Living with Neuropathy - Welcome to the group

Hello @greenacres
I'm having a more difficult time sleeping than my usual insomnia.
I thought I would check in and see how your husband and you are doing. Your expression of gratitude for some simple strategies was very gracious and gratifying.
I have a follow-up appointment with a neurologist in October. He'll probably attribute my symptoms as poly pharmaceutical in nature. I don't have much confidence in the new doctor, so I'll go to my journal and write my questions, comments and concerns.

Nope! 3300 mg - I take 600 am,noon , then 900 at dinner , 1200 at bed. I worry about the side effects.

Thanks for responding. Cannabis is illegal in Wisconsin and is so conservative probably never will be. I also am on immunosuppressive medication for several autoimmune disorders so it sounds like it wouldn’t be a good choice for me.

How in the heck do you stay awake

I’m sorry. I thought I did read that you said that, but I couldn’t remember. So, that’s true for medical marijuana too? So ridiculous, as it does benefit so many people with a wide range of illnesses. And, certainly better than a whole host of other pain meds “legally” prescribed.

I hope that you soon find a solution that helps.

Hello, and I’m so glad to find this group.
My neuropathy is not diabetes related. I’m 69, generally healthy, but with severe arthritis in
neck and lower spine.
The neuropathic symptoms in my lower left leg have grown more pronounced and more constant in recent months. It’s silently driving me nuts! Not sure whether to be concerned or not, or how much.
Have just completed a course of Medrol (first time in two years) so pain is not currently an issue. It’s just a constant mental preoccupation — I find I can’t successfully ignore it, and the distraction’s getting to me.
Would love to know how others deal with this side of the condition.
THANKS,
Alice in Maine

Hi Luann...im glad I'm not finally losing it!!! I have thought of cutting my toes off many times!!! Never experienced pain like it. I have had neuropathy for many years but just numbness for years. Over the past several years pain and burning has entered the picture. I am taking Gabapentin 1800mg daily. Many years on tramadol,but my pain doctor has decided I need to come off of that. I have been weaning myself off and of course the neuropathy pain has increased greatly. I also take klonopin .5 mg Which I am also wanting to stop. I am trying many things. Right now have found a little relief with voltaren cream and cbd cream,on my toes and burning areas. Also using ibuprofen and Tylenol. The pain,has altered my life...not for the best to say the least. It is so difficult to know what to do. My neurologist want me to start Cymbalta ...my thoughts are why bother If It won't help me. I live in the flirida panhandle and have toyed with the idea of going to the mayo clinic in Jacksonville. Let's stay in touch ..it us so good to share information. Cathy

I too have painful neuropathy in my feet. I was on 3600 mg of gabapentin and Cymbalta. Wanted to use marijuana so doctor took me off both. Long story short I ended up in a psychiatric hospital with suicidality. MJ didn’t work for me. I ended up getting a spinal cord stimulator which greatly helped. Just found out after 20+ years of meds I have stage 3 chronic kidney disease. I was doing well with healty eating but now I’m soothing myself with food. I feel like a hamster on a wheel. Aargh!

Hi. I’m new…Im 46 years old and am dealing with femoral neuropathy and am in so much pain. In July, I suffered from mini strokes and actually ended up on life support for 10 days. I developed femoral neuropathy because of the way I was laying so I must have compressed a nerve. I’m taking 900 mg of gabapentin 3x a day. Does it really take up to 6 weeks to begin working? And does it take away the stabbing and sharp pains that feel like I’m being electrocuted?? I can’t live like this, it’s awful! Thanks in advance for any helpful input.