronic pain?

Liked by SpineAZ, bob815c

@suebreen54

Hi I have chronic pain since 2015 I go to a pain clinic. I used to be involved in the pain association. I’d love to talk anytime. We can do it right here

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I’ve had surgeries, injections, nerve burns, multiple medications, psychotherapy, physical therapy, and been thru the pain rehab clinic. The only thing that works is opioids. I’m tired! Tired of doctors that look at me with suspect, tired of the pain. Just so tired. I keep moving, keep going, ride my bike, grocery shop, cook, and once again I’m so tired of it all. I’m NOT suicidal but those thoughts have entered my mind. I SO WISH that medical marijuana was legal so I could try that. I’ve heard it works well, but I live in a conservative state. I’m trying to get on disability, but have been rejected twice. I now have an attorney that is trying. Enough ranting for tonight but it helps to unload to those that might understand.

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@suebreen54

Hi I have chronic pain since 2015 I go to a pain clinic. I used to be involved in the pain association. I’d love to talk anytime. We can do it right here

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I can sympathies. There maybe so other things to try so keep checking on new alternatives and I might suggest you write your elected officials as these are the ones who will make the final decision to shut off opioids. I have tried many things including tems units, acupuncture, and other things. I have not tried hypnosis yet, but that is only because I know of on one in my area who does it for pain. You might try counseling, but be aware any threats of self harm could land you in a hospital. Keep trying to find things that help. One of my big issues is to encourage the development of an objective measure for pain. I think this might help a lot of people as well as doctors. If they could objectively measure our pain and how well pain control methods worked or didn’t work it would make it easier to get better treatment for pain.

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Liked by leh09, salena54

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@19lin

I have had chronic pain for over 40 years and use strong medicine to fight it. My concern is that there are groups trying to ban opioids for everyone except cancer patients and temporary short term use. 19lin

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You may have been, but this particular thread has been really active recently, so I moved you over here in hopes you could join the conversation 🙂 Some threads are more active than others, so I wanted you to get the most interaction.

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@19lin

I have had chronic pain for over 40 years and use strong medicine to fight it. My concern is that there are groups trying to ban opioids for everyone except cancer patients and temporary short term use. 19lin

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How do I get on the thread chronic pain lets talk?

Liked by jeannen

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I don’t know for sure as the moderator came on line and moved me there, contact the people who run the site.

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@19lin

I have had chronic pain for over 40 years and use strong medicine to fight it. My concern is that there are groups trying to ban opioids for everyone except cancer patients and temporary short term use. 19lin

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Thank you I appreciate it, but how do you get to this site when I sign on I can not find it?

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@19lin

I wish I could go swimming as I am disabled and swimming is about the only exercise I could do, but the only swimming pool is too far away and too expensive. Also it is not doctors who are restricting opioids although some doctors are involved.
Due to untimely deaths from over doses the thinking is that eliminate opioids and stop the deaths, but in some journals on pain their are studies that show a high rate of suicide among chronic pain suffers. The limiting of opioids is more likely result in increased suicides as well as more suffers going out side the law for dangerous illegal drugs. I do not see anything good coming from these restrictions.

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The American Medical Association ( AMA) is who recently made the recommendation to limit opioids to patients with acute pain and cancer and to NOT use opiods for chronic pain. I’m so frustrated feeling like I’m “drug seeking” Well I guess I am drug seeking, just not the same as a drug addict. My message to the AMA is “You may think you know what my chronic pain is, but I don’t think you do. Even those who have experienced chronic pain do not know about MY chronic pain and what works for me!”

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Hi @gravey @19lin @leh09 @suebreen54 @mrsg @excentrk,

As Community Director of Mayo Clinic Connect, I’m thrilled that you have all connected about this very important topic – chronic pain. Having posted to this thread, you automatically receive email notifications when a new message is posted. (You can unsubscribed from these emails at any time.)

If you want to find this thread on the website Mayo Clinic Connect, simply go to the group “Just Want to Talk” https://connect.mayoclinic.org/group/other/?tab=discussions and then click the thread titled “Chronic pain – Let’s talk”.

