Living with Neuropathy - Welcome to the group
Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?
Interested in more discussions like this? Go to the Neuropathy Support Group.
Connect

Thank you! I printed this out to use when I go for my appointment with my new physiatrist. They are also called pain management doctors. I have neck pain that has been ongoing since the end of May (join the club). I’m hoping he can help, but I’m going to PT first. PT worked for me when I had neck pain on my right side. I haven't had neck pain for almost 2 years. My rheumatologist told me the physiatrists use chiropractic, nerve blocks and shots. I’m glad I have now other things that might help.
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2 ReactionsYou are welcome. Glad I could help.
Had no problem scheduling an appointment in about a week and follow up in about 3 weeks later. Needed a referral though. My neurologist was kind enough to do so. So far my experience is very positive. He is now reviewing all the scans, etc. for possible damage, and sources of the pain, etc.
You aren’t far from Illinois or Michigan.
Yes, that’s a point, it’s illegal where I live as well. Old folks arrested for eating pot gummies?
I had a consultation with the pharmacist at the medical dispensary. He was knowledgeable about which strains, strengths would be helpful for pain, insomnia. It’s kinda trial and error. Start low , you can always increase a little at a time. It’s hard to figure out in Ct. because they don’t use the true name of the product so you have to cross reference the dispensary name online.
Hello @greenacres
I'm having a more difficult time sleeping than my usual insomnia.
I thought I would check in and see how your husband and you are doing. Your expression of gratitude for some simple strategies was very gracious and gratifying.
I have a follow-up appointment with a neurologist in October. He'll probably attribute my symptoms as poly pharmaceutical in nature. I don't have much confidence in the new doctor, so I'll go to my journal and write my questions, comments and concerns.
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1 ReactionWhat happens if my pain doctor takes a urine sample and finds cannabis? They would drop me as a patient
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1 ReactionThat sounds awesome. Please keep us posted7!
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1 ReactionHi Luann...im glad I'm not finally losing it!!! I have thought of cutting my toes off many times!!! Never experienced pain like it. I have had neuropathy for many years but just numbness for years. Over the past several years pain and burning has entered the picture. I am taking Gabapentin 1800mg daily. Many years on tramadol,but my pain doctor has decided I need to come off of that. I have been weaning myself off and of course the neuropathy pain has increased greatly. I also take klonopin .5 mg Which I am also wanting to stop. I am trying many things. Right now have found a little relief with voltaren cream and cbd cream,on my toes and burning areas. Also using ibuprofen and Tylenol. The pain,has altered my life...not for the best to say the least. It is so difficult to know what to do. My neurologist want me to start Cymbalta ...my thoughts are why bother If It won't help me. I live in the flirida panhandle and have toyed with the idea of going to the mayo clinic in Jacksonville. Let's stay in touch ..it us so good to share information. Cathy
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