Living with Neuropathy - Welcome to the group
Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?
Interested in more discussions like this? Go to the Neuropathy Support Group.
Connect

I have suffered from PN for 2 years. I'm 77 years old and I have been on 20mg of pravastatin at bedtime for about 15 years. Could this be the cause if my NP? And what other chlorestrol medications are available that won't aggrevate my NP that I can discuss with my PCP? Thanks
@retired123, @snagydude, @hjeff and others have mentioned DMSO and may have experience to share with you. There are also a few discussions that mention DMSO - https://connect.mayoclinic.org/search/discussions/.
You might want to scan through the discussions on alternatives to statins - https://connect.mayoclinic.org/search/.
Not sure anyone can determine if the statin is what has caused your neuropathy but it's a discussion worth having with your doctor. Have you talked to your doctor about alternative ways to lower your cholesterol?
Breast cancer survivor of one year. Lymph nodes removed in armpit.Neuropathy in feet. Recently diagnosed as insulin resistant.
I agree with you. These posts should be less about the desperation of trying to get a diagnosis (what difference does it make what kind of neuropathy you have?) and more about how to cope with it? Personally, I have been announcing to my family that I do not have the psychological wherewithal to withstand this condition if it keeps progressing at its current rate. Nor do I want to be a burden or end up in a nursing home. From the looks on their faces, they either don't know what I'm saying or don't want to know what I'm saying.
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2 ReactionsI agree with you. What symptoms do you have?
I have PD also. Interested in seeing what symptoms you have.
@bucksgal52
The Comments usually are from and about someone who is hurting.
We are free to express our frustration. When you have a life changing diagnosis with no cure, it can really spin you around.
I know exactly how that goes. In addition to having Polyneuropathy I was also diagnosed with Mild Cognitive Impairment MCI. I currently also have traits of Frontotemporal Dementia. No cure for that either. At 75, I am doing the best I can each day.
Have a beautiful day.
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3 ReactionsIt is definitely helpful to hear from others with PN. Mine feels like pins and needles/tingling primarily in my arms and legs. I do have cervical spine stenosis but at 83 am reluctant to have surgery. And I’m not certain this is the cause anyway. I have tried lyrica and cymbalta… too many side effects! Not sure what step to take. Low dose mirtazapine? Any help or advice would be appreciated!
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1 ReactionHello @bobbiefosh, Welcome to Connect. I don't blame you for being reluctant to have surgery. I'm 82 and feel about the same. I only have numbness and some tingling with my neuropathy so all medications are out since they only provide relief for the pain that goes along with neuropathy and even then don't help a lot of folks with neuropathy pain symptoms. I shared my neuropathy journey in another discussion here - https://connect.mayoclinic.org/comment/310341/.
If you haven't seen the Foundation for Peripheral Neuropathy site, it has a list of treatments including complementary and alternative therapies that you might find helpful: https://www.foundationforpn.org/therapies/.
Since you mentioned you have cervical spine stenosis which could be causing some of your symptoms I thought I would mention another discussion that might be of interest.
-- Myofascial Release Therapy (MFR) for treating compression and pain:
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
Have you tried any complementary or alternative treatments to see if any might help?
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