Let’s keep talking and as @leh09 @suebreen54 suggest, keep walking 🙂

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@mlemieux

HI @leh09, I’ve been through a great deal of chronic pain most of my life. What would you like to talk about?

Regards,
Martin R. Lemieux

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I hit click for no notifications and know I’m trying to get back

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@mlemieux

HI @leh09, I’ve been through a great deal of chronic pain most of my life. What would you like to talk about?

Regards,
Martin R. Lemieux

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@suebreen54, Go to this link https://connect.mayoclinic.org/discussion/are-there-any-discussions-for-chronic-pain/. Then click the + symbol below the first message. A green check mark will appear. The green check indicates you are following the thread and you will again receive email notifications when a new message is posted.

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Hi I hope I’m in the right place. I’ve had degenerative disc disease since my early 20 ‘s. And have had injury after injury and lost jobs because of injuries. My last lose of job involved 3discs in my neck. While in treatment for that I was getting epidural a and tramedol I got hit by a pickup truck I was crossing a road and she was turning and didn’t. See me. I could have been left in worse shape I’m very lucky. I had a post concousin and I just can’t more as well. The worst thing that happened is I don’t. Travel well at all. So I stay home all the time. But for Easter I went to my son’s. He lives a few miles a way. I have 4 grandchildren. My son bought them kites from me because that’s what I used to always get them. That was so great for me. He bought kites because I always did. How was everyone’s Easter

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@suebreen54

Hi I hope I’m in the right place. I’ve had degenerative disc disease since my early 20 ‘s. And have had injury after injury and lost jobs because of injuries. My last lose of job involved 3discs in my neck. While in treatment for that I was getting epidural a and tramedol I got hit by a pickup truck I was crossing a road and she was turning and didn’t. See me. I could have been left in worse shape I’m very lucky. I had a post concousin and I just can’t more as well. The worst thing that happened is I don’t. Travel well at all. So I stay home all the time. But for Easter I went to my son’s. He lives a few miles a way. I have 4 grandchildren. My son bought them kites from me because that’s what I used to always get them. That was so great for me. He bought kites because I always did. How was everyone’s Easter

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It sounds like you have had a difficult time, but are still keeping your spirits up. Good for you. Do you experience much pain? I have back problems myself and get pains in my left leg that come from my back. I recently found out that using muscle relaxants when I get pain it helps it go away sooner. As many times as I have complained of this pain and no doctor ever suggested muscle relaxants until I went to a neurologist about another manner and asked him. It just shows to keep on asking. I have had this problem for over 40 years.

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I live in the Adirondack mountains and I don’t have a community pool or physical therapy near I don’t drive. And my son and wife have four kids so it’s to much to go.
I think if you go to a pain clinic and sign their papers making an agreement to follow their rules. If your in sever chronic pain and you can’t function you will be given the appropriate pain relief narconic or not. Has anyone tried epidurals

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@suebreen54

I live in the Adirondack mountains and I don’t have a community pool or physical therapy near I don’t drive. And my son and wife have four kids so it’s to much to go.
I think if you go to a pain clinic and sign their papers making an agreement to follow their rules. If your in sever chronic pain and you can’t function you will be given the appropriate pain relief narconic or not. Has anyone tried epidurals

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I live in a rural area and there are few places to swim here or get any exercise if your limited as I am due to disability. The same is true for medication, if your local medical center restricts pain medicine you may not have any other place to go for help, the same is true if your state government put restrictions on. Please consider lobbing your elected officials to make them aware of your needs and the difficulty you are having getting them met.

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I have been suffering a severe pain crises for three days I’m hoping I won’t have it tomorrow. Stress and other things maybe. I’m on fentynle patches and Tylenol 4 Meloxacam Effexor and. A new neurologic I missed my epidural appointment. I have a big bag of ice around my neck. It’s my cervical disc desease I wish I could sleep more. I sleep at night because of the trozaldol I’m on. It’s just good to have somewhere to go. When I feel better I would love to talk to Joe

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