Amount of time to see Transplant Team

Posted by artsy0062 @artsy0062, 4 days ago

My husband has.been seen initially and will be passed along to the transplant team for evaluation to be put on the list. How long does that usually take? I am probably rushing the process but I am curious

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artsy0062 | @artsy0062 | 1 day ago

We are working with Rochester Hospital

smmattocks | @smmattocks | 8 hours ago

I was dx 2021 with Alcoholic Cirrhosis and then maybe 2 wks later they dx the PBC. (initially my Hepatologist said I was late stage 3 - but both have most of the same symptoms. Haven't heard a word since that about my stage progression. Makes me mad.

Anyway ... when I started my evaluation period for the transplant hospital I had been reading that the tests could all be done in just a few days/weeks. Mine took about 5 months. I couldn't get apmts. soon enough. (my "everything" is at PennState Hershey EXCEPT my transplant team - that's 2 hrs. away in Philly. So all of that is what drug it all out much longer.
( since February I have received the call 2x but both livers weren't quite acceptable by my surgeon. SOOO search on. LOL) GOOD LUCK!