Living with Neuropathy - Welcome to the group
Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?
Interested in more discussions like this? Go to the Neuropathy Support Group.
Connect

That’s a good point, I haven’t come to that yet.
I’d recommend you speak directly to them. Many doctors are becoming more favorable to medical marijuana, as long as it is legal in your state.
Also, I’ve researched cannabis extensively. It definitely interacts with many medications, including pain meds. I am on immunosuppressive meds and I have neuropathy, as well as extreme muscle pain due to an autoimmune disease. I’d love to take cannabis for pain. But I can no longer do so as it interacts with one of my immunosuppressive meds.
Cannabis will interact with any medication metabolized by the CYP3A4 or CYP3A5 enzymes, which is more than 50% of medications. Drugs.com is a good app to check for drug interactions.
-
Like -
Helpful -
Hug
1 ReactionThanks for responding. Cannabis is illegal in Wisconsin and is so conservative probably never will be. I also am on immunosuppressive medication for several autoimmune disorders so it sounds like it wouldn’t be a good choice for me.
Hello Shrley @audriana I'm sorry that you're having trouble sleeping. These are challenging times even without the additional health issues.
Just a quick reply now but will write more later. Wishing you free from pain and suffering. Michelle
How in the heck do you stay awake
I’m sorry. I thought I did read that you said that, but I couldn’t remember. So, that’s true for medical marijuana too? So ridiculous, as it does benefit so many people with a wide range of illnesses. And, certainly better than a whole host of other pain meds “legally” prescribed.
I hope that you soon find a solution that helps.
It’s called anxiety! And pain, stress, adhd !
I do too. I’m having an episode right now. And there’s nowhere to go
I recommend you try cannabis THC and/or CBD or both combined. I have a similar situation as yours due to spinal stenosis and OA having has lumbar fusion in the early 90's. I'm as active as I can be walking minimum 2 miles daily. Cannabis takes your mind off the pain and allows you to function and do your ADL's.
-
Like -
Helpful -
Hug
1 ReactionI too have painful neuropathy in my feet. I was on 3600 mg of gabapentin and Cymbalta. Wanted to use marijuana so doctor took me off both. Long story short I ended up in a psychiatric hospital with suicidality. MJ didn’t work for me. I ended up getting a spinal cord stimulator which greatly helped. Just found out after 20+ years of meds I have stage 3 chronic kidney disease. I was doing well with healty eating but now I’m soothing myself with food. I feel like a hamster on a wheel. Aargh!