Amount of time to see Transplant Team

Posted by artsy0062 @artsy0062, 6 days ago

My husband has.been seen initially and will be passed along to the transplant team for evaluation to be put on the list. How long does that usually take? I am probably rushing the process but I am curious

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We are working with Rochester Hospital

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I was dx 2021 with Alcoholic Cirrhosis and then maybe 2 wks later they dx the PBC. (initially my Hepatologist said I was late stage 3 - but both have most of the same symptoms. Haven't heard a word since that about my stage progression. Makes me mad.

Anyway ... when I started my evaluation period for the transplant hospital I had been reading that the tests could all be done in just a few days/weeks. Mine took about 5 months. I couldn't get apmts. soon enough. (my "everything" is at PennState Hershey EXCEPT my transplant team - that's 2 hrs. away in Philly. So all of that is what drug it all out much longer.
( since February I have received the call 2x but both livers weren't quite acceptable by my surgeon. SOOO search on. LOL) GOOD LUCK!

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@artsy0062 I had my liver transplant 4 plus years ago due to acute autoimmune liver failure. I was diagnosed in April and received my transplant in October. I had my evaluation appointment with the MassGeneral transplant team in August. I would have had an appointment earlier but there was suspicion that alcohol was involved, though this is not accurate. After my evaluation that early August, I was given a list of appointments to make to further evaluate my safety for the surgery: dental exam, nuclear stress testing, Pap smear and mammogram, CT scan, and probably other testing I’m forgetting. I met with a nutritionist and nephrologist. I did all of this as fast as I could and called in every favor I could and I felt that time was running out and I wanted to live and feel well again. Those months felt like years but in retrospect it was fast. I did find that I had to be active and bossy in pursuit of my recovery. My understanding is that Mayo Rochester is a strong program. Blessings to you and your family- it’s a lot but worth the magic of recovery.

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