Amount of time to see Transplant Team
My husband has.been seen initially and will be passed along to the transplant team for evaluation to be put on the list. How long does that usually take? I am probably rushing the process but I am curious
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We are working with Rochester Hospital
I was dx 2021 with Alcoholic Cirrhosis and then maybe 2 wks later they dx the PBC. (initially my Hepatologist said I was late stage 3 - but both have most of the same symptoms. Haven't heard a word since that about my stage progression. Makes me mad.
Anyway ... when I started my evaluation period for the transplant hospital I had been reading that the tests could all be done in just a few days/weeks. Mine took about 5 months. I couldn't get apmts. soon enough. (my "everything" is at PennState Hershey EXCEPT my transplant team - that's 2 hrs. away in Philly. So all of that is what drug it all out much longer.
( since February I have received the call 2x but both livers weren't quite acceptable by my surgeon. SOOO search on. LOL) GOOD LUCK!
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2 Reactions@artsy0062 I had my liver transplant 4 plus years ago due to acute autoimmune liver failure. I was diagnosed in April and received my transplant in October. I had my evaluation appointment with the MassGeneral transplant team in August. I would have had an appointment earlier but there was suspicion that alcohol was involved, though this is not accurate. After my evaluation that early August, I was given a list of appointments to make to further evaluate my safety for the surgery: dental exam, nuclear stress testing, Pap smear and mammogram, CT scan, and probably other testing I’m forgetting. I met with a nutritionist and nephrologist. I did all of this as fast as I could and called in every favor I could and I felt that time was running out and I wanted to live and feel well again. Those months felt like years but in retrospect it was fast. I did find that I had to be active and bossy in pursuit of my recovery. My understanding is that Mayo Rochester is a strong program. Blessings to you and your family- it’s a lot but worth the magic of recovery.
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