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artsy0062 avatar

Amount of time to see Transplant Team

Transplants | Last Active: May 11 6:52pm | Replies (27)

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Profile picture for slow1 @slow1

@terribwyo Pre-Transplant Tough question to answer. I received my Transplant in Utah, I heard the closer you are supposedly helps put you in a higher position in some ways. Out here ETA does matter and you have to be in that zone while on the list and tell your providers if you will not in advance. They have apartments near the hospital not a lot of them but a few, not free but available at a huge discounted rate.
As for renting a place depending on where you are on the list, size and age I believe are all to be considered. An acquaintance in California has been diagnosed with Liver failure about 7-8 months ago. He hasn’t been put on the list yet being told it’s not severe enough yet to be considered for a transplant. Other considerations at least out here is mental health, smoking, drugs and alcohol.
It was about 18 months from my diagnosis till I received my transplant. Then I had to live in Utah for about 6 weeks.
Not trying to scare or deter anyone. Just maybe inform a little when you don’t know what to expect.
If you’re real close on the list to receiving a transplant and can afford to be by the hospital I totally would. Anyone going through anything similar to this knows car rides are painful plus you get the call it’s go time. To be close to the hospital and when you have issues see the Drs or team that will be helping you would be a beautiful thing.

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Replies to "@terribwyo Pre-Transplant Tough question to answer. I received my Transplant in Utah, I heard the closer..."

@slow1 thanks so much! We just found out that he has been deferred from being added to the transplant list pending an MRI and chemo/radiation. The oncologist told us that would probably happen, so I'm choosing to believe that this means we are headed for the list soon. 😊 My husband is 63, and is an athlete who doesn't drink or smoke or have any bad habits, except maybe cookies (ha ha). He works out and takes good care of himself. When we went to all of the 33 appts for transplant evaluation, every doctor we met mentioned that he doesn't look ill at all. So he has that going for him! He has O-negative blood, which I understand can be trickier to match, so we might be waiting for awhile. I can't imagine making the 6-hour drive while in full panic mode, so we are considering a temporary relocation to Jax when he has been on the list for a bit. Thank you for the advice!