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Amount of time to see Transplant Team
Transplants | Last Active: May 11 6:52pm | Replies (27)Comment receiving replies
@slow1 thanks so much! We just found out that he has been deferred from being added to the transplant list pending an MRI and chemo/radiation. The oncologist told us that would probably happen, so I'm choosing to believe that this means we are headed for the list soon. 😊 My husband is 63, and is an athlete who doesn't drink or smoke or have any bad habits, except maybe cookies (ha ha). He works out and takes good care of himself. When we went to all of the 33 appts for transplant evaluation, every doctor we met mentioned that he doesn't look ill at all. So he has that going for him! He has O-negative blood, which I understand can be trickier to match, so we might be waiting for awhile. I can't imagine making the 6-hour drive while in full panic mode, so we are considering a temporary relocation to Jax when he has been on the list for a bit. Thank you for the advice!
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@terribwyo I truly wish you the best.
I received two phone call the first on Valentine’s Day. I believe 2023. Half way there received a call that it was a no go. I really just felt bad that it was Valentine’s Day and that someone had just lost a loved one. I don’t believe a holiday is a good day to receive the call. My second was the night before my almost first date with my now wife. Oddly enough we really bonded over the phone while I was there. We even got married on the first anniversary of my transplant.
The story being is it may come at the most inopportune time but what a blessing in the end. As soon as you’re on the list and close enough the call could come at anytime, don’t try to expect it or schedule your life around it. Both calls I never would have thought those would be the days I received them.